Lisa S

Daughter w/sclerosing mesenteritis /mesenteric panniculitis diag at 14/ now 21 abd surgeries later. PM me for priv med grp info to add you if diag

[Lisa S @LisaQuilt4]

Pls take 30 seconds & text info below for rare disease #sclerosingmesenteritis @GlobalGenes @RareAdvocates @OrphanConf @RARE_Science

[Lisa S @LisaQuilt4]

#rareleader #sclerosingmesenteritis #mesentericpanniculitis #OpenAct #lifeofanSMpatient @RareAdvocates @rarediseasesnet @GlobalGenes

[Lisa S @LisaQuilt4]

Thank you @OrphanConf https://t.co/fDpSsaNsMi

[World Orphan Drug Congress USA @OrphanConf]

Thanks to my top interactors! @LisaQuilt4 @sclerosingmesen via https://t.co/1J2Zj5QSsM

[Lisa S @LisaQuilt4]

3 members just added to SM private med grp from ID, CA,& Australia (331 total) #sclerosingmesenteritis @RareAdvocates @OrphanConf @Nord @nih

[Lisa S @LisaQuilt4]

Tomorrow is the day MTG @ our State Capitol for #RareDiseaseDay & spkng on #sclerosingmesenteritis (SM) @RareAdvocates @Nord @GlobalGenes

[Lisa S @LisaQuilt4]

@Nano7even my Facebook is under Lisa Schwart in Tulsa Oklahoma. Pls send me a friend request there as well. Thx

[Lisa S @LisaQuilt4]

@Nano7even please PM me. Our group is private and can get u go from you so I can add you over. 😀

[Lisa S @LisaQuilt4]

3 more people diag w/#mesentericpanniculitis & #sclerosingmesenteritis added frm CA, FL, & MD. @OrphanConf @RareDiseases @RareAdvocates @NIH

[Lisa S @LisaQuilt4]

Thanks again orphan drugs. @sclerosingmesen do appreciate it and all that you do! https://t.co/ckFCo4Rxpo

[Lisa S @LisaQuilt4]

Merry Christmas! #sclerosingmesenteritis #superiormesentericarterysyndrome #mesentericpanniculitis @RareAdvocates @OrphanConf @RareDiseases

[Lisa S @LisaQuilt4]

@Africa_Rare have anyone you're involved with #mesentericpanniculitis or #sclerosingmesenteritis ? We hv 1 member in med grp from S. Africa.

[Lisa S @LisaQuilt4]

@NIH @EveryLifeOrg @RareDxResearch @RareAdvocates @PSRorphan @indusradiology https://t.co/vTr9giFpBr

[Lisa S @LisaQuilt4]

Member 302 added to priv med grp diag w/ #mesentericpanniculitis from Canada. @GlobalGenes @RareDiseases @RareDxResearch @rarediseasesnet

[Lisa S @LisaQuilt4]

Member 302 added to priv med grp diag w/ #mesentericpanniculitis from Canada. @GlobalGenes @RareDiseases @RareDxResearch @rarediseasesnet

[Lisa S @LisaQuilt4]

Thanks so much @OrphanConf 😀 https://t.co/wfjX4Rckz3

[World Orphan Drug Congress USA @OrphanConf]

Thanks to my top interactors! @SeqComplete @ataxiaandme @LisaQuilt4 @mighttuss via https://t.co/1J2Zj5QSsM

[Lisa S @LisaQuilt4]

@GlobalGenes @RareDiseases @EveryLifeOrg @NIH @rarediseasesnet @RareAdvocates @PSRorphan @d https://t.co/H2e05Hdvbu

[Lisa S @LisaQuilt4]

Sad to say that we lost a member of our grp w/#sclerosingmesenteritis this week frm Bolivia, recently diag.disease very aggressive at onset.

[Lisa S @LisaQuilt4]

Sad to say that we lost a member of our grp w/#sclerosingmesenteritis this week frm Bolivia, recently diag.disease very aggressive at onset.

[Lisa S @LisaQuilt4]

Member 300 added to priv med grp from Michigan w/#mesentericpanniculitis. @GlobalGenes @RareDiseases @EveryLifeOrg @rarediseasesnet

[Lisa S @LisaQuilt4]

@OrphanConf thank you again for the mention and shout out #sclerosingmesenteritis #mesentericpanniculitis https://t.co/Cx51i0XZxO

[World Orphan Drug Congress USA @OrphanConf]

Thanks to my top interactors! @alanROYGBIV @ataxiaandme @LisaQuilt4 via https://t.co/1J2Zj5QSsM

[Lisa S @LisaQuilt4]

@mighttuss @OrphanConf @RareDiseases @EveryLifeOrg - & Ireland, Scotland, Guam & others. All diag w MP or SM.

[Lisa S @LisaQuilt4]

@mighttuss @OrphanConf @RareDiseases @EveryLifeOrg @rarediseasesnet @NIH - pts all over USA, S Africa, Canada, Germany, Syria, Israel, UK