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[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

On this #FriendshipDay2022 , sharing a cute photograph of our #SMArtwarriors enjoying their therapy session together. We wish they remain #Friends forever ! Enjoying tiny moments of #BattleAgainstSMA .. #SMAckSMA with a smile 😊!
#SMAawarenessmonth

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
Today's #SMAwarrior is Baby Jason (Type 1) from Tamil Nadu who started showing symptoms from 2 months of age. With excellent care & proactive medical approach, the child survived respiratory infections and #COVID .His parents are trying to access #SMA medicines

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAwarenessMonth
Day 5: #SMA Type 1 survival is dependent on the early start of medicine and a proactive approach on medical interventions. Today's #factsheet gives ways to improve the quality of life through Non-Invasive Ventilation & Enteral feeds. #BattleAgainstSMA
#SMackSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
In today's video meet our
proud little #SMAwarrior Aiza Mariyam, diagnosed at 45 days of age. Having received both #Zolgensma & #Evrysdi , the video clearly depicts how the novel medicines improve the quality and save a precious life !
#BattleAgainstSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Congratulations to Dr Pramod Sudarshan, Consultant Spine Surgeon at @AsterMIMS for winning best paper in ASSICON 2022, annual conference of Association of Spine Surgeons of India. His paper "Scoliosis in Spinal Muscular atrophy (SMA)" was co-authored by Dr Smilu Mohanlal.

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Heartfelt gratitude 2 Hon'ble PM Shri Narendra Modi Ji @narendramodi 4 sparing time 2day with our #SMArtWarriors Roli n Akshat Rastogi 🙏. V truly believe "मोदी है तो मुमकिन है". With yr blessings ALL #SpinalMuscularAtrophy patients in India will get life saving medicine soon 🙏

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

October 20: World Osteoporosis Day!

Osteoporosis is a disease that gradually weakens bones and potentially lead to fractures. Individuals affected with SMA are considered at risk of osteopenia, osteoporosis and fractures.

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Bone & joint care is an essential part of health care in children of developing age.Healthy bones need adequate calcium, vitamin D, and exercise which are compromised in children with physical disabilities resulting in low bone mineral density (BMD) and high risk of osteoporosis.

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Pregnancy n infant loss Remembrance Day
On d occasion of dis day, CureSMA India would like 2 pay tribute 2 all d SMA Angels who left dis world even before their 1st B'day. Did u know, wid 1:40 carrier frequency, SMA is d #No.1 genetic cause of infant loss @FOGSIHQ @MoHFW_INDIA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

CureSMA India wishes everyone a very #HappyDussehra2021

May all d worries,fear n disease progression around #SpinalMuscularAtrophy in patients n parents lives burn along wid effigy of Ravna. V hope all #SMArtWarriors get access 2 life saving medicine #Evrysdi #BattleAgainstSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

@naqvimukhtar @Subhash44690696 Dear Sir, tks 4 yr response.
We request yr support 2 @curesmaindia. Pls help our voice reach Honorable Prime Minister @narendramodi Ji, Honorable Health Minister @mansukhmandviya Ji 2, help arrange access 2 lifesaving medicine #Evrysdi by @Roche #BattleAgainstSMA #Right2Health

[Alpana Sharma @alpanaS16]

Our sincere gratitude Honr’ble @navneetravirana 🙏🏻meetin wid @NileshS30146997 Patient @curesmaindia r waitin 4 lifesaving treatment #Risdiplam #ZolgenSMA #Spinraza , @OfficeOf_MM @narendramodi @DrBharatippawar, @PMOIndia #SMA patient r dyin please help us win #BattleAgainstSMA

[Alpana Sharma @alpanaS16]

Heartfelt gratitude to Honourable @yadravkar 🙏🏻🙏🏻 4 callin d Multi stakeholder meetin today & listenin 2 pleas of @curesmaindia patient #Risdiplam @Roche #Zolgensma @NovartisIndia can save-lives of our dyin children We r hopeful of postive outcome Help us win d #BattleAgainstSMA

[Alpana Sharma @alpanaS16]

We the parents & patients @curesmaindia are supremely grateful to @RandhirSawarka1 for d kindness and compassion shown towards @NileshS30146997 and our children suffering from #SpinalMuscularAtrophy We r hopeful 4 positive outcome of the Multi stakeholders meeting called today

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Dear Sir @pradyutbordoloi Ji, on behalf of ALL India #SpinalMuscularAtrophy community we thank u 4 listening 2 our #SMArtWarriors @Sarmisthaprita1 n Anushka Panda n ur Co-founder @PandaVashist n 4 yr efforts 2 understand abt #SMA. Heartfelt Gratitude Sir🙏. #BattleAgainstSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Tks so much @RahulGandhi Ji 4 listening abt #SpinalMuscularAtrophy frm ur Co-founder @Razeena1617. V reqst ur support in taking ur cause 2 d #Parliament n Honb'le @mansukhmandviya ji n Honb'le @narendramodi @PMOIndia n help ALL patients get life saving medicine #Evrysdi @Roche

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Dear Sir @MichaelLobo76 tks so much 4 meetin ur Goa incharge @RubyBorges4 #SpinalMuscularAtrophy patient waitin 4 #Risdiplam now approved in India n can save lives @DrPramodPSawant @mansukhmandviya @narendramodi @PMOIndia #SMA patient r dyin, help us win #BattleAgainstSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Heartfelt gratitude 2 @pradyutbordoloi Sir, h'ble MP frm Nagaon, Assam 4 visiting n supporting ur #SMArtWarrior n Assam co-ordinator @Sarmisthaprita1 n gifting her wid life saving eqpmt Oxygen Concentrator.V hope she gets access 2life saving medicine #Everysdi by @Roche asap🙏

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Heartfelt gratitude 2 Dr.Pradeep n team @KMCHcoimbatore 4 initiating 1st Multidisciplinary SMA Clinic in TamilNadu 2day. Million thanks 2 ALL d compassionate Doctors 4 supporting @curesmaindia n #SMA families 🙏.
@sunnewstamil @polimernews @news7tamil @ThanthiTV @News18TamilNadu

[Alpana Sharma @alpanaS16]

We @curesmaindia r thankful to @MichaelLobo76 for meetin @RubyBorges4 #SpinalMuscularAtrophy patient waitin 4 lifesavin drug #Risdiplam #ZolgenSMA #Spinraza can save lives @DrPramodPSawant @mansukhmandviya @narendramodi @PMOIndia #SMA patient r dyin, help us win #BattleAgainstSMA