merrybe

[merrybe @kidneyluv]

@RealTimers @hubermanlab @billmaher @hbomax Bill, the reason I wear the much maligned masks is as a kidney transplant recipient on immuno suppressants for life I can't form a normal antibody response. I wear them in crowds not outside. Not a political statement. It's science. I wish you'd mention these exceptions.

[merrybe @kidneyluv]

@broadwaybabyto also, I'd walk right out of that appointment and take your concern up the ladder. That was so disrespectful on their part.

[merrybe @kidneyluv]

@broadwaybabyto The pandemic never ends for immunosuppressed patients. At the suggestion of a surgeon I present a laminated letter stating that I'm unable to form antibodies to Sars viruses. This was tested when I was given Monoclonalantibody infusions in the hospital with a 0 spike response.

[merrybe @kidneyluv]

my family loves Thanksgiving. It is a day of gratitude, everyone contributes to the table, great food, welcoming the kids and seniors, a walk in nature and football for the sports lovers.

[merrybe @kidneyluv]

@RepHuffman Yes, way too much at stake. My Medicare RX plan for 2026 nearly doubled, my Medicare supplement went up to $3800, and one co-pay for 90 days of transplant medication is $5,000. Every year it’s a scramble to find assistance. Not on Medical. Just trying to live.

[merrybe @kidneyluv]

1 organ donor can save as many as 8 lives. Join me and #DonateLife by signing up in the Health app on iPhone or at https://t.co/SwMmZjlFeo.

[merrybe @kidneyluv]

@Brink_Thinker Yup, in the summers. But it wasn’t exactly wandering the whole neighborhood. There were eyes of neighbors all around except in the park. When the sun started to set and twilight descended and the street lights came on, you’d better be home.

[merrybe @kidneyluv]

FDA Cuts Will Limit Scrutiny of Troubled Foreign Drug Factories, Inspectors Say https://t.co/ZF8O2UEHyn

[merrybe @kidneyluv]

@CoryBooker Thank you for your courage and sharing the personal example of the need for compassion and care and healthcare.

[merrybe @kidneyluv]

@SenBooker Thank you for your words on Social Security and healthcare.

[merrybe @kidneyluv]

@JuddLegum I live in a complex for low income and disabled seniors most of whom cannot afford or operate a computer or use public transportation. Removing phone service is not about efficiency or cutting costs. Rather it creates more barriers to services. More people will suffer.

[merrybe @kidneyluv]

@mcuban @costplusdrugs Kidney recipient seeking a solution. Does your co. offer one?
- Annual income: $34k
- Cost of Myfortic brand immunosuppressant: approx $25k
- not able to take generics tx meds
- Myfortic program ended across us
- Insurance: Medicare rx F plan
Thank you for offering any insights.

[merrybe @kidneyluv]

@_buames Brilliant words, thank you for the gift.

[merrybe @kidneyluv]

Annoying — when the NYT spelling bee🪰 game won’t accept the word “nano.”#nano

[merrybe @kidneyluv]

@richardhirschs1 As an immunocompromised transplant patient, I had a 0 antibody response to 6 vaccines and 2 monoclonal antibody in fusions. There’s nothing I like about masking or asking others to do so in medical settings but I want to live thank you. What would you do if you were in my shoes?

[tern @1goodtern]

Ten things people say about Covid, what they mean, and what I say to them when they say it:

[tern @1goodtern]

25
"I've moved on"
=
"I don't like reality"

I reply:
"You moved too early. The dangers haven't moved on."

[merrybe @kidneyluv]

@cnnbrk As a BofA customer for 40 years, their lack of communication regarding what caused this is appalling. Just one thousands whose meager far things have entirely disappeared from my account.

[merrybe @kidneyluv]

@ScrappyTuesdays @MOTORPHILIA @NBCNews @cnnbrk @FoxNews @ABC @CBS Ain’t no conspiracy theory - It is indeed troubling stuff. What entity hacked our banking system. Dry run?

[merrybe @kidneyluv]

@therealscottyY1 @iamandyholt @BankofAmerica Yes. Same here. Ironic isn’t it?