sharon jameson

A proud northern lass living with me/cfs in nz .Lover of classics and politics. Retired primary teacher. Great debater. Opinion writer.

[Anil van der Zee © @AnilvanderZee]

I try not to think too much about it, but there's no denying that time keeps ticking. I'm 45 & it'll run out. 17 years imprisoned by ME. So many things I still want to do, but science is moving slowly. Will #severeME be my end or will I actually still fully live?
#MEawarenesshour

[Ricky Gervais @rickygervais]

Happy #InternationalCatDay ❤️
Cats are amazing and beautiful creatures. There are so many that are unwanted and in rescue centres now. Save one. And they might save you. #AlleyCats

[Lou Thornley @Lou_vs_ME]

It's really wrong that severe ME care is so hard to get in NZ

ME/CFS meets disability definitions - yet isn't classed as one for Whaikaha disability support services
- so not eligible

A small subset get some help via a health $ pathway - the most severe only get 3 hrs a day

[Carole Bruce @CaroleBruce17]

#MEAwarenessMonth

[Carole Bruce @CaroleBruce17]

Apparently it’s #SevereMEWeek
Rather than producing loads of content showing how ill we are, yet again, maybe this year the ME orgs could call out those responsible for our continued dismissal, gaslighting, and abuse. By name preferably. Maybe we could all do the same?

[Adam @ABrokenBattery]

"This is not rare. This is one of life's worst diseases."

Professor Chris Ponting speaking about harm from graded exercise therapy and hospital care, and how patients have been let down for decades because #MECFS was wrongly thought to be psychological. (Clip from 2024)

[Sara @sararas_24]

People with #MECFS or #LongCOVID, how have you learned to accept this illness?

How do you cope with the grief of losing your old life, the constant suffering, and the feeling that every day is just a repeat of the last?

I’m overwhelmed by a sadness I can’t even put into words.

[Adam @ABrokenBattery]

“I went down to 36 kg because I stopped being able to tolerate a whole range of foods.”

Wendy Matthews has lived with #MECFS for 28 years and has been bedbound for the last 7. She talks about her symptoms, how the illness has impacted her, and how #MECFS is not rare.

[ME Foggy Dog @MEFoggyDog]

M.E. is CRUEL.

Most doctors gaslight you, society calls you lazy, and friends vanish. You are trapped in a broken body while fighting a world that refuses to believe you suffer.

#ME #Health

[Adam @ABrokenBattery]

“You never know what the next day is going to be like. You don’t know if you’re going to be well. You don’t know if you’re going to be bed-bound.” Ashleigh Lovett talking about how ME affects her. #MECFS

[Lou Thornley @Lou_vs_ME]

Great that Paddy Gower has interviewed ME patient Elvira Edmonds 💙

As someone whose life is completely “on pause” because of ME, Edmonds says it is “ridiculous” it is not considered a disability in New Zealand

“It's one of the most disabling disabilities that there is”

[Billy Hanlon @bhanlon15]

Health Stuff (NZ): "‘I feel trapped’: 29-year-old Wellington woman hasn’t left upstairs bedroom for four months"

'A 29-year old woman from Wellington..Elvira Edmonds..has myalgic encephalomyelitis (ME)..'

“I feel trapped, like I am stuck in my own body"

https://t.co/aO5uYkbmSp

[Adam @ABrokenBattery]

“It’s ridiculous that ME isn’t considered a disability by our government. It’s one of the most disabling disabilities that there is.”

Elvira Edmonds, 29, has been confined to her upstairs bedroom in Wellington New Zealand for more than 4 months with severe ME. #MECFS

[Hoodlum 🇺🇸 @NotHoodlum]

Procol Harum’s Denmark performance of “A Whiter Shade of Pale” is regarded as one of the greatest live renditions of the song ever recorded. The band performed with a 72-piece orchestra and a 50- to 70-member choir. It has over 122 million views on YouTube.

[Carole Bruce @CaroleBruce17]

#ME affects approximately four times more women than men, with estimates indicating that women make up about 75-85% of those diagnosed with the condition.
The patriarchal abuse we suffer continues unabated. We have to be grateful for small crumbs of acknowledgment. It has to stop

[sharon jameson @sharon_jameson]

@32Sfc46582 @AnneliseBocquet Im so sorry . its very hard isnt it.. many of us in the same position sadly. hugs

[Lou Thornley @Lou_vs_ME]

Armageddon on the Kāpiti Coast tonight

[InfoGram @_InfoGram_]

This is MASSIVE by Italian PM Meloni 🔥

🇺🇸 Trump at 2:00 PM: "Meloni kept begging me for a pic. She’s tanking in Italy for blocking our jets. Now that we smoked Iran, she’s trying to buddy up for poll bumps. Not happening."

🇮🇹 Meloni at 2:05 PM🔥: "Trump, these attacks are dumb and I don’t care what you think.

I’m popular because I stand up for Italy. Get lost. And we follow the rules on U.S. bases — always have, always will while I’m PM 🔥🔥

Italy’s not your issue. Go deal with your own mess of a policy and war."

Iron lady of EUROPE 🔥💪👌

[Adam @ABrokenBattery]

“Only 10.8% of people with severe or very severe ME feel supported by the NHS.”

Baroness Walmsley, during a House of Lords debate also mentions a patient being offered a multivitamin and talking therapy despite being unable to tolerate sound.

[Adam @ABrokenBattery]

“ME can be invisible, it can be unpredictable, and it can be isolating. So we should do our best as public and professionals to support those people as much as we can.”

Dr Ranj on how to help people with ME/CFS

Clip from BBC Morning Live.