Got a minute to spare for rare? Please sign this petition: https://t.co/LPjolkLnwO wherein we are urging @CIRMnews not to stop funding for #rarediseases Please share it friends, researchers, scientists, doctors, everyone who you think #cares4rare
@NZ_WorldPvP you call your self a friendly country but reject visa of a special need child. That too after insisting for a medical inspection from a non specialist doctor designated by you who charge fees without seeing person, which seems to be money making thing.
https://t.co/9Gg4OE9M8s
Join me and my FutureNeuro colleagues to raise awareness and funds for CDKL5 Ireland
@Futureneuro_ie@RCSI_Irl @scienceirel @PhysiologyRCSI . Let's do it :)
Thank you, @illumina for letting us share our story & spread #CDKL5Awareness. Illumina's machines are used for genetic testing. Thanks to their advanced technology, @rarebasepbc is now focusing on CDKL5 treatment options. https://t.co/kBoDXIpTmC #EpilepsyAwarenessMonth
@KamathGurudutt Keto is a medical diet which has proved to work wonders for lots of diabetes patients and patients with uncontrollable epilepsy. Don’t write off things without knowing full facts about them.