Khrystal K. Davis, JD

Founder @txrare Dedicated to Improving Access for the Rare Disease Community. Hunter’s (SMA Type 1) Zebra Mom 🦓. Patient Advocate. Speaker. Author. 👦 🧬🦓

[Khrystal K. Davis, JD @KhrystalKDavis]

CLICK TO TWEET: Blocking copay assistance from counting toward patient deductibles is unfair and hurts Texans. #TXLege, support HB 999 with @FourPriceTX, @RyanGuillen, @stevefortx, @TomOliverson, @BhojaniForTexas, @juliejohnsonTX, and @moralesfortexas to ensure #AllCopaysCountTX!

[Adam Johnson - DadVocate @RareDiseaseDad]

Not again…first flight on @AlaskaAir since March when they wouldn’t allow me on my flight home due to my mobility scooter, & it’s another complete disaster.

We’ve had enough of this in the #disability community. We still stand our ground & won’t back down. #RightsOnFlights #ADA

[Robert Popovian 🇺🇸 🇦🇲 @PopovianPharmD]

Rebates don't make up all of the concessions provided by pharma companies - I can't believe in 2023 employees(& @CMSGov & @USCBO) are still only asking for rebate data
Spread pricing hurts patients 👉 higher oop for patients, IOW, employers are exploiting their own employees

[Luke Rosen @lukebrosen]

#ScienceSaturday

[Khrystal K. Davis, JD @KhrystalKDavis]

@Gil_Bashe @MatthewZachary @OffScripHealth @FINNPartners Improving access and health outcomes is a top initiative for @txrare. Texas has the largest population and number of rural patients. Thanks for sharing, @Gil_Bashe.

[GIL BASHE @Gil_Bashe]

Thanks to @MatthewZachary, founder @OffScripHealth, for his passion and partnership with @FINNPartners around #ruralhealth. Matt was front and center in the conversation at "Heartbreak of the Heartland - Crisis in #RuralAmerica."

#makeadifference

[Khrystal K. Davis, JD @KhrystalKDavis]

Looking forward to the @HouseCommerce / @EnergyCommerce markup of the #MVPAct tomorrow/today – thanks to @RepGuthrie @RepAnnaEshoo @RepMMM @RepAuchincloss @RepJohnJoyce @RepScottPeters for sponsoring this bill. Learn more about the bill here: https://t.co/EGsTSDhzVD

[SpaceX @SpaceX]

Liftoff!

[Khrystal K. Davis, JD @KhrystalKDavis]

Congratulations and welcome, Dr Gottlieb @GottliebLab. Research is hope in action, and we’re grateful you’re leading research efforts at @MDAndersonNews for cancer patients in Texas and beyond. #moonshot #MakingCancerHistory

[Peter WT Pisters, MD @ppisters]

Excited to welcome Dr. Eyal Gottlieb to @MDAndersonNews as Vice President for Research. As we propel our research mission defined by our strategic Breakthroughs theme, Dr. Gottlieb's leadership will be critical in our collective efforts to drive high-impact discovery. #EndCancer

[GIL BASHE @Gil_Bashe]

It's urgent we improve people's health in #rural America!

@walmart & @webmd unite national leaders to explore how we improve #ruralhealth. Join the conversation on Nov. 21st, Washington, DC! @CPegusMD @drjohnwhyte

#healthequity #publichealth

RSVP: https://t.co/TfNylgwLpi

[Stacy Hurt (she/her)🌻 @stacy_hurt]

@EMoriartyWade @livinlavidalopo @KhrystalKDavis @RachelleM_Dixon @addiengeorge @CureRareDisease @kmess44 @stern_sydney @cathsmstratton @rarespoonie @remember_girls @mepancure https://t.co/hGu4eMsa9x

[The REAL Dr. Dré @DrDre1914]

I participate in clinical trials so that we can move science forward for sickle cell disease 🙌🏾

[THBI @txhbi]

Deep dive with @SamHarless126, @DonnaHowardTX, and @RepWalle on what to expect in the upcoming Legislative Session during THBI’s Annual Policy Summit. #thbisummit #txlege

[Khrystal K. Davis, JD @KhrystalKDavis]

@JesminSubrina I proudly followed you back. Gratitude!

[Khrystal K. Davis, JD @KhrystalKDavis]

Happy Rare Disease Day 2022❣️ 🦓🧬❤️ We’re celebrating with Hunter as he gets his first #Spinraza treatment of the year. We are thankful and grateful that SMA has a treatment. Advocacy for treatments for every #RareDisease & patient. #RDD2022

[David S. Baskin, MD, FACS, FAANS @DavidSBaskin1]

Honored to present out work at the CNS with DIPG using a novel molecule that is a selective mitochondrial chemotherapeutic not toxic to normal cells

[Rodney E. Rohde, PhD "Doc R" @RodneyRohde]

Truly, an HONOR! Thank you again @pathologistmag

[Khrystal K. Davis, JD @KhrystalKDavis]

At the @txrare #TXRareDisease week back in March, Chair @StephanieKlick shared in our meeting how #Telehealth helped her daughter. I’m grateful for her authenticity in sharing her daughter’s access to specialists during the pandemic. #txlege

[Ashley Aaroe MD @AshleyAaroe]

I joined @AANmember to speak up for #Telehealth and you easily can too (at the link below). Many patients with brain tumors otherwise (without Telemed) must travel long distances for subspecialty care. #AANadvocacy #btsm @NeuroOnc
https://t.co/2D5TpTiky5

[Khrystal K. Davis, JD @KhrystalKDavis]

@caitlinanichols @NeenaNizar @lukebrosen @kat_atchley @SLC6A1_Mom @OnceUponAGene @RarePOV @jerryw1976 @LostTexanInGA @Manuel94 🙌 This is desperately needed.

[Caitlin Nichols, PhD @caitlinanichols]

Calling #RareDisease patients and families — here's a chance to share your insurance denial stories with investigative journalists and hopefully generate some change 👇

@NeenaNizar @lukebrosen @kat_atchley @SLC6A1_Mom @OnceUponAGene @RarePOV @jerryw1976 @LostTexanInGA @Manuel94

[Khrystal K. Davis, JD @KhrystalKDavis]

@RichardEngel His contribution to the RETT & Rare Disease communities will live on. Gratitude.