Top Tweets for #CDGenetiCondition
May 16th is #WorldCDGAwarenessDay!#CDGenetiCondition #CDGAwareness #Empowerment #CDGCommunity @UK_CDG @cdgsindrome @VJsapps @VirginieBF31 @SArduimBrasil @HealthSoc_ISPUP @scrisostomo1976 @Metab_ERN @DrPas84Ele @ataxiaandme @aneinternationa @AndradaCiuca @RareConnect @castrorakel
May 16th is #WorldCDGAwarenessDay!#CDGenetiCondition #CDGAwareness #Empowerment #CDGCommunity @UK_CDG @cdgsindrome @VJsapps @VirginieBF31 @SArduimBrasil @HealthSoc_ISPUP @scrisostomo1976 @Metab_ERN @DrPas84Ele @ataxiaandme @aneinternationa @AndradaCiuca @RareConnect @castrorakel
#WorldHealthDay is tomorrow!#HealthForAll #LeaveNoOneBehind #RareDisease 🌍#CDGenetiCondition @UK_CDG @cdgsindrome @DrPas84Ele @scrisostomo1976 @RareRevolutionM @aneinternationa @AmourFund @Metab_ERN @ataxiaandme @22qAwarenessDay @22Q11_Ireland @PittHopkinsUK @BegonyaNafria https://t.co/b3oSFoYdMe
We are getting ready for #WorldHealthDay on 7 April!
At least half of the world’s population lacks access to essential health services.
Together, we can make Universal Health Coverage happen.
It’s time for #HealthForAll. For everyone, everywhere.
https://t.co/f8Lr2dipsf
We'll be there! Who else is joining? #CDGenetiCondition #CDGCommunity #CDGResearch @UK_CDG @cdgsindrome @LesPtitsCDG @VJsapps @VirginieBF31 @SArduimBrasil @sandraptsilva @Metab_ERN @ataxiaandme @DrPas84Ele @OrphanConf @BegonyaNafria @22qAwarenessDay @22Q11_Ireland @AmourFund https://t.co/gDHoo3ymGC
Are you a researcher, academic or clinician working in the field of #rarediseases? Make sure not to miss key discussions at #ECRDVienna and learn about the latest developments in healthcare and scientific innovation. https://t.co/R7RIITGSBj
Celebrate "thinking different"#WorldAutismAwarenessDay #LightItUpBlue #CDGenetiCondition https://t.co/AvrqkqqgEV @UK_CDG @cdgsindrome @VJsapps @AmourFund @SArduimBrasil @HealthSoc_ISPUP @DrPas84Ele @aneinternationa @ataxiaandme @Metab_ERN @RareConnect @castrorakel @BegonyaNafria
Joining #PurpleDay celebrations! #Epilepsy is yet another clinical manifestation in #CDGenetiCondition! #Epilepsy severely impacts QoL! @UK_CDG @cdgsindrome @LesPtitsCDG @AmourFund @metabolicfound1 @SArduimBrasil @VirginieBF31 @sandraptsilva @Metab_ERN @EpiCARE_ERN @RareConnect https://t.co/wi6kN3fzbf
#PurpleDay in support of #epilepsy! #brain #TSC #research @22Q11_Ireland @22qAwarenessDay @ataxiaandme @aneinternationa @RackerbyAmanda @MinddsAction @kiltedwalker @BigstepsF @findacure_fdn @camraredisease @CDG_Portugal @MQmentalhealth @RareConnect @RareRevolutionM @PMTJames 🧠💜 https://t.co/87cvcvg9Yx
The #CDGCommunity is a supporter of #BrainAwarenessWeek! #CDGenetiCondition @UK_CDG @cdgsindrome @LesPtitsCDG @AmourFund @VJsapps @VirginieBF31 @SArduimBrasil @sandraptsilva @HealthSoc_ISPUP @ataxiaandme @aneinternationa @DrPas84Ele @RareRevolutionM @camraredisease @BegonyaNafria
Raising #CDGAwareness is a NOBLE action! Gracias @cdgsindrome! #CDGenetiCondition #RareDiseaseDay #CDGCommunity @UK_CDG @LesPtitsCDG @DrPas84Ele @Metab_ERN @SerranoGimare @aneinternationa @AmourFund @scrisostomo1976 @camraredisease @RareDiseaseAdv @RareRevolutionM https://t.co/p2AmDGcQso
Hoy en Madrid ha tenido lugar el acto oficial del Día Mundial de las ER, presidido por S.M. la Reina Letizia. Apoyando este acto tan importante @ChristianG_7 y @almudenacid. @cdgsindrome ha estado representado por Juan y su mamá Cristina. #somosfeder #DiaMundialdelasER
A very interesting event! #CDGenetiCondition is 1 of the IEM w/ liver involvement @UK_CDG @LesPtitsCDG @cdgsindrome @DrPas84Ele @SArduimBrasil @VJsapps @ERN_RARE_LIVER @AmourFund @RareConnect @BegonyaNafria https://t.co/uCBxgM9SVo
