WE NEED THE RESEARCH BUT I NEED YOU...
For the next study of my PhD to take place and get this much needed research, I need YOU! If you have PKU, are aged 18 or over (UK based) and do regular activity please give me a message or email [email protected] Thank you!
I NEED YOUR HELP...
If you are in the Liverpool area/willing to travel for novel research into PKU, I would love to hear from you! Any patient with PKU >16yr or caregiver of those <16yr are welcome! Please email me [email protected] to get involved :)
Our paper on the amino acid and protein content of fruit, vegetables and starchy roots for use in inherited metabolic disorders (IMDs) is now published: https://t.co/kWGBRnMXeT
NEW DATES ANNOUNCED!!
Calling all CLINICIANS, DIETICIANS, SPECIALISTS in PKU... This will be a 45min online discussion around PKU, activity, nutrition and exercise. Please email me to find out more and get involved :) thanks to all who have participated/shown interest so far!
HELP NEEDED!! 🙏🏼
Focus groups THIS Thursday at 10am and Monday 12th at 10am. This is your chance to be part of novel research into PKU and help make a difference. Please email [email protected] for further information. Thank you for the ongoing support.
I NEED YOUR HELP!
The control group surveys for study 1 are now LIVE.
If you are an active adult over 16 years old please fill out BOTH of these surveys below. Thank you!
https://t.co/ZscZLCqXtn
https://t.co/osyvIeAAuD
@lewisgough@macdonj
This is open WORLDWIDE for any PKU patient > 16yr or caregiver of a PKU patient < 16yr. You do NOT have to be involved in physical activity or exercise to take part - it’s for EVERYONE! Thank you for the continued support - as a PKU patient I hope to do the community proud 💚
The Biennial meeting of the International Society for Study of Coeliac disease (ISSCD).
Is coming to Sheffield in September 2024!
If you have an interest or work in the area of gluten related disease please consider registering!
#ICDS2024
➡️ https://t.co/t0INN2UccJ
#PKU suitable #lowprotein Easter Treats downloadable photobook is here!
Thank you @macdonj@MetabolicsBCH for making this brilliant resource!
🐇🐇🐇
https://t.co/nz8XMVYdFa
itsu sweet soy glaze crystal noodles cup: 1 cup (prepared) =1.5g protein (1.5 exchanges). Crystal Noodles are based on pea starch, water, mung bean starch and are low in protein. Found in @sainsburys@Tesco@waitrose