Top Tweets for #everpointmatters
@MinoSean 100% truth as I witnessed #NurOwn in Mike and others in the ph 2 trial who only got 1 dose and saw results, but many others who got it in the ph 3 who”thrived” on it! #everpointmatters #endALS @BrainstormCell
Dear @BrainstormCell this was the summer of 2015 when Mike was fortunate enough to participate in the #Nurown ph 2 trial. It worked & would have loved the opportunity to continue. #everpointmatters #filetheBLA
Dear @US_FDA by delaying the @AmylyxPharma decision you removed hope from a lot of PLWALS & their loved ones.#everpointmatters on the ALSFRS-R scale.Thankfully @HealthCanadaNOC didn’t follow @fdacder decision & did right by their PLWALS by approving it. @RepAnnaEshoo @RepGuthrie
Dear @US_FDA with the delay of the @AmylyxPharma decision did you think of #everpointmatters on the #ALSFRS-R?Loss of speech w/ non vocal comm(1pt) to loss of useful speech(0pt) landed Mike in the hospital. It was over Thanksgiving break so we had to move traditions there, uurgh!
Dear @FDA did you think of the milestones that could be missed by families by your decision to delay AMX0035 @AmylyxPharma by 3 months? High school graduation was a short 6 weeks after Mike passed to our family. #everpointmatters @TEAMCUREALS @rett_may @sunnyhennigh what is 1 pt?
Dear @FDA did you consider that #everpointmatters when you pushed out the deadline for @AmylyxPharma’s AMX0035?Tim & @PaustDeb would have preferred to be walking hand in hand in that creek.@MoTombrello @CathyStandish @boaflouncer what does 1 point mean to you? @SenatorHick
Dear @FDA,
1 ALSFRS point makes the difference of walking in the creek or sitting in it. That's what the 3 mo. wait of
@AmylyxPharma’s safe & effective treatment would have meant for Tim. What does 1 point mean to you?
@RepSchneider @RepSchakowsky @rosadelauro
#everypointmatters
Awesome year!
#everpointmatters
District Champs, Sectional Champs, 13 Wins, +33 Goal Diff, 6 All-Conference, 2 All-District, COSCA Sportsmanship Award, 3.92 Team GPA, 0 COVID cases. On the field. Off the field. In the classroom. Not a hole in their resume. Serve, Lead, Succeed? Indeed! #showedmettle #gotmedals
👏👏👏
Great season ladies.
#everpointmatters
Bears’ Cinderella run ends with a broken slipper. Olentangy hustles away with the 3-1 win. UA completes an almost-didn’t-happen season with a stellar 13 wins, a District title, and a lifetime of memories. #allin til the end. @UAHSAthletics @ua_highschool @UA_SpiritClub
Tryouts are on the way!
Sunday 9/13 @ Gahanna Sports Factory.
14U, 16U, 18U 1:00-3:00
12U 3:30-5:00
Please see our website, or DM us, for details.
Just a friendly little pick up game with @UABearsBaseball. What a great way to send off our seniors! #GoBears
C’mon Bears....Mask Up!
If not for you, then for everyone else.
#iwearamaskbecause #IWantASeason #WearAMask #everpointmatters
@UA_Schools @UA_SpiritClub @ua_highschool @UAHSAthletics
Volleyball Skill Training times have been changed.
Monday’s:
Freshmen 6:00-7:30
JV/V 7:30-9:00
Wednesday’s
Freshmen 1:00-2:30
JV/V 2:30-4:00
#everpointmatters
Tryouts start today thru Wednesday from 3:30-5:30 in the Main Gym.
We’ll see you there!
#everpointmatters
@ua_highschool @UA_SpiritClub @UAHSAthletics
Getting ready to kick off our first match against wisconsin Lutheran on our last day of play at Illinois College. #EverPointMatters #ConU
Cougs take second set 25-20!! Set leaders Thompson 12 kills, Helsing 8 kills #cougarPride #EverPointMatters
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