Jon Treffert

[Jon Treffert @jdtreffert]

@urogene @VigneshPackiam Does swinging for the fences including bladder preservation (with surveillance)?

[Jon Treffert @jdtreffert]

So how are you celebrating 🥳 @InternatCatDay? You are celebrating 🫪 - Yes?

[Katy Beckermann @katy_beckermann]

Early EV rash may be associated with response

📈 EV-attributed skin toxicity: OS HR 0.46, PFS HR 0.60 at the 30-day landmark
🎯 Onset by day 15 carried the signal. Late rash did not.
⚠️ High-grade rash did not predict worse survival

Retrospective, and the rash group started healthier, ECOG 0 in 57% vs 33%.

Hope we continue to learn more as we understand dose intensity and response how we can best manage what can be severe skin toxicity. Topical and oral steroids, dose hold, and dose reductions.

👉 https://t.co/AsDeCWtAAs

#BladderCancer #UrothelialCA #GUonc #ADC

[Jon Treffert @jdtreffert]

@katy_beckermann Dx cT3N2M0 - Tx EVP currently NED and bladder intact. I was spared EV rash but this is a very common question and concern for many fellow survivors. Thank you for pursuing this!

[Jon Treffert @jdtreffert]

@UroDocAsh @NatRevUrol @IBCG_BladderCA Always grateful for nice articles like this that aren't behind paywalls!

[Jon Treffert @jdtreffert]

@shilpaonc @BladderCancerUS @JoshMeeks @koshkin85 @DrRosenbergMSK @UroDocAsh @SimaPorten @IBCG_BladderCA @LauraBukavinaMD @Parminder1699 @marigfern @carme_mir1 @PGrivasMDPhD @katy_beckermann @Uromigos @tompowles1 Very grateful to @BladderCancerUS
for the opportunity to add my voice and that of my community to an excellent panel.

[Jon Treffert @jdtreffert]

@DrKarineTawagi Very grateful to @BladderCancerUS for the opportunity to add my voice and that of my community to an excellent panel.

[Jon Treffert @jdtreffert]

@chavarriagaj @FaltasLab Excellent presentation and fascinating work. I would love to be able plug in all the data I’ve accumulated on my MIBC journey and have a digital twin to test drive next steps.

[Jon Treffert @jdtreffert]

@AmandaNizamMD @LauraBukavinaMD @IBCG_BladderCA Excellent presentation and fascinating work. I would love to be able plug in all the data I’ve accumulated on my MIBC journey and have a digital twin to test drive next steps.

[UroToday.com @urotoday]

#MIBC: How to manage the bladder after EVP. presentation by @DrRosenbergMSK @MSKCancerCenter, @UroDocAsh @UTMDAnderson, @SimaPorten @UCSFCancer, and @jdtreffert. #BCANTT26 written coverage by @chavarriagaj @PSH_Urology > https://t.co/pUdH72vHpT @koshkin85 @JoshMeeks @BladderCancerUS

[Jon Treffert @jdtreffert]

@UroDocAsh @BladderCancerUS Looking forward to the discussion (Pt Dx cT3N2M0, Tx EVP, NED ~3 yrs post Dx) !

[Jon Treffert @jdtreffert]

Early voting underway - a privilege to choose representatives who will advance initiatives which benefit our community.
Cancer research funding, treatment and screening access are on my list. I donned this hat on my way out to bring it to mind…
#CancerVotes

[Jon Treffert @jdtreffert]

@UroDocAsh @janniksin If the patient presented with la/mMIBC and has deep response to EVP (and not meeting inclusion)?

[Jon Treffert @jdtreffert]

@tompowles1 As bladder intact survivor of stage 3B MIBC - 7 cycles EVP /34 infusions pembro - fully agree with importance of your questions.

[Jon Treffert @jdtreffert]

At the @ASCO meeting, the @AmerMedicalAssn president (also a cancer survivor) and his physician wife offered their insights on "Accelerating the Cure: Perspectives from the AMA on Access to Targeted Immunotherapies". I offered a comment and greatly appreciate the response

[Jon Treffert @jdtreffert]

Update from @tompowles1 at @ASCO 2026. Median OS for patients achieving CR with EVP in EV-302 still not defined after 3.5 yrs. Conversion from PR to CR continues well after inital responders. As bladder intact, DX with stage 3B MIBC, 2.5 years after beginning EVP TX 👍👍😄

[Jon Treffert @jdtreffert]

Once again leaving Chicago inspired and educated - better connected and better able to serve my cancer community. Thank you @ASCO - amazing meeting of 40K professionals that proactively includes the voice of patients.

[Jon Treffert @jdtreffert]

@shilpaonc @tompowles1 @DrChoueiri @DrRanaMcKay @MVossMD @montypal @PGrivasMDPhD @neerajaiims @TiansterZhang @UroDocAsh @IBCG_BladderCA @AndreaNecchi Be there this afternoon with bells on...2.5 years out, DX MIBC spread to 4 local lymph nodes, NED and bladder intact.

[Jon Treffert @jdtreffert]

"Another shirt?" quipped my wonderful wife. Fair point. I've been wearing (literally) many hats in my patient advocacy (survivor, research,policy). This is for @ACSCAN - #CancerVotes initiative working to make fighting cancer a legislative priority

[Jon Treffert @jdtreffert]

@shilpaonc Also grateful (DX Stage 3B, NED (imaging, ctDNA,cysto) 2.5 yrs after EVP with bladder intact) median OS with CR still not defined - advocate looking forward to the presentation!