ME CFS FOUNDATION SOUTH AFRICA #ImHopeful

We aim to raise awareness, dispel the myths and misconceptions surrounding #MECFS. Comprehensively support affected #pwme and form alliances with 3rd parties.

[Resia Pretorius @resiapretorius]

A check-in to give timelines.After final fund curation by @givewithkernls and @polybioRF, funds will be received as a donation by my university.Luminex must provide quote; after acceptance and negotiation on cost, cytometer will be custom- built. This should take minimum 4 months

[Resia Pretorius @resiapretorius]

This is fantastic research on the amyloid nature of the spike protein

[Astronomer Royal for Scotland | Catherine Heymans @AstroRoyalScot]

How can people protect themselves: masks, vaccines, ventilation and if/when you get that positive test #StopRestPace 🧵ends
@MEActNet https://t.co/V4W3rcKNo3

[Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳#pwLC @doctorasadkhan]

Another one. They will keep coming. #microclots are not the full story but they are a big part of it. They are measurable. They are treatable. Everyone needs access to this #LongCovid #MECFS #TreatLongCovid #ResearchLongCovid

[Rivka @Rivkatweets]

@sarahpoetica We need to find the author of the essay and thank her!

[Rivka @Rivkatweets]

24 years ago a virus left me with a Long COVID-like condition. What life is like as a working mom dealing with the fallout - FORTUNE https://t.co/FrPShh9rT3

[Adam Grant @AdamMGrant]

Progress isn’t always about getting better. Sometimes it’s about bouncing back.

Success is not only the peaks you reach—it’s the valleys you conquer. Every experience of enduring adversity and overcoming obstacles is a meaningful accomplishment.

Resilience is a form of growth.

[World ME Alliance @WorldMEAlliance]

Research alert: preprint article posted today provides initial indication that people with #MyalgicEncephalomyelitis have microclotting issues similar to those detected in #LongCovid.

Thanks to @mecfs_sa for supporting this research.
#microclots #pwme
https://t.co/NqdRTKA0KE

[Resia Pretorius @resiapretorius]

@polybioRF, @mecfs_sa, and all our donors: how will we ever be able to thank you enough? Without your generosity and support we would not have been able to fund this project. Our participants: Thank you!

[Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke]

‘Living with Myalgic Encephalomyelitis: An Invisible Disability’, a new comic focussing on people’s experiences of living with ME, developed by Dundee academics in partnership with comic artists and people who have ME. Follow link to download. #MECFS
https://t.co/963uJ00G7L

[Open Medicine Foundation @OpenMedF]

OMF is delighted to welcome Jillian Payne as the newest member of our team! Please join us in welcoming Jill, OMF's new Chief Development Officer. Read more about Jillian: https://t.co/C4EcdXKCVX

#WomeninBusiness #MECFS #LongCOVID #Philanthrophy

[ME Association @MEAssociation]

ME/CFS Research Published 31 May - 6 June 2022 - includes audio commentary from @kabinpears

5 new ME/CFS studies & 16 studies on Long Covid.

https://t.co/HccDu4Ca2e

#pwME #MECFS #MyalgicE #Research #LongCovid #PostCovid

[Open Medicine Foundation @OpenMedF]

Today the Harvard Medical School (HMS) Community honors the memory of Ronald G. Tompkins by lowering the HMS flag to half-staff.

Learn more about Dr. Tompkins's tremendous life and legacy: https://t.co/WAqnODrnxj

[ME CFS FOUNDATION SOUTH AFRICA #ImHopeful @mecfs_sa]

@Sage_Of_Absurd Hi. Retha Viviers from The ME CFS FOUNDATION SOUTH AFRICA NPO. I agree with you. We try to keep updated info on platforms. I am sure the guy with Prof Resia on ME/CFS will do easier explanation. He also involved with Long Covid. May the two of us please talk?

[Dr Keith Geraghty @keithgeraghty]

Ron leading the way in innovative ME/CFS research.

[Hannah Davis @ahandvanish]

Amazing speech from @LisaAMcCorkell! 😭

“The benefit of millions of people getting sick all at once is that we have remarkable access to people and power that others have struggled to get for a long time. I want to make sure I am representing those people.” #LongCovid #pwME

[Cort Johnson @CortJohnson]

Ron Davis’s ME/CFS Moment: The “Core Technology Disrupter” Gets a Win #MECFS https://t.co/TOzRJRNxxb

[Janet Dafoe @JanetDafoe]

Ron Davis's ME/CFS Moment: The "Core Technology Disrupter" Gets a Win - Health Rising https://t.co/Yz9JVLZyrh

[ME International @HackedByLow]

#MyalgicEncephalomyelitis
“The presence of fibrinaloid microclots & associated coagulation issues are present in ME/CFS, & point to a systemic vascular pathology and endothelial inflammation.” “..the fibrinaloid burden in ME/CFS seems to be less than that present in #LongCovid”

[Resia Pretorius @resiapretorius]

@Sage_Of_Absurd We believe that ME/CFS is also a vascular disease. Hypercoagulation is a hallmark of systemic and chronic inflammation. Now we must find the origins driving the vascular pathology. Next: proteomics