@ctsinclair @CAPCpalliative@magthenomad @finlay_esme @MDRoeland @RyanNipp@MollieBiewaldMD@DrDavidHui@KatieBriggsMD There are also VA data regarding pall care penetration, but I believe they include inpt & outpt together. Although these are decedent based proxy data, I might consider these numbers from the CMS oncology care model useful. Full report & appendix at https://t.co/wD5O1iOXLo
Thanks @hdaylum! A big thank you to @RMIRECC @SeaDenCOIN and @EasternCoGrecc for such a thoughtful discussion! Couldn't have done it without Dr. Kathryn Nearing, Dr. Peter Gutierrez and @jasimonetti.
Big Thank You to @cari_levy @SeaDenCOIN , @cupallcare , Dr. Kathryn Burgio & Dr. Richard Kennedy on the BEACON project team at UAB & Birmingham VAMC. Could not have done this without all of you or @kutnerj . My 1st @JournalGIM#PTSD#hapc#traumainformed .
Logging off the #CHCSchat as well. Thanks to @CHCShealth and everyone else for the discussion and resources. A5: benefit of #TICchampion meeting wonderful people and organizations that truly care!
A8: You cannot make every environment perfectly safe for every possible person. Doesn't mean you shouldn't try. Important to allow staff & clients to speak up and be supported if they are feeling triggered. #CHCSchat#traumainformed
@CHCShealth Demonstrating #traumainformed principles from the get go, starting from the interview. You have to talk the talk and walk the walk #CHCSchat
@NationalCouncil Agree! A4: need to make sure your training includes examples of local clients, patients and the direct impact on your staff organization. Self recognition (and support for it) in the helping professions is so important! #CHCSchat
@CHCShealth A3: This is the challenge. Excellent resources exist, but organizational culture change takes top down buy-in, time and effort. On individual level - treat people like they are people. Be open, non-judgemental, and appreciate where they are. @CHCSchat
@CHCShealth From the ACEs work that trauma has long term impacts on individuals, neighborhoods, and cultures. But not all potentially traumatic events cause trauma. People are amazingly resilient! #CHCSchat
Hello, I am a palliative care researcher and #traumainformed champion excited to join #CHCSchat today. A1: @samhsagov definition of trauma
https://t.co/WopEa8g4My
Happy National Hospice & Palliative Care Month to all of the clinicians, staff, researchers and advocates working to provide the best care to patients and families facing serious illness.
#NHPCM#HaPC
@drosielle @ctsinclair @WilliamDale_MD@sv1121 @anandiyermd @pallipulm@DevikaDasMD @MBakitas @NatashaDhawanMD@Pallimed Amen. Survival so more sexy than QOL & easier to understand. Something about time to slightly less pain or longer time @ not so great PS. Just not the same ring. Need better marketing. Being forever sick sucks; we help you deal. Other concepts we need to start measuring here IMHO
@drosielle @ctsinclair @WilliamDale_MD@sv1121 @anandiyermd @pallipulm@DevikaDasMD @MBakitas @NatashaDhawanMD@Pallimed Talking about it because folks xcited about survival. If it gets folks xcited about #hapcresearch well great! Retrospective never ideal, but we'll never get all to be doubleblind RCT. We ALL need to be collecting data, getting involved. I <3 #research but it takes a village.
@ctsinclair @WilliamDale_MD@sv1121@pallipulm@DevikaDasMD @MBakitas @NatashaDhawanMD @drosielle @Pallimed Agreed That was my point b4. Live longer maybe, care less expensive, maybe. Goal concordant care - YES, better quality of life - YES, helping to live life in a meaningful, resilient, & more resourced way regardless of function level or disease status is our aim & message IMHO