PANSPANDAS

Spreading awareness for children suffering from PANS, PANDAS & AE

[PANDAS PHYSICIANS NETWORK @PANDASPPN]

Today is World Mental Health Day. Those suffering from acute and dramatic psychological distress triggered by an infection need to be part of the conversation. Know when to consider PANS/PANDAS. https://t.co/PIqg2c15j7

[LAST WEAPON @weaponrosary]

Here is the full event from our “live” yesterday. Thank you to everyone who showed up and supported in person and watched online! Thank you for fighting for our children with PANS & PANDAS!

0:00: Intro
3:40: Father Onyema Jubilee - Opening Prayer
6:30: Mehri Coulter - Mother
14:08: Harrold Perrineau - Hollywood Actor & Father
16:06: Chris Mathias - Idaho State Representative
24:18: Candice Tant & Janee Sheppard - Mothers
28:23: Julie Pitre - Mother
33:24: Bauer Beishuizen - Child with PANS
33:55: Amy Barbieri - Mother
40:14: Macie Barbieri - Teen with PANS
43:49: Callum Coulter - Brother
47:47: Heston Coulter - Brother
52:05: Estelle Coulter - Cousin
54:36: Sarah Lemley - NWPPN Director/Founder
1:03:02: Gianna Coulter - Teen with PANDAS
1:07:30: Closing

https://t.co/XUu34Su3tY

@GovernorLittle @SenatorRisch @MikeCrapo

[Inflamed Brain Alliance @inflamedbrain_]

Thank you to our Calgary #LightUp4PANS community for coming together!

Because no one should face PANS/PANDAS alone. Feeling seen and supported gives us the strength to keep going and the courage to step outside our comfort zones.

Community can be a lifeline. 💚

[PANSPANDAS @PANSPANDAS]

Show up!

[LAST WEAPON @weaponrosary]

Final post. SHOW UP!

@GovernorLittle @SenatorRisch @MikeCrapo @megynkelly

[PANDAS PHYSICIANS NETWORK @PANDASPPN]

Have a PANS/PANDAS related presentation, workshop, or poster on mental health research or treatment to share? Submit to the 2027 Anxiety and Depression Association of America (ADAA) Conference. Deadlines vary, beginning October 15. https://t.co/ZCO5fHRqON

[PANDAS PHYSICIANS NETWORK @PANDASPPN]

Clinicians now have easy access to our most requested PANS/PANDAS resources, all in one place. Keep these clinical tools close at hand for evaluation and treatment.

Explore. Bookmark. Print. → https://t.co/RNlQ6lMbsP

[PANDAS PHYSICIANS NETWORK @PANDASPPN]

Keep current with research advancing our understanding of PANS and PANDAS. Explore the latest research and select summaries in the PPN Research Library. https://t.co/Gho6HJIxrx

[Awareness @RuudGrethe]

#PansPandasHour

[PANDASMama @PandaMama2024]

The first centre for children with PANS/PANDAS syndrome opens in Parma. @roinnslainte https://t.co/xXpaRH28dl

[PANSPANDAS @PANSPANDAS]

And a PANDAS advocate!

[Medical Academy of Pediatrics & Special Needs @MedMAPS]

A proud moment for the MAPS family. 💙

Congratulations to Dr. John Gaitanis on his new role as IACC Chair, and to Dr. Sylvia Fogel for her continued leadership.

We’re grateful to see MAPS members contributing to this important work in autism research and policy.

#MAPS #IACC

[Dritan Agalliu @DAgalliu]

Thank you to @PANDASnetwork and the @BCNewsWire for highlighting our research. New Research Provides Groundbreaking Look Into Brain Processes Behind PANS, PANDAS, Sydenham’s Chorea https://t.co/2eBFAgWUfA

[LAST WEAPON @weaponrosary]

SHOW UP! October 9th, 4-6PM. Boise Capitol to support “Gianna’s Bill.” Wear green! 💚

[Trump Girl @TrumpGirlLove]

SHOW UP FOR GIANNA. SHOW UP FOR IDAHO KIDS. 💚

On October 9, Idaho families are gathering at the Capitol for one simple reason: kids with PANS/PANDAS need treatment, not denials.

Gianna (“Gigi”) Coulter of Melba is one of those kids. Her story is why this bill carries her name. PANS/PANDAS is an immune-driven condition that can suddenly change a child’s personality, behavior, and ability to function. IVIG and other treatments can help—when insurance actually covers them. Many Idaho families are still being told no.

This is PANS/PANDAS Awareness Day. It’s also the day we show lawmakers that Idahoans expect coverage for medically necessary care.

📅 Thursday, October 9 | 4–6 p.m.

📍 Idaho State Capitol, Boise

Wear green. Families will speak. Legislators will speak.
There will be a way to sign in support of Gianna’s Bill on site.

If you have a child, know a family going through this, or simply believe sick kids shouldn’t have to fundraise or fight insurers for care—come stand with them.

Show up for Idaho kids. 💚

[The Times and Sunday Times @thetimes]

“She was clawing at her mum and screaming, ‘Make it stop.’”

Doctors are uniting to find a cure for Pandas, a disorder that arrives ‘like the flick of a switch’ and torments children as young as three ⬇️ https://t.co/k9jWNn64E6

[Mel Payne @melpayne77]

Shining a light on this horrific condition that has brought our family to its knees. More research, education for doctors, & treatment is crucial to save lives #PANDAS #PANS @panspandasuk @MedTweetMYHQ @NHSEngland @MorecambeBayNHS @simonfell

[Fulvio D'Acquisto @FulvioDAcquisto]

Full room for this exciting conference on PANDAS/PANS. I look forward to excellent talks from world experts. It would be great to have one in the old continent too @PandasPans

[Trump Girl @TrumpGirlLove]

🚨🚨@SecKennedy please help this father. Get in touch with him.👉 @weaponrosary

Robert F. Kennedy, Jr & U.S. Department of Health and Human Services ,

I’m not stopping until we talk on behalf of all PANS/PANDAS children that are suffering just like this ⬇️. This is what PANDAS looks like.

*Pediatric Autoimmune Neuropsychiatric Disorder Associated w/ Streptococcal (PANDAS)

[Micah Yu, MD @myautoimmunemd]

Excited to join pediatric innovators at @A4MEvents Pediatrics Reimagined Summit this September in Nashville!

Master functional approaches to PANS/PANDAS, autoimmunity, neurodevelopment & metabolic health in kids.

Register now https://t.co/gbhDrbrj1a

[PANDAS PHYSICIANS NETWORK @PANDASPPN]

Clinicians & researchers: Register for The Alex Manfull Fund Symposium on Nov 14 in Portsmouth, NH. This event brings together leading experts to explore the research & clinical advances in PANS/PANDAS & other immune-mediated neuropsychiatric disorders. https://t.co/sDjaNULCVM

[PANSPANDAS @PANSPANDAS]

Boise! Show up wearing green October 9th for children suffering from Pediatric Autoimmune Neuropsychiatric Disorder.

Currently there is no insurance coverage and parents are left with $30,000 / month in medical bills.