Reign Josiah

Overcoming SMA type 1
💜 PLEASE HELP US GET THE LIFE SAVING TREATMENT - ZOLGENSMA 💜
I'm a baby who paints beautiful pictures 😁

[Reign Josiah @ReignJosiah1]

I’ve been a bit absent on here, because I’ve been busy getting #Zolgensma! That’s right, it happened! After 2 long years of my parents fighting for me, I was given a chance at a better life #grateful #whatajourney #sma #blessed #cantstopwontstop #nottodaysma

[Reign Josiah @ReignJosiah1]

Help me get #Zolgensma I want to live! #abpoli #AbLeg @tylershandro @ahs @RachelNotley @DShepYEG @tomkmiec @MikeLakeMP @ThomasDangAB

[Reign Josiah @ReignJosiah1]

Could you take 5 minutes and voice your support for me getting #Zolgensma addresses are in the letter. https://t.co/MH9pO7NiCN

[Reign Josiah @ReignJosiah1]

Come on Alberta, help save my life. Denying the #zolgensma application is cruel and unwarranted. Do the right thing and overturn it! #dancinginthereign #abpoli #AbLeg
@shandro @ThomasDangAB @RachelNotley @DShepYEG @AHS_media @PattyHajdu @jkenney

[Reign Josiah @ReignJosiah1]

Novartis AG: Reduce $2​.​1M price of the life-saving drug, Zolgensma, that treats Type 1 Spinal Muscu... https://t.co/zNSIOCXUgw via @Change

[Reign Josiah @ReignJosiah1]

“Most people would agree that every child is worth saving and deserves the best quality of life” #abpoli #zolgensma #sma @RachelNotley @ThomasDangAB @shandro @DShepYEG #savereignslife

[Reign Josiah @ReignJosiah1]

“Rather than recognizing and responding to the severity of his situation, the #UCP penalized #Reign ” #AHS #abpoli #AbLeg @ThomasDangAB @RachelNotley @DShepYEG @AHS_media @shandro @Adrienne_Pan @CBCRadioActive @CBCEdmonton

[Reign Josiah @ReignJosiah1]

Check out these awesome hoodies from #livngivn ! $5 from each one sold goes towards #zolgensma #sma #savereignslife #dancinginthereign

https://t.co/o4PCilVxsG

[Reign Josiah @ReignJosiah1]

Thanks for sharing my story @931TheOne please help me get #zolgensma #dancinginthereign #LinkInBio #savereignslife #angeldonor #norvartis #giveifyoucan

[Reign Josiah @ReignJosiah1]

Former Leduc couple in a race against time to help their ailing son https://t.co/g993RYz7dc

[Reign Josiah @ReignJosiah1]

@hotelmiramusic Thank you for sharing my story!! @hotelmiramusic

[HOTEL MIRA @hotelmiramusic]

This little dude needs our help!

He is the son of a fellow #bellhop His name is Reign. And he needs an expensive gene therapy called Zolgensma. And the Alberta government denied Reign b/c of his bipap mask.

Plz consider donating
❤️
https://t.co/7IoH4OuEC6

[Reign Josiah @ReignJosiah1]

Help me get #zolgensma every dollar and share helps. The government said no funding my application so we are on our own to raise 2.8mil. #dancinginthereign #smawarrior #makeitreign #savemylife #norvatris #abpoli #ableg #Edmonton #donate

[Reign Josiah @ReignJosiah1]

Hey @WilliamShatner this is happening here in Canada too! Reign needs #Zolgensma this is a crazy amount of money to come up with! #sma #dancinginthereign #ableg #abpoli #savereignslife

[William Shatner @WilliamShatner]

Have you heard about this child & her condition? https://t.co/1CLEyiO1Rl Why does a drug cost $2.1 million? 🤷🏼‍♂️ There has to be a way for this world to come together to make this happen. Where are @British_Airways, @KLM , hotels, @BostonChildrens & @Novartis to help this child?

[Reign Josiah @ReignJosiah1]

They see me rollin’ #savereignslife #dancinginthereign #donatetoday #LinkInBio #zolgensma #smawarrior #cantstopwontstop @CBCRadioActive @Adrienne_Pan maybe I can be on your show? That would make my day!

[Reign Josiah @ReignJosiah1]

Ready to take on the day! Right after I get my saliva suctioned out. With Zolgensma I likely wouldn’t have to undergo this 10 times a day #curesma #zolgensma #dancinginthereign #savemylife #linkinbio https://t.co/kAzFgWNxLd

[Reign Josiah @ReignJosiah1]

@GlobalCalgary @TracyNagai Thanks for sharing my story! ❤️

[Global Calgary @GlobalCalgary]

An Alberta family has been dealt a devastating blow after recently learning their young son Reign does not qualify for Zolgensma funding. Reign’s mother, Alex Johnston, joins Global News Calgary @TracyNagai to discuss what this means for the family going forward.

[Reign Josiah @ReignJosiah1]

https://t.co/tvVUhYdAi7