Top Tweets for #ppmne
Hey @mittromney_sen #belikemike and co-sponsor our important legislation the #medicalnutritionequity
...@CongMikeSimpson
...@NutritionEquity
...#medicalnutritionequityact
...#PPMNE
...@IntermountainP @HeidiMaxfield @pkunews #pkunorthwest
Calling all #PKU and #IMD families to join us for #RareAcrossAmerica2021. This is the year for the #MNEA! #PPMNE
As a rare disease patient, caregiver, or family member, where you live can determine your access to quality clinical care and the availability of resources.
Join other rare disease advocates to 'Rep your code' for #RareAcrossAmerica2021 To register visit: https://t.co/XmNFgjhfQa
Potential job loss because of the pandemic is terrifying for Americans with metabolic disease dependent on #MedicalNutrition to survive & thrive. Please co-sponsor Medical Nutrition Equity Act, S3657/HR2501. #PPMNE #MedicalNutritionEquityNow
@RonWyden @SenJeffMerkley @RepBonamici
Please join NORD and #PPMNE in asking Congress to support the Medical Nutrition Equity Act (S. 3657/H.R. 2501). Take action here: https://t.co/58ivGoYWPO
Individual living with FOOD PROTEIN-INDUCED ENTEROCOLITIS SYNDROME are relying on your support for the Medical Nutrition Equity Act, S3657/HR2501. Learn more at https://t.co/sj5tUGl62d and please co-sponsor. #PPMNE #MedicalNutritionEquityNow #FPIES
Have you completed your DAY OF ACTION activities? Make your voice heard on behalf of #MedicalNutritionEquityNow. 7 simple actions to remind Congress how vital #medicalnutrition is to so many Americans! https://t.co/WMec82L0MG #PPMNE
@RepBonamici I have HOMOCYSTINURIA and I count on medical nutrition to survive. Please co-sponsor the Medical Nutrition Equity Act, S3657/HR2501. I am counting on your support. Learn more at https://t.co/ffQMUCFLXq. #PPMNE #MedicalNutritionEquityNow #HCU
Americans with PKU are relying on your support for the Medical Nutrition Equity Act, S3657/HR2501. Learn more at https://t.co/w3NSJE5bKN and please co-sponsor. #PPMNE #MedicalNutritionEquityNow #PKU #PKUawareness #lowprotein #metabolicdisorder #medicalnutritionequitynow
Make sure you contact your senators and congressmen tomorrow for National Medical Nutrition Action Day tomorrow 5/19. Visit website for steps on how you can participate! #PPMNE #medicalnutritionequitynow
Get ready for National Medical Nutrition Action Day, tomorrow 5/19. Sign up for alerts at https://t.co/a0PFtbeFrD & be ready to remind Congress that #MedicalNutrition and S3657/HR2501 are vital to the health & well-being of so many Americans.#PPMNE #MedicalNutritionEquityNow
Many pediatric patients with GI disorders rely on medical nutrition as their treatment. This is sensible legislation that deserves Congress' attention. #NASPGHAN #MedicalNutrition #MedicalNutritionEquityNow #PPMNE
Get ready for National Medical Nutrition Action Day, tomorrow 5/19. Sign up for alerts at https://t.co/a0PFtbeFrD & be ready to remind Congress that #MedicalNutrition and S3657/HR2501 are vital to the health & well-being of so many Americans.#PPMNE #MedicalNutritionEquityNow
Get ready for National Medical Nutrition Action Day, tomorrow 5/19. Sign up for alerts at https://t.co/a0PFtbeFrD & be ready to remind Congress that #MedicalNutrition and S3657/HR2501 are vital to the health & well-being of so many Americans.#PPMNE #MedicalNutritionEquityNow
We’re heading to the Hill today to fight for #MedicalNutritionEquityNow. These members of the #iem community are fighting for all of us. Please amplify their voices by going to https://t.co/eSEY82JgIo to ask your reps to support HR2501, the MNEA. #RareDC2020 #PPMNE
We will be in DC later this week to meet with @SenatorRomney and others on Capitol Hill to ask them to stand up for #PKU and support the Medical Nutrition Equity Act! #MNEA @NPKUA_Info @howmuchphe #PPMNE #RDLA
@HCUAmerica @MetabolicsBCH We don’t understand either because it is absurd! We will be lobbying in DC during #RareDiseaseWeek for the #MNEA which would require insurance coverage! #PPMNE
Thank you @RepDonBacon for co-sponsoring HR2501, the Medical Nutrition Equity Act. Your Nebraska constituents and thousands of others who rely on #medicalnutrition appreciate your voice in Congress on their behalf. #MedicalNutritionEquityNow #PPMNE
Thank you @ConorLambPA for co-sponsoring HR2501, the Medical Nutrition Equity Act. Your Pennsylvania constituents and thousands of others who rely on #medicalnutrition appreciate your voice in Congress on their behalf. #MedicalNutritionEquityNow #PPMNE
Thank you @RepCohen for co-sponsoring HR2501, the Medical Nutrition Equity Act. Your Tennessee constituents and thousands of others who rely on #medicalnutrition appreciate your voice in Congress on their behalf. #MedicalNutritionEquityNow #PPMNE
Thank you @RepHarley for co-sponsoring HR2501, the Medical Nutrition Equity Act. Your California constituents and thousands of others who rely on #medicalnutrition appreciate your voice in Congress on their behalf. #MedicalNutritionEquityNow #PPMNE
Thank you @SanfordBishop for joining our fight for #MedicalNutritionEquityNow as a co-sponsor of HR2501, the Medical Nutrition Equity Act. Thousands of Americans rely on meddical nutrition. This bill will give them a chance to thrive. #PPMNE @GeorgiaPKU_USA
Thanks @KUTV2News for this outstanding story about #PKU #MNEA #PPMNE #MedicalNutrition
https://t.co/JHv59AUhpd
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