Julie Pankhurst

I founded a website that helped to reconnect old friends.I like to retweet good ideas. Living better with MS thank to @OvercomingMS + #Kesimpta (was #Ocrevus)

[Julie Pankhurst @JooLee32]

this is disappointing - two bunches of @marksandspencer tulips bought at the same time yesterday - one limp and lifeless this morning 🤔

[Julie Pankhurst @JooLee32]

@GavinGiovannoni @RachelHorne19 Happy 60th Birthday Prof G!!
🍩🍻🍩🥂🍩🍻🍩🥂

Enjoy your celebrations with the best birthday cake ever!

[Julie Pankhurst @JooLee32]

@LadyKateeW Glad to see you’re being taught some ground breaking advice! 🙄

[Julie Pankhurst @JooLee32]

@lawshalls It definitely does!

[Julie Pankhurst @JooLee32]

5 years ago today I was diagnosed as having primary progressive multiple sclerosis (#PPMS)… when I asked what was my prognosis I was told to expect to be in a wheelchair in five years time.

… today I am healthier and fitter than ever before!

[Julie Pankhurst @JooLee32]

@OvercomingMS Sailing last year for the first time with #MSSail and #OceansOfHope …MS has opened up my world!

[Julie Pankhurst @JooLee32]

…10 months after the initial diagnosis I was told by another neurologist that they thought I actually had Relapsing Remitting MS (#RRMS)

Either way, I am incredibly grateful to have found @OvercomingMS and to be offered #Ocrevus and now #Kesimpta on the #NHS

[Julie Pankhurst @JooLee32]

@milesmendoza Such very sad news.

Thinking of you today Miles.

…incredible to think it was 23 years ago when #FriendsReunited was #WebsiteoftheDay on the Steve Wright show ❤️

Steve’s legacy will live on every time I recall that special catapulting day in the history of FriendsReunited

[Julie Pankhurst @JooLee32]

#YellowFever vaccine for life? …not if you have #ImmunoSuppressant drugs for auto-immune diseases 😥 - gutted that I wont be able to visit #Kenya with @AndBeyondTravel … eyeopener for vulnerable people who live in these countries! #Kesimpta #Ocrevus

[Julie Pankhurst @JooLee32]

@RachelHorne19 I follow the OMS diet and have never felt better. This is a recent OMS webinar worthy of watching. To me the OMS lifestyle gives me the mental and physical strength to power my way through my diagnosis.

https://t.co/15VyGf1uTE

[Penelope Conway 🇺🇸 @PositiveWithMS]

A person with #Multiple Sclerosis walks into a bar…and a table, and a chair and a wall.

[Julie Pankhurst @JooLee32]

For next 36 hours, my friend is a Team Leader for @NoahsArkHospice campaign From That Moment, raising funds in support of babies, children and young people who are seriously unwell. Each donation is doubled! Please watch and donate what you can. Thank you. https://t.co/dCZlLLZwCZ

[Frank I Stand With Ukraine @Ta_Lon]

Canada just found out that they can take t cells from a patient with MS, clean the cells of the MS and replace them and stop the disease or even cure it in 70% of the patients treated. T cells and Lymphocyte replacement is the future of medicine, and you can take that to the bank

[Rachel Horne @RachelHorne19]

Good interview in El Pais with Prof Alberto Ascherio who in January offered compelling data Epstein-Barr Virus (EBV) causes MS.
Q:Could a person with MS be cured if EBV is removed?
A: The only way to know, in my opinion, is to try antiviral treatments.
https://t.co/7xuLGzXcwE

[Julie Pankhurst @JooLee32]

@RachelHorne19 I have a coldsore now …minor stress in last week and hot weather with no lip protection -> Coldsores 😭

[Julie Pankhurst @JooLee32]

@jamieklingler I'm so very sad to read your news Jamie. Fond and happy memories of my family's time with McNulty back in March 2012 will always make us smile💖

[Julie Pankhurst @JooLee32]

@GavinGiovannoni Wishing you a very speedy recovery

[Julie Pankhurst @JooLee32]

Great to meet ⁦⁦@theDr_com⁩ in person yesterday! You have so much in common with ⁦@OvercomingMS⁩ created by ⁦@GeorgeJelinek⁩

#ImABeliever #OvercomingMS #MS https://t.co/e4x8d8lEIk

[Shift.ms @shiftms]

To mark #WorldMSDay we asked MSers to finish two sentences:

• I feel most isolated by MS when...
• Something that makes me feel less isolated by MS is...

Please share this video, and check out our MS community here: https://t.co/pav33r6Z6e https://t.co/yUwwPYFpD1

[Julie Pankhurst @JooLee32]

@LadyKateeW @EE Hope your D2 is ok!!!

Can you believe that my D2 has lost her SIM card …have just this second spoke on phone to a lovely EE man (Nicolas) who has efficiently suspended the card! Next step is to get a replacement from Local EE shop 😅