The #Recordati Rare Diseases Foundation course on #Inherited #disorders of #metabolism affecting the liver: Management and Outcome takes place from the 8th - 9th of March in Leuven https://t.co/eXxXkWGCGp
#BrainAwarenessWeek is coming up!💚 #CDGenetiCondition #RareDisease @cdgsindrome @LesPtitsCDG @AmourFund @SArduimBrasil @VJsapps @sandraptsilva @IAPOvoice @HealthSoc_ISPUP @BegonyaNafria https://t.co/p4ZnyUT064
#HappyMarch and from 12 to18 is #BrainAwarenessWeek, r u ready?#brainweek! let's start then w #pablopicasso 😍🧠🐝💛 @22Q11_Ireland @22qAwarenessDay @ataxiaandme @aneinternationa @RackerbyAmanda @BigstepsF @CDG_Portugal @UK_CDG @kiltedwalker @camraredisease @findacure_fdn
#CDGenetiCondition & skeletal problems: Is there a link? New Working Group https://t.co/8TwytBy9up #CDGResearch #CDGCommunity @UK_CDG @cdgsindrome @LesPtitsCDG @Metab_ERN @ataxiaandme @DrPas84Ele @RareRevolutionM @AmourFund @SArduimBrasil @VJsapps @RareConnect @RareDiseaseAdv
Such a pleasure to be part of this #awareness raising project #CDGenetiCondition #RareDiseaseCommunity #RareDiseaseDay #RareSpecialPowers Congratulations @DrPas84Ele 4 leading us!@UK_CDG @cdgsindrome @Metab_ERN @SArduimBrasil @sandraptsilva @RareConnect @VJsapps @BegonyaNafria https://t.co/tGXW08jzwX
Celebrating #RareDiseaseDay Alone we are rare, together we are strong. @22Q11_Ireland @22qAwarenessDay @22qUCDMIND @RackerbyAmanda @ataxiaandme @CDG_Portugal @AllenInstitute @PittHopkinsUK @SfNtweets @DrPas84Ele https://t.co/kBCD5qxfFP
PERFECTION!💚😍 #CDGenetiCondition #CDGCommunity #NothingRareAboutLove #RareDiseaseDay @UK_CDG @cdgsindrome @LesPtitsCDG @castrorakel @RareRevolutionM @camraredisease @BegonyaNafria @RareDiseaseAdv @label_life @VJsapps @SArduimBrasil @sandraptsilva https://t.co/gWbe8dAkYK
Happy #weekend! Thx u @CDG_Portugal 4this #quote! @ataxiaandme @aneinternationa @RackerbyAmanda @ANEInt @MuseoSanRufino @camraredisease @RareRevolutionM @PittHopkinsUK @PatientSolDay @22Q11_Ireland @22qAwarenessDay @22qUCDMIND @22q11Europe @findacure_fdn @BigstepsF @BigstepsF
*FEBRUARY is #RareDisease Month: Be empowered,Be involved!*
We are in Madrid at the 1st F2F meeting of the @eupatients training on medicine development #clinicalresearch #PatientExperts #CDGenetiCondition #CDGCommunity #CDGResearch #RareDiseaseDay #eupatients #beinvolved #EUPATI
FEBRUARY is #RareDisease Month:Be empowered!
Never Give Up!💚💪https://t.co/XdibPpYIC4 #ShowYourRare #CDGenetiCondition @UK_CDG @cdgsindrome @AmourFund @RareRevolutionM @SArduimBrasil @VJsapps @RareDiseaseAdv @aneinternationa @ataxiaandme @DrPas84Ele @sandraptsilva @Metab_ERN
*FEBRUARY is #RareDisease Month:Show your true colours* #ShowYourRare #RareDiseaseDay #Research #CDGenetiCondition https://t.co/croFozoDVQ @UK_CDG @cdgsindrome @LesPtitsCDG @ataxiaandme @AmourFund @DrPas84Ele @22Q11_Ireland @VJsapps @SArduimBrasil @c6defreitas
Find FREE, ready to use & share #CDGenetiCondition infographics! Simple, quick & colourful way to #ShowYourRare! #CDGawareness #RareDiseaseDay @UK_CDG @cdgsindrome @LesPtitsCDG @DrPas84Ele @SArduimBrasil @VJsapps @RareRevolutionM @Metab_ERN @RareConnect @c6defreitas
FEBRUARY is #RareDisease Month:Just the perfect time 2 start new projects! #SkeletalInvolvement in #CDGenetiCondition #CDGResearch #RareDiseaseDay @UK_CDG @cdgsindrome @LesPtitsCDG @AmourFund @DrPas84Ele @SArduimBrasil @c6defreitas @Metab_ERN @ataxiaandme @VJsapps @BegonyaNafria
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