Top Tweets for #psd2017
Patient Solidarity Day 2017 - bigger than ever. click on link to see how members marked the day: https://t.co/TCSPuI4eUS #PSD2017
Today is the day for @FindMeCure Webinar on "How to find & benefit from new treatments" at 3 pm GMT/ 10 am EST . If you have not already signed up yet, please do. Register your attendance here: https://t.co/p9ZDSWLcSZ #PSD2017
Remember to save the date for the @FindMeCure Webinar set for 12th December on "How to find & benefit from new treatments". Register your attendance here: https://t.co/p9ZDSWLcSZ #PSD2017
Know your window of opportunity! Where and how can you engage with decision-makers to improve access to #PalliativeCare for all? Where can you be most effective? #PalliativeCareVoices #PSD2017 @DrLuyirika
Have u missed #PSD2017 #awareness #campaign?#staytuned 4next year!A special thx to @ataxiaandme @CDG_Portugal @22Q11_Ireland @22qAwarenessDay @label_life @MuseoSanRufino @Umbriaecultura @MuseoMontefalco & many others 4their support & help! #pinksocks #sidekicks #rarespecialpowers https://t.co/56GIXQCmuW
It was a pleasure to be part of #PSD2017 w/ the #RareSpecialPowers amazing crew! @DrPas84Ele @ataxiaandme @PittHopkinsUK @22Q11_Ireland @22qAwarenessDay #Patients #Solidarity #RareDisease #awareness #CDGenetiCondition https://t.co/PHBHPc7vnR
It was a pleasure to be part of #PSD2017 w/ the #RareSpecialPowers amazing crew! @DrPas84Ele @ataxiaandme @PittHopkinsUK @22Q11_Ireland @22qAwarenessDay #Patients #Solidarity #RareDisease #awareness #CDGenetiCondition https://t.co/PHBHPc7vnR
Indispensable aumentar el conocimiento y la confianza del paciente y activar su participación a nivel local, nacional e internacional. #PSD2017 | @IAPOvoice https://t.co/qakVi9Rzhd
A big thank you to everyone who supported the Patient Solidarity Day Campaign. The success achieved could not have been possible without the strong multi-stakeholder collaboration that took place. Therefore, we thank you all for the support. #PSD2017
@yann_eurordis @RareDiseasesEU @eurordis & on international patient solidarity day #PSD2017 -important multistakeholder approach to #access
@ataxiaandme @label_life @22Q11_Ireland @22qAwarenessDay @CDG_Portugal @PatientSolDay @kiltedwalker @camraredisease @MuseoSanRufino @Umbriaecultura Allow me to thank u #2 guys in particular 4this #2 day #campaigns - #PSD2017 & #IDPwD- : @ataxiaandme & @CDG_Portugal! They suggested me these #events & we brainstorm on how to do it. Thx also to all the others who kindly joined us & have helped us these 2days!A tot blast!💙🐝 💚
@22qAwarenessDay @CDG_Portugal @ataxiaandme @PatientSolDay @IAPOvoice @label_life @22Q11_Ireland @MuseoSanRufino @GraniDiSenape @hayleyamoulding @RackerbyAmanda @MaxAppealUK @RareRevolutionM @WallaceUofE @ADNPkids @Umbriaecultura @UK_CDG @cdgsindrome @LesPtitsCDG @AmourFund @SArduimBrasil @VJsapps @BegonyaNafria @SerranoGimare @SJDmetabolicas It is really emotional see all this #logos united in support of the #PSD2017... thank you all, it has been really amazing!
💙🐝💚👏 @22Q11_Ireland @MuseoSanRufino show urs too 🤩💖👍
Wow, that was a busy weekend for #PSD2017 #IDPWD #pinksocks #RareSpecialPowers #sidekicks #Disability #RareDiseases @DrPas84Ele
@label_life @22Q11_Ireland @22qAwarenessDay @CDG_Portugal @PatientSolDay @kiltedwalker @camraredisease @MuseoSanRufino @Umbriaecultura
Yesterday was Patient Solidarity Day. Thousands of people from all over the world gathered to show support for the day. This year's theme is "Globally Empowered Patients: Power through Knowledge".
#PSD2017
Ayer se conmemoró el Día de la Solidaridad con el Paciente. Miles de personas de todo el mundo se reunieron para mostrar apoyo para el día. El tema de este año es "Pacientes Globalmente Empoderados: El Poder a través del Conocimiento".
#PSD2017
#DíaDeSolidaridadDelPaciente llamamos a un empoderamiento global de los pacientes para asegurar que ninguna decisión sobre nosotros sea tomada sin nosotros. #PSD2017 https://t.co/DgfoIUZu46
On Patient Solidarity Day we call for globally empowered patients to ensure no decision about us without us #PSD2017 https://t.co/FSy2TzE3oP
Thank you for a very successful #PSD2017 @IAPOvoice! @PatientSolDay is an important day each and every year! https://t.co/WIlo9c7gGS
Become an Expert by Experience..
The Care Quality Commission have produced a short video that helps to explain the Experts by Experience programme & how it fits with their commitment to improving health & social care across the UK
https://t.co/GoaPz0nI5n
#PSD2017
@CareQualityComm
#PSD2017
#RareSpecialPowers
#22q11DS
#22qAwarenessDays
Patients & parents are usually the key force in obtaining appropriate care for a little known but relatively common multisystem condition caused by microdeletion of 30-45 genes on 22nd chromosome, 22q11.2 Deletion Syndrome.
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