Top Tweets for #longMECFS
@hopefullizzy Bless your sweet heart! I get it.
💔😢 #PwMe 💜
#MillionsMissing
#MyalgicEncephalomyelitis
#MECFS
#Cfids
#ChronicFatigue
#ChronicFatigueSyndrome
#POTS #PANS, #MECFS #MCAS
#LongMECFS 💜
And now #LongCovid
Many just don't understand.🥲
@twoShaws @Dakota_150 Yes!!! This book is excellent.
I found a copy on Amazon a few months ago.
It is a must read for anyone trying to advocate for people with ME.
#PwMe
#MillionsMissing💔
#MyalgicEncephalomyelitis
#MECFS
#Cfids
#ChronicFatigueSyndrome
#LongMECFS 💜
And now, #LongCovid
⚡Study finds medical distinctions in long COVID sufferers for first time.
#WeHaveSeenThisBefore💔
#MillionsMissing
#MyalgicEncephalomyelitis
#MECFS
#ChronicFatigueSyndrome
#LongMECFS
And now #LongCovid ..BUT..
#WeHaveSeenThisBefore😢
#PwMe💜
https://t.co/l7wsbiSTfO
#WeHaveSeenThisBefore 💔
#MillionsMissing 💙
#MyalgicEncephalomyelitis
#MECFS #POTS
#ChronicFatigueSyndrome
#LongMECFS
And now #LongCovid ..BUT..
#WeHaveSeenThisBefore 😢
#PwMe 💜
⚡A blood test for long Covid is possible, new research suggests.
https://t.co/laCiXG4Gjp
Trying very hard to be cautiously optimistic that this will make a difference to the lives of #pwME and will not turn out to be, once again, disappointingly meaningless words of no practical significance. #MECFS #longMECFS #MEAwarenessDay2022
@Elma_Flow @rosaalberola70 @LurdesME_ @SaraVaras042 El uso del hashtag comenzó en otros países con su versión en inglés #LongMecfs en octubre de 2020⬇️
@loscharlos @Dakota_150 It isn't a proportionate risk at all. There are millions of patients of post-viral illnesses who continue suffering for decades. We really know this is not a joke. #MECFS #LongMECFS
Sencillamente, esto es un infierno #EncefalomielitisMialgica #SíndromedeFatigaCrónica #EMsfc #MEcfs #LongEmSfc #LongMeCfs #MEAwarenessHour #HoraSfcEm
Sencillamente, esto es un infierno #EncefalomielitisMialgica #SíndromedeFatigaCrónica #EMsfc #MEcfs #LongEmSfc #LongMeCfs #MartesVisibles
@ruth_lampard @SbrCraftmylife @ReicherStephen @kc14762 @RobertHMcMullen @ABrokenBattery @IndependentSage "May have lost", unfortunately not. I have totally lost any trust in health and social care services regarding #LongMECFS
@fearnley_k @RachelMECFS @Dakota_150 @doctorasadkhan We need quality biomedical research for #LongMECFS
The permanent headache started when I was six. In debilitating pain by age 11. Guts went out at 20. Excruciating pain began at 33. ME by 34. MCAS at 36. I'm 38. Basically always. #LongME #LongMECFS #LongMyalgicE
#ME #MECFS #pwme
How long have you been ill?
Weeks, months, years, decades?
#LongME #LongMECFS #LongMyalgicE
@Dakota_150 @NINDSdirector @NIHDirector I approve of this message 💯👆👆
💔😢 When are you going to take #PwMe seriously & help?
Move us forward out of the dark ages NOW! PLEASE HELP #PWME 💜💔
#WeHaveSeenThisBefore
#MillionsMissing 😢
#PwMe 💜💔💜
#MECFS
#Cfids
#ChronicFatigue
#LongCovid
#LongMECFS
#LongME
@NINDSdirector 💔😢 #WeHaveSeenThisBefore
#MillionsMissing
#PwMe
#MECFS
#Cfids
#ChronicFatigue
#LongMECFS
#LongME
#LongCovid
So when are you going to take #PwMe seriously & help?
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