Allison

Mum to Hannah #CysticFibrosis
Loves #Music #gigs #Photography

[Allison @AllisonKiln]

JOYCE’S LAW, STRONGER SAFEGUARDING AND CARE STANDARDS FOR THE ELDERLY AND VULNERABLE ADULT https://t.co/2pW0hy4UsZ via @UKChange

[Allison @AllisonKiln]

Win up to £200 Wallet Credit!
Please accept my invitation so that I can earn up to £200 Wallet Credit!
https://t.co/GSl0W8jvdJ

[Allison @AllisonKiln]

@royalblooduk Amazing set!

[Allison @AllisonKiln]

I'm absolutely disgusted my daughters accessible tickets were classed as "queue jumpers" @KOKOLondon @takethat I wish no one a double lung lung transplant to "queue jump*!!!!

[Allison @AllisonKiln]

I don't think I've been to a @takethat gig like it! What an atmosphere @KOKOLondon Proud TT fan

[Allison @AllisonKiln]

How does @portsmouthtoday manage in a small cul-de-sac to empty 1 bin, lose 1 and miss 2 while eating an ice cream!!!

[#UK CF campaigner Sharon @CFno1LeftBehind]

.@MattHancock I need you to fight for #TrikaftaNow as my beautiful daughter is very ill

She can’t access her usual #cysticfibrosis care at @KingsCollegeNHS due to #covid19 so 🙏🏻@EMA_News get this @VertexPharma drug licensed NOW @cftrust @blakeydark @pmrleahy $vrtx @ChrisMRiches

[Visa UK @VisaUK]

How to check the site you’re on is safe and secure. How You Pay Matters.
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[Department of Health and Social Care @DHSCgovuk]

Some people with serious underlying health conditions face the highest risk of being hospitalised by #coronavirus.

We are now urging those people to STAY at home.

More information: https://t.co/1iIIja2lVp

Here's the list of people most at risk [Tap to expand ⤵️]

[University Hospital Southampton 💙 @UHSFT]

Please visit our website for information regarding a confirmed case of coronavirus (COVID-19) in Southampton.

https://t.co/CEdrEU0tXO

[Millie Salkeld @millie_salkeld]

Six-year-old Ivy Weir from Portchester taking her first Orkambi tablets ☺️ Read all about the fight Mum Gemma has had to get the life-changing ‘magic pills’ at https://t.co/xw2IbY7KZ5 later today @fight4orkambi @MattHancock

[Chris Riches @ChrisMRiches]

Daily Express launches Christmas campaign to save lives of cystic fibrosis sufferers https://t.co/HplJqidmRG

[Allison @AllisonKiln]

@CFisNoParty53 @strawfie @SW12welve @cftrust @VertexPharma @nhsCFwarriormum The next step is to ask for "individual case application" x

[Allison @AllisonKiln]

@CFisNoParty53 @strawfie @SW12welve @cftrust @VertexPharma @nhsCFwarriormum This is pretty much what Hans Drs told us. Only 1 person on it for DDF508 and this was their situation :,(

[Allison @AllisonKiln]

@StephenMorganMP @cftrust @PompeyLabour @SELabour @OrkambiNow @fight4orkambi @strawfie @JonAshworth @PortsmthNewsHub And now we need #Trikafta

[Stephen Morgan MP @StephenMorganMP]

So pleased orkambi is finally going to be on the NHS. People power finally won the day. Getting emails like this from Portsmouth constituents makes the tireless campaigning with @cftrust well worth it #orkambinow

[Cystic Fibrosis Trust @cftrust]

Today @VertexPharma announced their application to the EMA for Trikafta. Read more about what this means here: https://t.co/B1Z5XCxAwo

[#UK CF campaigner Sharon @CFno1LeftBehind]

/@cftrust @ChrisMRiches @Daily_Express @NHSEngland @NHSEnglandNMD @blakeydark @NICEComms @boysenmh @CommonsHealth We are not accepting any wait.

#TrikaftaNext needs an immediate interim deal from Day, One End of 👊🏻👊🏻@MattHancock

@richardm56 please continue to help us Thanks

[#UK CF campaigner Sharon @CFno1LeftBehind]

-@MattHancock in today’s @Daily_Express you revel in joy with #CysticFibrosis community

I’m concerned at your words re #TrikaftaNext This game changer @VertexPharma drug needs an immediate @NHSEngland deal when EMA licenced
NOT “should” be “earlier” Pls?
https://t.co/mR8KqJWvzm

[#UK CF campaigner Sharon @CFno1LeftBehind]

/Thanks @VertexPharma for these #LifeSavingDrugs4CF that will hopefully one day save my daughters life, if the UK can do a deal to #SaveCFlives

Pls @MattHancock @NHSEngland @blakeydark @NHSEnglandNMD We need these drugs too Don’t leave us behind #TrikaftaNow is the game changer