Queer Fluidity

28, Life with stigmatized diagnosis’. ✨ Greyhound mum, plant parent.( they / them )

[Queer Fluidity @AmeliaTang4]

Please share!!
Liv is an incredible human being who has supported me through some really difficult times, and she is now declining neurologically. The longer this urgent surgery is delayed, the worse she gets.

Please share/donate if you can.

[hi i’m liv 🌻 she/they @livtalkstoomuch]

Our fundraising has been at a standstill lately. I have very little support and help throughout this, so I need all the help I can get from everywhere I can get it. Please share and consider donating! #craniocervicalinstability #EDS ⁦#zebrastrong https://t.co/NMU4f11Q6O

[♡˚✧⁎ ⚢ Tooth ⚢ ⁺˳༚☆ @toothasinteeth]

I am a teaching assistant at @mica. Today @ngadc decided mid-field trip to stop accommodating my disability and had their security escort me out of the building. Removing me from the museum —and from my students— was a clear violation of the Americans with Disabilities Act.

🧵

[Queer Fluidity @AmeliaTang4]

@trianabutler Good luck!!!

[Queer Fluidity @AmeliaTang4]

#qanda How is the NDIS preparing for the mass disabling event that has been the pandemic for those with Long Covid(50% of those with it meet criteria for ME/CFS)?

[Emerge Australia @EmergeAus]

Many people living with ME/CFS experience severe disability. 25% are housebound or bedbound. And yet it is very difficult for them to access the NDIS. This must be addressed. #QandA

[Queer Fluidity @AmeliaTang4]

#QandA Please answer @EmergeAus question: What is the government going to do to to ensure that access to the NDIS is equitable and people with ME/CFS are no longer ignored?

[Emerge Australia @EmergeAus]

Help us get ME/CFS on ABC's Q+A tonight!

Use the #QandA hashtag and share your experiences and difficulties in accessing the NDIS and living with ME/CFS!

#EmergeAustralia #MECFS #askQandA #abc #NDIS #equity #government #invisibleillness #disability #disabilitysupport

[Queer Fluidity @AmeliaTang4]

#QandA Please answer @EmergeAus question: What is the government going to do to to ensure that access to the NDIS is equitable and people with ME/CFS are no longer ignored?

[Emerge Australia @EmergeAus]

Help us get ME/CFS on ABC's Q+A on Monday.

Use the #QandA hashtag and share your experiences and difficulties in accessing the NDIS and living with ME/CFS!

#EmergeAustralia #MECFS #askQandA #abc #NDIS #equity #government #invisibleillness #disability #disabilitysupport

[Queer Fluidity @AmeliaTang4]

@trianabutler Disgusting gendered language on their part. What airline? I’ll complain for you.

[Queer Fluidity @AmeliaTang4]

@maosbot I know a mother who owns a fb group full of other mothers of very ill children. She tells them medications are the root of their child’s problems, I fear one day a child will get very sick or die bc they’re believing the Infograph’s she posts.

[Queer Fluidity @AmeliaTang4]

@CaneInPink I’m so sorry Rachel, the hoops they make people jump through are ridiculous.

[MB @Mjbt223]

The word “fatigue” or being fatigued, whatever you wanna call it when describing #LongCovid symptoms does not do justice to how people really feel on a daily basis. The level of consistent exhaustion is unimaginable to an able bodied person.

[@richardvallee.bsky.social @richardvallee]

It's completely baffling that after 2.5 years, medicine is still unable to see that a main issue with #LongCovid (and #MEcfs) is exertion intolerance.

Not exercise, *exertion*, even minimal, and how it relates to post-exertional malaise (PEM), which it also cannot see yet.

[Queer Fluidity @AmeliaTang4]

I went through this at 26 too actually. I would have had to be moved to a higher care facility if the NDIS didn’t find me the right supports. My therapists wrote in my reports. 😔

[Queer Fluidity @AmeliaTang4]

Life with #MyalgicEncephalomyelitis that gives you life threatening symptoms. Sometimes on a regular basis. Losing all energy to open my mouth or swallow or move has been a great source of trauma for me the past few years. I was not believed by Drs, but now luckily have a G tube.

[NotRecovered @Not_Recovered]

„#ME has changed my entire life in so many ways. Everything I do has to be calculated. From brushing my teeth, to being on my phone, to maintaining hygiene. Bacause if I overdo it by even a little, I wake up the next day with life I can no longer eat,drink…“ -@AmeliaTang4

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[NotRecovered @Not_Recovered]

„#ME has changed my entire life in so many ways. Everything I do has to be calculated. From brushing my teeth, to being on my phone, to maintaining hygiene. Bacause if I overdo it by even a little, I wake up the next day with life I can no longer eat,drink…“ -@AmeliaTang4

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[Queer Fluidity @AmeliaTang4]

@CaneInPink No :/ Blergh ableism😒

[Queer Fluidity @AmeliaTang4]

@JanetDafoe @sibylle_berlin Oh wow, Whitney has a G tube? I thought he had a J tube for some reason. I have a G tube due to my ME too.

[Queer Fluidity @AmeliaTang4]

@EstherAnkh Oh wow, this is completely and totally the most accurate description of PEM ever!!!