Julie Johnson

Wife, mom of 4, sarcoma patient. Trying to keep my full & fabulous life going for as long as possible. I dream of the day we can say #solongsarcoma

[Julie Johnson @solongsarcoma]

@DrSarcoma There are no words to adequately describe the magnitude of this loss for his family, his patients, and the broader sarcoma community. I am so saddened to hear of his passing.

[Oncology Unscripted @OncUnscripted]

🚨 New episode! 🚨

Katie, Julie, and Matt subject each other to an "Ask Me Anything", burning questions for clinicians, patients, and their families ❤️

How cancer changes life, future of medicine, coping with death, and...

Online doc comedy 😂

We hope you enjoy!

[Julie Johnson @solongsarcoma]

This is such a great topic for discussion! Looking forward to hearing these physicians speak on such an important topic.

[Suzie Siegel @SuzieSiegel]

1. LMSDR will be holding a free 3-part webinar series on Making a Treatment Decision, from the perspective of 3 sarcoma specialists. First will be Dr. Kristen Ganjoo, a medical oncologist @StanfordMed, 3 pm EST April 13. https://t.co/hMmBhmglhi #leiomyosarcoma #sarcoma

[Julie Johnson @solongsarcoma]

@mikejwhelan @John_Dabell @CancerCanuck @MikeJMele @FCancerNow @heylandsberg @ThanksCancer Me, me, me! Great idea!

[Oncology Unscripted @OncUnscripted]

Back in 2024 😎

In our first episode of the year, @solongsarcoma, @kaydaustin, and @SprakerMDPhD start to discuss:

How should you pick your doctor?

It turns out that it's complicated 😀

Check out our latest episode below or wherever you get your podcasts!

[Julie Johnson @solongsarcoma]

@kaydaustin @Chrislabaki1 @ChHobeika @MAlchoueiry @BraunMDPhD @LisaHenske @DrChoueiri @PavlosMsaouel @OncHahn @MVossMD Looks like a poster session, my favorite place!

[Suzie Siegel @SuzieSiegel]

🧵This study suggests women who are diagnosed with uterine #leiomyosarcoma and a few lung metastases at the same time (stage 4) benefit from surgery to remove the primary tumor & the lung mets. #sarcoma #gyncsm

[Julie Johnson @solongsarcoma]

Sarcoma family, do not miss this one! It’s a must listen as we dive into some of the less discussed but more challenging aspects of immunotherapy.

[Oncology Unscripted @OncUnscripted]

Happy Thanksgiving! 🦃

Check out our 10th episode for your travels!

We are lucky to host our first guest, @breelynwilkyMD, for a chat on immunotherapy and #sarcoma!

Great conversation with a lot of immune info for all patients and oncology clinicians! Have a great holiday!

[The Accelerators Podcast ☢️ @AcceleratorsRO]

In the final installment of The Insider's Guide to Radiotherapy, @kaydaustin, @solongsarcoma, and @SprakerMDPhD discuss proton therapy.

They discuss differences and benefits compared to photon/x-ray therapy, clinical evidence, and controversy surrounding the therapy!

#RadOnc

[Julie Johnson @solongsarcoma]

Cancer is unpredictable. Oncology waiting rooms are not. Is there a hidden NCCN guideline that HGTV is the one TV station allowed? 🤪 @ThanksCancer

[Julie Johnson @solongsarcoma]

@rushmorealum @UPMCHillmanCC Very interesting- doesn’t sound like these were personalized and also, not sure anyone thinks that vaccines alone will be the ticket to clearing stage IV. They may have a place, but will need to be alongside other therapies in a well crafted sequence. IMO.

[Julie Johnson @solongsarcoma]

+ maid
+ counselor
+ referee
+ taxi driver

[Sean McBride @seanmmcbride]

If you have kids in your mid 30s, you will spend your 40s:
1)vacuuming
2) acting as a short order chef for patrons with palates about as sophisticated as goldfish
3) telling your sons (if you have them), to take their hands out of their pants. @blandro

[Julie Johnson @solongsarcoma]

@AlterCancerCare Agree, just wish there were real opportunities for patients to work with trained medical professionals to build a strategy that aligns with the patients risk tolerance AND to access the therapies in the strategy. Both of those are very difficult for the av patient to accomplish.

[Julie Johnson @solongsarcoma]

So much for me to learn in this area. Looking forward to digging in to all things open enrollment.
https://t.co/tcC8GJtZkA

[Julie Johnson @solongsarcoma]

@KristenMagician Yes! Congratulations!!

[Pashtoon Kasi MD, MS @pashtoonkasi]

What is the #CityOfHopeDrug?

A pill💊that can kill all #cancers.

I have been asked the "killer-pill" question several times this week. What is the hope or the hype?

Let’s learn together:
👇Here’s a tweetorial: @OncoAlert

Press release: August 1, 2023:
https://t.co/9ajG9oYgqM

[Julie Johnson @solongsarcoma]

@exosome 🤯

[Julie Johnson @solongsarcoma]

@SprakerMDPhD @ACRORadOnc @ParikhSimul Definitely tuning in to this!!

[Julie Johnson @solongsarcoma]

@kaydaustin The library 🤷🏻‍♀️