fiphfo

🌞😷🇬🇧🌻

[fiphfo @pheob289]

@alexandrite113 I got pretty intense scalp tingles (not wholly unpleasant but distracting) for a few weeks but it settled down and it really helps me now! Can't lie down flat on it or you get head pressure but lying back on cushions ok for me

[fiphfo @pheob289]

@ukhadds Thank you so much!🙏🏻 🙏🏻

[fiphfo @pheob289]

@sunsopeningband That reinfections can lead to worsening - docs don't seem to recognise/believe this. And on that point, not to pathologise us for trying to protect ourselves from further infections (masking), it's not unreasonable to take proven measures to prevent getting further disabled. 🙏🏻

[fiphfo @pheob289]

@Naomi_D_Harvey @ukhadds @SaferAirProject @SmartAirFilters @CleanAir4KidsUK Yeah I think I'm coming to the conclusion it's just badly explained/ doesn't go into enough detail... Shame most ppl reading it will think there's no point measuring co2 if you also have air purifiers.

[fiphfo @pheob289]

Does anyone know why HSE guidance on CO2 monitors says they aren't suitable in workplaces with air cleaning units? It's talking about using them to measure ventilation (not proxy transmission risk) so don't understand @ukhadds @SaferAirProject @SmartAirFilters @CleanAir4KidsUK

[fiphfo @pheob289]

@Naomi_D_Harvey @ukhadds @SaferAirProject @SmartAirFilters @CleanAir4KidsUK I thought this too but the page isn't about using a co2 monitor as a proxy for transmission risk, it's just about using it to measure ventilation so it sounds like it's saying with air cleaners it can't be used to measure ventilation for some other reason? Or am I overthinking?

[fiphfo @pheob289]

https://t.co/QxTIR09Xz5

[fiphfo @pheob289]

@skeuomorphology @1goodtern @brownecfm oh thank you! I wasnt aware of these other tools 🙏 I wonder why the WHO/CERN tool is down, hopefully only temporary 🤞

[fiphfo @pheob289]

Is the WHO Aria tool still available? I can't access it at the usual address https://t.co/xmWqqYyEB3 @1goodtern @brownecfm @skeuomorphology

[Han 🖤 @spoonfulofhan]

I’m disabled and sick. I have epilepsy, severe ME and POTS, and an autoimmune disease. In 9 days, I will be at risk of eviction. I will have no where to go. Please, even a share could help
PayPal: hannahcampjohnson
Ven: hannahliz1129
CA: itsmeliz1129 https://t.co/otYwjlxxFN

[fiphfo @pheob289]

@Gmwetz Yes I have this too, it's too much to process or too much energy to both look someone in the eyes/face and read their expressions and also think about what I'm saying, so I have to look away. Mostly in group settings or places with background noise or talking about emotions

[Katiana. @katiamek]

HEALTH UPDATE: Hi everyone. I’m resharing my fundraiser because my situation at home has become unsustainable for a long time. I’m trying to move out and I will need as much help as I can get. #solidarity #mecfs #pwme https://t.co/IdBV7WHrHy

[fiphfo @pheob289]

@angryhacademic they did do more in depth autonomic tests than my first ttt though, like orthostatic catecholamines, valsalva, ice pack on hand and a few other bits

[fiphfo @pheob289]

@angryhacademic Anything like QSART or testing for autoimmune autonominc ganglionopathy i think you need more 'unusual' presentation, is my impression.

[fiphfo @pheob289]

@1goodtern Did they ever include this code in deaths? If so, when did it change?

[Fran Haddock @franhaddock_]

Would appreciate shares and support for my friend Mari who is enduring severe ME alongside DV and continues to deteriorate. We’ve launched a GFM so she can safely escape but we need help sharing it 💜

https://t.co/xwqLBXgHi1

#MEAwareness #SevereME #MECFS

[fiphfo @pheob289]

@cymru_inquiry @SafeDavid3 I had been wondering what came of the Pegasus exercise!

[Dan O'Hara @skeuomorphology]

A friend's just spent 3 weeks in the ICU with covid, and got out last week. No relevant vulnerabilities & not old. Not eligible for a booster.

They're lucky to have got out.

I tell you this because the public seem to think this doesn't happen anymore.

10/11

[Alan Barnard @alanbarnard1]

"Once we experience the benefits of clean indoor air – imagine getting through winter without needing to take time off work or school – we’ll never want to go back."

What a great article by @AmandaKvalsvig

Link in tweet below...