Top Tweets for #educateME
World ME Alliance @WorldMEAlliance : one-page explainer on their Medical Education Hub
https://t.co/Q8NSPxRykC
Link to Medical Education Hub:
https://t.co/wYXkdJugJt
#EducateME #MEcfs
Erg dat patiënten zelf hun zorgverleners moeten opleiden van wie ze eigenlijk steun verwachten.
Dat is nog in het beste geval, doorgaans wordt je niet geloofd en gehandeld met achterhaalde behandelingen die schade toebrengen ipv beter maken.
#EducateME
ME/CFS is a seriously disabling condition impacting at least 67 million people.
Medical education is lacking in most countries.
Patients are denied the care they deserve.
Consequences are significant.
Share your story and the World ME Alliance's Medical Education Hub #EducateME
ME/CFS is a seriously disabling condition impacting at least 67 million people.
Medical education is lacking in most countries.
Patients are denied the care they deserve.
Consequences are significant.
Share your story and the World ME Alliance's Medical Education Hub #EducateME
When ME/CFS patients are denied the care they deserve, the consequences are significant:
=> delayed diagnoses
=> harmful or inappropriate treatments
=> repeated experiences of stigma and disbelief
=> patients not warned of the risks of Post-Exertional Malaise (PEM)
#EducateME
ME/CFS is a seriously disabling condition impacting at least 67 million people.
Medical education is lacking in most countries.
Patients are denied the care they deserve.
Consequences are significant.
Share your story and the World ME Alliance's Medical Education Hub #EducateME
Our Medical Education Hub contains trusted, evidence-based resources for health workers. It aims to improve the experiences of people with ME/CFS and their families & foster a future where care is:
- grounded in science
- shaped by dignity and compassion
Share using #EducateME
When ME/CFS patients are denied the care they deserve, the consequences are significant:
=> delayed diagnoses
=> harmful or inappropriate treatments
=> repeated experiences of stigma and disbelief
=> patients not warned of the risks of Post-Exertional Malaise (PEM)
#EducateME
ME/CFS is a seriously disabling condition impacting at least 67 million people.
Medical education is lacking in most countries.
Patients are denied the care they deserve.
Consequences are significant.
Share your story and the World ME Alliance's Medical Education Hub #EducateME
ME/CFS is a seriously disabling condition impacting at least 67 million people.
Medical education is lacking in most countries.
Patients are denied the care they deserve.
Consequences are significant.
Share your story and the World ME Alliance's Medical Education Hub #EducateME
When ME/CFS patients are denied the care they deserve, the consequences are significant:
=> delayed diagnoses
=> harmful or inappropriate treatments
=> repeated experiences of stigma and disbelief
=> patients not warned of the risks of Post-Exertional Malaise (PEM)
#EducateME
@dreyuuuuuh_ bakit need pa ang DBO sintra kung may solid bianca sintra kami???
#SolidBianca
#DDSTanga
#EducateMe
#AllanPeterCayetanoFacebookLive
Our Medical Education Hub contains trusted, evidence-based resources for health workers.
It aims to improve the experiences of people with ME/CFS and their families & foster a future where care is:
- grounded in science
- shaped by dignity and compassion
Share using #EducateME
ME/CFS is a seriously disabling condition impacting at least 67 million people.
Medical education is lacking in most countries.
Patients are denied the care they deserve.
Consequences are significant.
Share your story & the World ME Alliance's Medical Education Hub #EducateME
We are very grateful for over a decade of continued support from @lisburnccc
#EducateME #Hope #MyalgicEncephalomyelitis #Fibromyalgia #Awareness #May12 #Volunteers
💙Tonight, Lagan Valley Island and Union Bridge will be illuminated blue in support of International Myalgic Encephalomyelitis (ME) & Fibromyalgia Awareness Day.
Myalgic Encephalomyelitis and Fibromyalgia are chronic diseases with no known cause or cure that can severely impact upon a person's ability to live a normal life. Hope 4 ME & Fibro Northern Ireland is an all volunteer, patient led charity, supported by their family members, medical and scientific experts.
Councillor Brian Higginson, Chair of Corporate Services voiced his support by saying, “Hope 4 ME & Fibro Northern Ireland’s fundraising helps thousands of people in Northern Ireland. Tonight is an opportunity to recognise and support the charity’s vital work and to raise awareness of ME and Fibromyalgia”.
To find out more information about how to donate, please visit: https://t.co/Ql1E6HFZ3u
The world's first genomic study into ME, or Myalgic Encephalomyelitis, has been announced.
Researchers are hoping that by building a genetic map of the illness, it will help pave the way for a future diagnostic test and even treatments.
But charities have warned that there is more to do and this must only be the start.
@Channel4News reporting on #ME on #WorldMEDay
@BBCNewsNI might please help with new @healthdpt @GPNI_co_uk initiative to encourage HCPs uptake to #EducateME
💙
The world's first genomic study into ME, or Myalgic Encephalomyelitis, has been announced.
Researchers are hoping that by building a genetic map of the illness, it will help pave the way for a future diagnostic test and even treatments.
But charities have warned that there is more to do and this must only be the start.
Few, if any, outside the M.E. Awareness echo chamber take time & put effort into supporting our community
Read this blog by a videographer, recording our annual M.E. education conferences since 2012 👇
Sincere thanks Jeremy @AlphaVidIreland #EducateME
https://t.co/siC4T3pVtc
#MECFS is a disabling condition impacting at least 67 million, but medical education is lacking & patients are denied the care they deserve. Ask healthcare professionals to read our 1-page doc on how our Medical Education Hub can help. https://t.co/2P7B4UIR0k
#EducateME
"Wot hapnd 2 me wasn't just illness. It was failure of medical sys that didn't undrstd wot ME was or how 2 tx it...I know there are so many w8ing in dark, w8ing 2 b heard, still being dismissed & still being harmed by outdated adv" https://t.co/uxedLIGkjE
#EducateME #WorldMEDay
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