Top Tweets for #rarekids
Wisconsin advocate Abigail Rausch explains that the #PRV helps kids with #raredisease feel like they matter.
Tell Congress they MUST support #rarekids by renewing the program before it expires.
Take Action: https://t.co/ymMhG3Nkpg
#Cures4RareKids #Hyperoxaluria
#PRV isn’t hypothetical - it’s making a real difference in the lives of #rarekids TODAY. If we lose #PRV, we lose a vital incentive for #RareDisease treatment development.
Tell Congress to Act Now: https://t.co/ymMhG3Nkpg
#Cures4RareKids
This is a model pioneered by amazing #RareParents in the UK; who continues to inspire me day by day w/ the length they go to do best by their #RareKids. I am so proud to be involved with the network and directly with many member orgs @Ring20UK @CureDhdds @UKTSA @adamclat (2/4)
3 years ago this little lady was born oy to be diagnosed with a rare condition soon after. The importance of #earlydiagnosis and #earlyinterventions for kids cannot be underestimated to enable achieving their potential #accesstohealthcare without delay for #rarekids @rareireland
Rare Disease Awareness Day! NORD @RareDiseases has great info on #raredisease such as #MED13 , our boy’s diagnosis. Support open science so that our #rarekids can get lifesaving answers! #neuroscience #biotech #biomed #autismgenetics #MEDTECH
Daniel (8 yrs) got a little gift from the hospital for doing well on his blood work and he’s been having A LOT of fun with it! He made a little teaching video.
#rarekids #immunology #macrophageactivationsyndrome #autoinflammatoryadvocate
Our #CharityPartners @JordansGAngels have created a beautiful downloadle book for going back to school called Let's Be Friends. It's even got a workbook sections
#RAREKids #BackToSchool #RAREResources
https://t.co/ZjPVT2mAdz
"One day, maybe my son will be cured. I wonder if there is someone looking to help my son or the other children who suffer from a rare disease like him.” Find out how you can support #RareDiseaseDay2021 with Cassie+Friends: https://t.co/9nLrdOGB1C #RareKids #donate #advocate
To end the day with a large helping of positivity, a film showing our #UniqueFeet families staying connected during lockdown ❤️🦓
If you missed it, don’t worry! It's available for 30 days so you can pop back: https://t.co/9oTwMLvMa0
#UniqueFeetFriends #RareDisease #RareKids
So, apparently “cutting teeth” is a trigger for Art’s seizures. 🤦🏾♀️ #knowingishalfthebattle #epilepsy #rarekids
Thanks to a @GlobalGenes grant, @AverysHope1 is offering nonmedical #financialassistance ($200-$1000) to the families of #rarekids with #GIconditions impacted by #COVID19. Assistance is on a first come, first serve basis. Email [email protected] for more info #rareAdvocacy
@RareAdvocacy @Rose_of_Sharon8 @therarefair @MyCityMed The “other 50%” is our knowledge base for the #rarekids we’re raising!
Don’t miss the fantastic @Rose_of_Sharon8 as she moderates our #RareAdult chat at #therarefair this Friday!! #RareKids grow into adults and Sharon is such a champion for this population. Tickets at https://t.co/GtC8qA9His.
@emlord Speaks! Track Two: Leveraging Digital Tools for Reach and Impact https://t.co/D58RyYXABB I saw @RarePOV @taylorkane23 in photo with Cambria too! @MyCityMed @therarefair @GlobalGenes #2019GGSUMMIT #parents #sicks #kids #physicians #access #hospital #raredisease #tests
Despite limited joint flexibility, Vineeth loves to play football, cricket and basketball. If at all these #RareKids are given right diagnosis, early intervention and timely access to medication, these kids would be not just #Rare but #WonderKids too?!!! @curevineeth @Save_Arian
Happy to have seen his favourite animal "The White Horse". Nothing can dampen the spirit of these #Rarekids. #EndHunterSyndrome
#rare means different, and sometimes new,
but #rarekids are still a lot like you.
They love to laugh, & love to play, & just like you they need #kindness each day.
So #showyourstripes! And show that you #care,
With kindness and #love for rare kiddos everywhere.
#battenhope
Speaker Update: @ShiraStrongin, rare advocate, patient, founder of @TheSickChicks, student and actress (#sortasupportive) is joining us at #TheRareFair on September 28th! Don't miss her talk on "Transitional Care - The Shift After 18". #rarekids #rareadv… https://t.co/2hboYwHGso
Do you know about our #RareYouthProject? Did you know that we have a dedicated youth edition, written by children and young people for CYP? Please share this with your #RareKids https://t.co/Zcrv62SaFU #RareDisease #YoungVoices
#Hurray! Rare Kids kicking butt and riding bikes! Love it.
#beawareofrare #raremoms #rarekids https://t.co/2kwWDRfzE7
Last Seen Hashtags on Sotwe
แอบถ่ายอาบน้ำ
Seen from Thailand
arab
Seen from United Arab Emirates
DCdinner
Seen from United States
뿌뿌아린
Seen from Singapore
hijab fuck
Seen from Lebanon
siskaeee
Seen from Austria
vcs ibu.
Seen from Indonesia
SpyCam
unexpected()*()*()*()*+filter:videos
Seen from Mexico
hogtied
Seen from United States
Trends for you
Most Popular Users
Elon Musk 
@elonmusk
241.4M followers
Barack Obama
@barackobama
118.8M followers
Cristiano Ronaldo
@cristiano
114.5M followers
Donald J. Trump
@realdonaldtrump
111.9M followers
Narendra Modi
@narendramodi
107.1M followers
Rihanna
@rihanna
98.7M followers
NASA
@nasa
92.3M followers
Justin Bieber
@justinbieber
91.8M followers
KATY PERRY
@katyperry
90M followers
Taylor Swift
@taylorswift13
84M followers
Lady Gaga
@ladygaga
75.5M followers
Virat Kohli
@imvkohli
73.4M followers
Kim Kardashian
@kimkardashian
70.8M followers
YouTube
@youtube
68.7M followers
Neymar Jr
@neymarjr
66.4M followers
Bill Gates
@billgates
65.2M followers
Selena Gomez
@selenagomez
63.1M followers
The Ellen Show
@theellenshow
62.2M followers
CNN
@cnn
61.7M followers
X
@x
60.7M followers