Rochelle

Immunologist, Recovered & relapsed #MECFS patient, Wife of @mattklein123, Mom, Seattleite, Feliphile

#pwME #MyalgicE #MyalgicEncephalomyelitis

[Rochelle @rjoslyn]

Simple summary of what's known about #pwME:
#MECFS Research Roundup: Brief highlights of biomedical research to date
https://t.co/4QIqYRCIkc

[Solve ME/CFS Initiative @PlzSolveCFS]

Check out the interactive guide to the promising new discoveries of 2019 for ME/CFS research: https://t.co/Dd08sUGxCg #MECFS #SMCI

[Solve ME/CFS Initiative @PlzSolveCFS]

Need a better way to communicate with your physician about your symptoms? The app used in the You + M.E. registry will graph your symptoms over time so you can show them to your doctor: https://t.co/PySAo5zH0A

[Rochelle @rjoslyn]

@Melissa_StatSig I am not a physician, I am a researcher (PhD). That said, I have been treated with disdain and outright hostility by providers when I displayed my elite knowledge of the disease in seeking clinical care.

[Solve ME/CFS Initiative @PlzSolveCFS]

Check out our interactive graphic detailing ME/CFS research highlights from 2018, featuring info from over 60 publications! https://t.co/gLfXLhn16V #MECFS

[Solve ME/CFS Initiative @PlzSolveCFS]

Will you be one of the thousands of patients who will contribute their data to the You + M.E. registry? Help us understand more about this disease and pre-register today: https://t.co/PySAo5zH0A #MECFS

[Rochelle @rjoslyn]

@MTackCVS You are very welcome. Glad to help!

[Rochelle @rjoslyn]

2018 has been pivotal for #MECFS research! Read a concise summary of some of the great work produced here:
2018 ME/CFS Research Summary
https://t.co/G07Y8c9hy0

[Rochelle @rjoslyn]

@jenbrea @julesette66 Because it means missing out on experiences during the most active, exploratory time in life. Missing out on making the memories that would provide satisfaction and contentment for an older person equivalently disabled. Experiences denied > experiences curtailed.

[Olivia Fitch @livwithhope]

When asked what they would do if they were well tomorrow, most people w/ #MyalgicEncephalomyelitis list simple pleasures others take for granted: go for a walk, cook a meal, visit family, go back to work, have a baby ...

#MEawarenesshour

@GPTaylorMRD @JustinTrudeau @shoffmanAB

[Rochelle @rjoslyn]

I did this for you, #pwME!

[Matt Klein @mattklein123]

Congratulations to my brilliant wife @rjoslyn for having the grit and determination to defend her PhD in immunology after a difficult few years of life curve balls. So proud of her. 🎉

Also check out the badass celebratory tiara I had made for her on Etsy. 😀

[NSU ME/CFS @NsuMecfs]

A special 30% off at https://t.co/iEdgtJdjWl through August 9, 2018. Donate your DNA to help us advance our research into ME/CFS. For more information, click here- https://t.co/16m3yZK7kf

[Solve ME/CFS Initiative @PlzSolveCFS]

Check out these highlights from many of the primary research articles published in the past 6 months. Read more here: https://t.co/jF4WkVT4iZ #MECFS

[NSU ME/CFS @NsuMecfs]

Our MECFS global genetic database has reached nearly 500 genetic files! If you have ME/CFS, consider donating your https://t.co/ObZhqg8LCS or 23andMe genetic results to our global study. #mecfs #millionsmissing #MyalgicEncephalomyelitis #MEcfs #pwme

https://t.co/16m3yZK7kf

[Open Medicine Foundation @OpenMedF]

Registration is now open to attend the Chronic Fatigue Syndrome Research Center at Stanford University's Second Annual Community Symposium on the Molecular Basis of ME/CFS, sponsored by OMF, on Saturday, September 29, 2018. Find details and register here: https://t.co/mx81JrrfvJ

[Solve ME/CFS Initiative @PlzSolveCFS]

Join us as part of The Center For Solutions for ME/CFS! We are proud to be part of the NIH-Funded Collaborative Research Center at Columbia University. Apply to be a member of the Community Advisory Committee before July 9th. More info at https://t.co/ohZE9AfTsE #MECFS

[Joseph / йосиф 🇺🇦 @JosephStash]

I got ill at the tail end of 2016. Very ill, actually. It has been very strange, and it’s been over a year since I was well enough to leave the house for anything other than a medical appointment. I wrote about what that’s like: https://t.co/W8HBQN5VcK #mecfs #pwme

[#MEAction Network @MEActNet]

Representatives from across federal agencies will convene for the next two days – tomorrow, June 20th and June 21st – for the bi-annual Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting. #MEAction will be present. #mecfs https://t.co/JeSKqjjQGi

[NSU ME/CFS @NsuMecfs]

Nancy Klimas @ NSU is also building the largest ME genetic database, aiming for 10k patients. But our project is not funded, we've been asking for people to consider donating their https://t.co/ObZhqg8LCS or https://t.co/RvM9AleoW4 files.
https://t.co/16m3yZK7kf https://t.co/eSU0ynKg79