Cathy Mumford

Primary Biliary Cholangitis (PBC) patient & advocate, a rare disease zebra. @PBCers, @Wegohealth & @brkthrough_crew. 🗝PBC is like an iceberg, 90% unseen.

[Cathy Mumford @pbcadvocate]

Primary Biliary Cholangitis (PBC) (and PSC, AIH) is like an iceberg... what you don't see is what you need to worry about. #pbcers #pscpartners #AIH #patientworthy #liveradvocate #InvisibleDisease

[Cathy Mumford @pbcadvocate]

#NewProfilePic

[Cathy Mumford @pbcadvocate]

April is National Donate Life Month. Ten of thousands of your fellow citizens need a transplant. Bee a donor and safe lives in a very meaningful way. #DonateLifeMonth #DonateLife #PBCers

[Carol Roberts @pbcercarol]

Asking all PBC patients to enroll in the PBC registry with CoRDS.

[Cathy Mumford @pbcadvocate]

@PatientWorthy Having a #RareDisease, especially if chronic or progressive such as #PBC, doesn't always show, some are #invisiblediseases. #RareDiseaseMonth #AILD #IAmRare

[CymaBay Therapeutics @CymaBay]

Despite the availability of therapies for the treatment of PBC, people living with the disease still have an unmet need for additional therapies. Learn more about seladelpar as an investigational therapy for PBC: https://t.co/f1kXgQbsiN

[Global Liver Institute @GlobalLiver]

#DiseaseoftheDay:
#AutoimmuneHepatitis (#AIH) is an inflammatory #rareliverdisease in which the immune system attacks healthy #liver cells. Though the # of new cases per year is 1-2 per 100,000, this incidence rate is slowly increasing. #RareAware

[Healio Gastroenterology @HealioGastro]

#ICYMI from @Gut_BMJ: “Our findings suggest that the humoral response of [#liver #transplant] recipients is only slightly lower than expected compared with that of #COVID19 immunocompetent controls,” @BecchettiChiara #MedTwitter https://t.co/53RCrdE7Yo

[Cathy Mumford @pbcadvocate]

@GlobalLiver @GlobalLiver Thank you for pulling together this group of patients and people working in the trenches to give #pbcpatients the best life possible. Hearing #patientvoices in clinical trial design and execution gives us meaningful results.

[Global Liver Institute @GlobalLiver]

#HappeningNow: Thank you Professor Dave Jones, OBE, for sharing the current therapeutic approaches for #PrimaryBiliaryCholangitis during the EL-PFDD meeting on #PBC

[Global Liver Institute @GlobalLiver]

#February is #RareLiverDiseases Month. There are >100 #liver diseases & #RareAware highlights the need to promote #awareness & #education about the diverse range of rare liver diseases.
Join the conversation by using #RareAware.
🔗Learn more: https://t.co/jztffuv9h8

[PBCers Organization @PBCers]

Happy 25th Anniversary to the PBC Foundation! Amazing how Collette and Linie on opposite sides of the world decided PBC patients needed support and founded organizations! We are celebrating our 25th Dec. 1st. Both groups have enriched the lives of patients #PBC25

[Antidote @antidote_me]

There is no cure for PBC, but there are treatment options. How is PBC and its key symptoms treated? We break it down: https://t.co/hEFA3wxkRV

[Elliot Tapper @ebtapper]

So your patient’s liver surface is nodular. Do they have #cirrhosis?

they often don’t!

1️⃣many people with nodularity do NOT have F3/F4
2️⃣true even for people with lots of nodularity

This study used MRI and software to 📏nodularity
https://t.co/o0rS5BAa3h #LiverTwitter

[Cathy Mumford @pbcadvocate]

@EuropeLiver @adiazgonzalezMD @HUnivValdecilla @AEEHLiver @EASLnews @EASLedu @sepdigestiva @AlbiEspana @PBC_Canada @PBCRobert @PBCers @PBCNASH @PBCersLinie @FEDER_ONG @PBCers_Tina @pbcercarol @Marko_Korenjak @BeaCredi @MunuainenMaksa @sari_hogstrom @VeronikaVsetic @MKDmilanM @hepar_centar @asscatinforma @fneth_org @LiverTrust @Hetz_liver @EU_Health These are all advanced symptoms of PBC. Early detection and treatment results in normal life spans for most with #PBC. Have your blood tests for liver health run at your annual check up. #PBCAwarenessMonth

[Cathy Mumford @pbcadvocate]

There's so much to do, working collaborative is beneficial for all of us and most importantly for our PBC community.

[European Liver Patients' Association @EuropeLiver]

#PBCaware Month #livertwitter @HUnivValdecilla @AEEHLiver @EASLedu @adiazgonzalezMD
@Marko_Korenjak @PBC_Canada
@PBCers @PBCers_Tina @EASLnews @PBCersLinie @pbcadvocate
💪Let's keep working! Together
#LiverCancerAwarnessMonth #PSC #EUCancerPlan #Endhep #NASH #NAFLD #Alcohol...

[Cathy Mumford @pbcadvocate]

@PBCRobert @DoctorAngry @PSCSupportUK @PBCFoundation So does #pbcers. Physicians need to recognize that going from a person to a patient with a chronic illness is life altering.

[HighTide Therapeutics @HighTideThera]

Do you have Primary Biliary Cholangitis (#PBC) that is not responding to UDCA alone? We're testing a new investigational drug that adds the over-the-counter medication berberine to the standard UDCA drug (BUDCA). Visit https://t.co/XOZgo3BVDq to find out more.

[Elliot Tapper @ebtapper]

I dont always write a paper about managing the complications of ascites,
but when I do, I cite @VelezNephHepato

Many patients meeting criteria for hepatorenal syndrome were reclassified by #pocus, radically changing the treatment plan https://t.co/zJowyasp5b

[European Liver Patients' Association @EuropeLiver]

We have two more days till #PBCinternationalDay Join us and our partners / supporters for #pbcaware campaign in this difficult times with #Covid19 let's don't forget #rareliverdiseas @PBCers @PBC_Canada @pbcadvocate @PBCersLinie @PBCers_Tina @pbcercarol #HealthForAll #livercancer

[European Liver Patients' Association @EuropeLiver]

We got lots of questions about #PBC Primary Biliary Cholangitis?
Most common questions are:
👉Is PBC caused by alcohol?
👉Is PBC contagious?
👉Self stigma?
#PBCaware #RareLiverDiseases @PBC_Canada @pbcadvocate
@PBCers @PBCersLinie @PBCers_Tina @pbcercarol @Marko_Korenjak