Top Tweets for #scdCommUNITY
Living with sickle cell?
Help us understand how social & environmental factors affect your health by taking our short survey.
๐ Quick to complete
๐ Chance to win a ยฃ50 voucher
Your voice matters.
#SickleCell #SCDCommunity #PatientVoice #HealthEquity
Just wrapped up a productive reverse site visit for our SCDC program! This visit allowed us to deep dive into the data,refine strategies & strengthen our commitment to understanding &addressing the needs of the #SCDcommunity! @CDC_NCBDDD @UWHealth @MedicalCollege Link in comments
Love is a battlefield against pain crises! Beyond these tips, what are your best practices for supporting a loved one with Sickle Cell? Share your wisdom in the comments!
#SCDCommunity #SickleCellStrong #LoveBeyondLimits
Join us for the San Diego Community Group.
๐๏ธ April 23 from 6-8 PM PST.
๐ฃ๏ธ Our guest presenter will be Ashley D. Clemons, Ph. D
Contact Yvonne Jennifer to attend.
#SanDiegoCommunityGroup #SanDiegoSupportGroup #sicklecell #scdcommunity #sicklecelldisease #sicklecelleducation
My favorite part of the @SCDAA23 convention was the #HertzNazaire art gallery. I wish he would have been alive to see the beauty of his work.
#scdcommUNITY #sicklecell #artist #artgallery
Kudos to @SCDAAorg for an inspiring & educational 51st Annual #NationalConvention! We loved seeing so many #SCD Coalition members & celebrating with the #SCDCommUNITY! What was your favorite part?
The Lonzie Lee Jones Patient Advoacy Symposium has begun @SCDAAorg 51st Annual National Convention #SCDAA23 #SCDCommunity
Last night was Sickle Cell Family Feud with @ladybluecries Dominique Harvey as host. East Coast vs West Coast. Who do you think won? @SCDAAorg @SCCConsortium #SCDAA23 #SCDCommunity
We had a blast last night at convention playing Family Feud! Our East Coast friends faced off against our West Coast friends in this sickle cell-themed competition. Thanks to everyone who joined us and cheered on their team! #SCDAA23 #SCDCommunity
Welcome to Day 2 of the convention! What are you most excited for today? Let us know in the comments! #SCDCommUNITY #SCDAA23
Our first full day of convention was a success! We had an incredible time learning from our many speakers and panelists. Weโre excited to see you tomorrow for Day 2! #SCDCommUNITY #SCDAA23
Julie Kanter @jkw4444 just shared with us that she diagnosed a 60-year-old patient with #sicklecelldisease this week. In the US we must do better about #sicklecell data collection because #SCD impacts a personโs entire body. #SCDCommUNITy #SCDAA23
Welcome to our first full day of convention! What are you looking forward to most in the next few days? Let us know in the comment! #SCDCommUNITY #SCDAA23
๐งตI hope my statement on the #SCDAAConvention will
prompt discussion, changes & unity. #SCDCommUNITY It's important that we make our voices, as the sccommunity heard. I was REALLY looking forward to attending what would've been my 2nd @SCDAAorg #sicklecell Convention. 1/6
Only one month left to secure your spot! You won't want to miss our 51st Annual National Convention happening on October 11-14. Immerse yourself in groundbreaking seminars, workshops, panel discussions and more! Register today: https://t.co/FuR1fiuc8H
If you have a passion for helping people with #sicklecelldisease & are willing
to make your voice be heard, you may be a great volunteer for the @SickCells Ambassador program! We focus on changing policy, which is Critical to the #SCDcommunity.
Learn more: https://t.co/4ZX1PCLrPx
Thankfully, I've been taught about #PriorAuthorization, #StepTherapy & med insurance terminology, Thanks to graduating from @patientsrising classes & being a @SickCells Ambassador too, but what about patients who don't? I know how frustrating that is!๐ฎโ๐จ #SickleCellLifeOfMemej
Do you know?
Our little effort can affect a whole lot positively, in limiting the spread of Sickle Cell Disease in our society.
#BetterLifeWithSCD #TogetherAgainstSCD #SCDCommunity #SCDAdvocate
Tell us how you are feeling using emojis! We'll go first:๐โค๏ธ๐ช๐ Your turn!
#FSCDR #sicklecelldisease #mentalhealth #stopthestigma #SCDcommunity
We wanted to wrap up #SickleCellAwarenessMonth by sharing some milestones in #SCD innovation that have made an impact on the #SCDCommunity and ongoing SCD trials and discoveries.
Letโs talk about taking care of and loving YOURSELF. Self-love is so important for the #SCDcommunity. How do you practice self-love and self-care? Read more of Lena's story on our website at https://t.co/8JES3KNN1D
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