J Mathews LC Fighter

Let’s kick long covid’s ass.

[J Mathews LC Fighter @jmat5555558]

@dbkell @ISLCPAIS Ever considered role of Lipoprotein a as contributor to Covid clotting? Only current US medical intervention is apheresis. Maybe why apheresis helps some LC not others? Small, sticky, clotty.

[J Mathews LC Fighter @jmat5555558]

@atranscendedman @NationalAnthemX @mcuban @costplusdrugs Tried for 3 weeks made me so tired, I was scared so stopped. What did you start at and how did you move up?

[J Mathews LC Fighter @jmat5555558]

@O2 I cried when I was your customer

[J Mathews LC Fighter @jmat5555558]

@British_Airways @O2 @Argos_Online Just a few of the big corps with customer service moats. Problem of any kind? Good luck. Chat bots, hours of wait time, complaint pages that don't load. Appalling. You've insulated yourselves from your customers and accountability. Shame.

[J Mathews LC Fighter @jmat5555558]

@British_Airways @MrAndyLowe Doesn't really account for the past several years of website difficulty. It's so frequently not loading. Currently trying to get to complaint page, which conveniently doesn't load. No customer service email. Unhelpful call to customer service line. Shoddy.

[J Mathews LC Fighter @jmat5555558]

@DrRebeccaRyan @AndrewG76201347 @MECFSSD Left renal autotransplantation? You'd move a kidney to a new position rather than keyhole stent implant that takes a few minutes? That seems drastic.

[J Mathews LC Fighter @jmat5555558]

@DrRebeccaRyan @MECFSSD Or damage to the nerves which should be squeezing the veins, but the nerves are not getting enough nutrients or regenerating because of endothelial damage? Not comfortable with sweeping "most" statements. Yes, 2 people here with POTS.

[J Mathews LC Fighter @jmat5555558]

@MECFSSD The doctor who authored this (Dr Brooke Spencer) is brilliant and one of the good ones.

[J Mathews LC Fighter @jmat5555558]

@DrRebeccaRyan @MECFSSD I've met with and family member has been treated by the author (Dr Brooke Spencer) and she is one of the most brilliant people, extremely capable. Compression was severe, stent worked.

[J Mathews LC Fighter @jmat5555558]

@MichelleMaxwell I think it's in the bottom left corner: @gfbeef_

[J Mathews LC Fighter @jmat5555558]

@thePM_001 @atranscendedman Happy that worked for you but done all that and much much more 5+ years. For some, not easy to treat.

[J Mathews LC Fighter @jmat5555558]

@ThePOTSPostman Have you tried a sleep study? Sleep apnea can cause this pattern. System used to waking you up when you stop breathing at night, then can morph into not wanting you to fall asleep preventively. Plus the apnea means sleep cycles never complete and not restful.

[J Mathews LC Fighter @jmat5555558]

@LauraMiers Order online from India.

[J Mathews LC Fighter @jmat5555558]

@LauraMiers Order from India.

[J Mathews LC Fighter @jmat5555558]

@espriestley @NeurologistMom I use for my child. Is there a better alternative? I didn’t realise about the canola oil.

[J Mathews LC Fighter @jmat5555558]

@RorPreston Paper just published by @Huisarts_Vink is brilliant: https://t.co/wIcYFPQ8Mi

[J Mathews LC Fighter @jmat5555558]

@Huisarts_Vink Brilliant and well-put. Thank you.

[J Mathews LC Fighter @jmat5555558]

@longcovidlabs Absolutely no. You hype up your trial, get a bunch of really sick people hopeful, then stop at n=1? And shift to data gathering so quickly? Prove you won’t profit. Data = today’s most fungible asset. Did you collect $? If so where is it?

[J Mathews LC Fighter @jmat5555558]

@HAISurvivor @inkblue01 Strong agree. Unclear on why some LC supporters won’t even discuss that mRNA vax injured many who continue to suffer. It is another piece of the LC damage puzzle.

[J Mathews LC Fighter @jmat5555558]

@SalvMattera Hope it works