Top Tweets for #vertexsavethem
The original post says: "Please pray for my niece Marsulize Barnard she is in ICU and fighting for her life. She has cystic fibrosis & her lungs are tired." - Could @VertexPharma CFTR modulators have saved her as they have saved many others? #RIPMarsulize #vertexsavethem #cfaware
We meet on Twitter tomorrow to make the voice of Cystic Fibrosis patients heard and get their new medications as soon as possible.
Would you support?
#cysticfibrosis #vertexsaveus #vertexsavethem #breathe #muco #fibrosisquistica #mukowiszidose #CFAwareness @KaftrioForAllFR
Kistik Fibrozis hastalarının sesini duyurmak ve yeni ilaçlarına biran önce kavuşturmak için yarın Twitter’da buluşuyoruz🎈
Destek olur musunuz?
#kistikfibrozisteyeniilaçlarödensin
@Yenisehirlioglu
“Hear our voices before it’s too late”. Turkish CF patients need immediate access to lifesaving medicines. #vertexsavethem #letthembreathe
@VertexPharma @rk071 @snbhatia @AlanGarberOG @lee_yuchun @MargieMcglynn @DlmHorizons, Bruce Sachs @CRV
Kistik Fibrozisli bireyler uzun ve sağlıklı yaşamak için yeni ilaçların ülkemizde geri ödemeye alınmasını bekliyor.
Geç olmadan sesimizi duyun! #kistikfibrozisteyeniilaçlarödensin @tcbestepe @saglikbakanligi @_cevdetyilmaz @nejatkocer @ekremcelebi4
#kaftrio #trikafta is an amazing drug that must be available to all critically ill w/#cysticfibrosis wherever they live @VertexPharma @drtlaleng Fantastic to see Joe benefitting, heartbreaking to see those in @VertexSave group so desperately in need yet ignored #vertexsavethem
If anyone can benefit form a CF vest this might be of interest 👇👇👇@vihaan_cfinida @RositsaMalinova #vertexsaveus #vertexsavethem #cysticfibrosis #cfawareness
@besimabdullai Hope you are listening @VertexPharma. Do the right thing & ensure access to your medicines to all that need them, regardless of where they live. End the suffering now. #vertexsavethem #vertexsaveus
Grateful every time this delivery comes. Expensive drugs on #NHS that keep my son w/ #cysticfibrosis healthy & extend his life. I'm accutely aware how many others around the world are dying sooner than they need to w/out access to drugs from @VertexPharma #vertexsavethem
Parents worldwide beg pharmaceutical company to make their life saving drug available to everyone https://t.co/6a27jtxOKs #vertexsaveus #vertexsaveme #vertexsavethem
Thank you so much @livinglovingSA for giving a voice to families around the world who need access to life-saving #cysticfibrosis drugs. ❤️❤️❤️#vertexsavethem #vertexsaveus #muco #fibrosisquistica #saltylife #patients #mukowiscydoza #family #fibrosekystique #famiglia @fqasturias
Thank you so much @livinglovingSA for giving a voice to families around the world who need access to life-saving #cysticfibrosis drugs. ❤️❤️❤️#vertexsavethem #vertexsaveus #muco #fibrosisquistica #saltylife #patients #mukowiscydoza #family #fibrosekystique #famiglia @fqasturias
No child should have to suffer when medicines exist that can help them gain weight & live a long & healthy life. @VertexPharma Where is your global access policy? Their lives are in your hands. #vertexsavethem @VertexSave
3 year old Shifa Fatima from india @VertexPharma there are many who need ur help please make some reasonable price so it can reach everyone #cysticfibrosisinida #shifafatima #cfinda #cysticfibrosis #vertexsaveus
"Let’s get Trikafta for everybody and give them a brighter future." #cysticfibrosis #vertexsavethem #vertexsaveus
https://t.co/IbDbWhuIgx
Why are you letting patients die @VertexPharma? You have made your $$$$Billions - make the drugs available with proportionate pricing in every country where there is need. #vertexsavethem #cysticfibrosis
@gayle_pledger @VertexPharma @VertexSave Ok they are selling their philanthropy to media but only 10 people are supplied with the drug in Greece and more than 400 are suffering. Why? This drug is available for over a year. Why are they letting us die?
@SmoothOperatr1 @VertexPharma Such a tragic situation in Greece & we are hearing the same story in countries around the world. @VertexPharma need to ensure access to everyone in the global CF family. No delays, no excuses. #vertexsavethem @vertexsave
@VertexPharma How about transforming Monika’s life for the better along with thousands of other CF patients around the world? Innovation is pointless if high prices result in lack of access. #vertexsavethem #vertexsaveus @vertexsave
Monika does not need to die so young. @VertexPharma has #kaftrio a drug shown to save the lives of people with #cysticfibrosis like Monika. Vertex is set to have $7.5bn cash in the bank by Dec from CF drugs, yet says it can't treat Monika compassionately? $vrtx #vertexsaveus
Why @VertexPharma? Don’t Croatian CF patients matter too? We are still waiting to see your global access policy. #vertexsavethem @vertexsave
@VertexPharma @VertexPharma Great,but what about Croatian patients? When can we expect drugs available also for our children? Not one of your medicines available in Croatia,why???
@VertexPharma @VertexPharma ‘Pleased to announce’ you’ll be treating 10 patients out of a CF population of 2,000 in Poland. Not good enough! #vertexsavethem #vertexsaveus
@Paulinnn9 @VertexPharma We stand with you & call for Dr Reshma Kewalramani to show compassionate to people like Paulina in great need w/ #cysticfibrosis wherever they live. Our lives are in your hands #vertexsaveus #vertexsaveme #vertexsavethem
Paulina should not have to live like this. She should be fulfilling her plans & living her dreams. Where is your global access policy @VertexPharma? We need to see it now. #vertexsavethem @vertexsave
#vertexsaveme #vertexsaveus #Poland @vertexsave @vertexpharma
My name Paulina I have many plans for my life!I am on oxygen all https://t.co/OId53yHSPp oxygen saturatin is low.from December 2019 health condition turned down.I worked whith intelektualnej disability persons earlier
@VertexPharma There are 2000 people in Poland with cystic fibrosis -
Aneta is one of them. The clock is ticking & time is not on their side. We need to see your global access policy immediately (as per UN Human Rights guidelines). End the suffering. #vertexsavethem @vertexsave
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