John L Whiting

Physician, expertise in Myalgic Encephalomyelitis

[Dr Keith Geraghty @keithgeraghty]

If you read the ABC of MUS treatment GET by this NICE committee member, they state: 'symptoms remind us to do less - but one way out is to do more'! Ask patient to gradually increase activity. I ask is this all theory, bad theory, or has this doctor rever met many ME patients?

[Dr Keith Geraghty @keithgeraghty]

My review of @NICEComms guideline comments from doctors reveals a list of problematic comments, many highly misleading. Perhaps a paper is required on this. I trust what I have presented reveals why many ME patients have found getting good care so difficult.

[Dr Keith Geraghty @keithgeraghty]

More from NICE ME guideline: @rcgp stated there was evidence of benefits from GET citing the PACE trial and FINE trials. FINE follow up had little difference in benefit v controls, PACE highly criticised and reanalysis shows much reduced benefits. @rcgp fail to acknowledge this!

[Tom Kindlon @TomKindlon]

My comments on new NICE #MEcfs guidelines.

The harm from graded activity-oriented therapies in the past is a tragedy & it's very disappointing the system was so slow to pick up on it.

From
@DoctorsWithME statement
https://t.co/nBrF2tFTDu

#CFS #PwME #ChronicFatigueSyndrome

1/

[Dr Keith Geraghty @keithgeraghty]

...we found out in our survey with people living with severe ME that many found hospital vistis and stays very difficult and even traumatising! some patients have since refused to go back to hospital for checks or scans. Drs and nurses need some awareness of how ME impacts people

[Dr Keith Geraghty @keithgeraghty]

exactly my point, ME patients are not asking that more critically ill or other patients are not prioritised, ME patients simply require their illness understood and considered within avl hospital resources eg quiet area bed. Instead, drs and nurses dont truly understand ME needs!

[Katie @LuxMeaMundiAM]

@MichelleBull4 It’s baffling to me that physiotherapists and Drs still took until 2021 to finally listen to their patients with MECFS, Fibro, long Covid, etc.

[John L Whiting @John_CFS]

@missdaisyfdoo @MichelleBull4 !!!

[Dr Michelle Bull 💙 @MichelleBull4]

The @PhysiosForME website shares some of the information about abnormal physiological responses to exercise in people with ME https://t.co/vNH9HigcIP to find out more. Plus the newly published NICE guidance for ME/CFS is also clear - no graded exercise therapy for this group

[Dr Michelle Bull 💙 @MichelleBull4]

As a physio I'm passionate abt promoting physical activity because of the health benefits it can bring. So pleased to see that the statement specifically says that the findings of the research should NOT be applied to people with ME/CFS or Long Covid.
#ConsensusStatementonOnRisk

[PA Media @PA]

On a protest-heavy day, indigenous islanders whose homes are sinking underwater marched on #Cop26 in Glasgow.

Groups from Panama, Amazonia, Patagonia, Alaska and the wider USA were joined by activists
https://t.co/hvwweqDEWV

[Jonathan Reiner @JReinerMD]

750,000 Americans have died from COVID and it’s not the top story. What has happened to us?

[steve williams 🏳️‍🌈🇪🇺🏴󠁧󠁢󠁷󠁬󠁳󠁿🇺🇦 @possiblynotgod]

So Johnson flies from Climate conference in Scotland by private jet to have dinner at the Garrick Club with friend and climate denier Charles Moore
Hypocrisy or just taking the piss?

[Dr Kevin Lee @dr_kevinlee]

Name me another condition that can be so debilitating and with so few treatment options, also e.g. in the UK money for treatment all spent on GET/CBT. #mecfs

[Dr Keith Geraghty @keithgeraghty]

Records released by @NICEComms show the Royal College of Physicians @RCPhysicians asked NICE to remove an expert witness testimony on the grounds they werent an expert in "guideline dev or pragmatic trials". The expert in immunology has a long-term interest in ME/CFS science!

[Dr Keith Geraghty @keithgeraghty]

The @RCPhysicians argued that guideline committee members and witnesses who had any affiliation with ME patient organisations were "activists" and should be dismissed. These included doctors and professors with years of expertise and knowledge on ME/CFS.

[John L Whiting @John_CFS]

@keithgeraghty @RCPhysicians I wonder just how unprecedented this BS is? Why, oh why is there SO MUCH pushback on this particular matter? Is ME/CFS the ONLY illness to have ‘forced’ the Royal College to make a statement of this ilk? If so, why so?

[Nasim Marie Jafry 🍉 @velogubbed]

@MatthewJDalby @keithgeraghty @RCPhysicians I wonder why these obnoxious clinicians think it is OK that they continue to talk utter, utter, utter crap? I doubt would be excusable with any other illness. They are odiously unethical in my opinion.

[Nasim Marie Jafry 🍉 @velogubbed]

@MatthewJDalby @keithgeraghty @RCPhysicians ‘...there is under-representation from patients who have recovered from ME/CFS’ should surely read instead ‘who have recovered from idiopathic chronic fatigue’. These clinicians are barbaric in their refusal to accept reality of lives of pwME. They are also TEDIOUS as hell.

[Jenny Tips for ME 🥄😶‍🌫️🌈🧷 @TweetTipsforME]

@keithgeraghty @RCPhysicians The thing is though that UK ME charities universally reject GET. If you find a pwme committee member who doesn’t they’re not a good representative of patient voice. It’s also weird that they didn’t have well ex patients enthusiastic enough to ask to be on the committee 🤔