Arya Fights SMA

Official Fundraising Support Community for Arya's fight against Spinal Muscular Atrophy! Every donation counts. Please click below to contribute.

[Arya Fights SMA @AryaFightsSMA]

@SonuSood Thank u so much Sir for holding Arya's hand in this battle of SMA.
If everyone donate a little we all can save her life. Will u join us ?

Please donate and support 🙏
https://t.co/5Z4P5cYwJY

GPAY- 9424399551 (Rishi Pathak)

#SonuSood
@SoodFoundation
@FcSonuSood

[Arya Fights SMA @AryaFightsSMA]

@UAEmediaoffice I request the government to please continue online learning as it will be putting kids at risk if the attacks start again after 21st April. Also for kids with special needs it ll become overwhelming

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Gautami, an #SMA warrior from Kerala, shares her gratitude as @iprdkerala extends SMA medicine support for up to 25 years. A huge moment of hope for families fighting SMA!

Thank you @pinarayivijayan
@VeenaGeorge03
Officials of @Arogyakeralam
@drrahulur ���
#RareDisease #Kerala

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Heartfelt Gratitude 2 d Govt of Kerala! 🙏
@curesmaindia expresses its deepest thks 2CM @pinarayivijayan FM @knbalagopalcpim &HM @VeenaGeorge03 4 d historic allocation of ₹30 Crore 4 Spinal Muscular Atrophy treatment #KeralaGovernment #SMAAwareness #HistoricBudget" @FinMinIndia

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

On behalf of every child n adult living wid SMA, v express our heartfelt gratitude 2 d Hon’ble Chief Justice of India, Hon’ble Justice Surya Kant n Hon’ble Justice Joymalya Bagchi n delivering an order dat upholds d dignity, rights n respect 4 persons wid SMA n other PwDs.

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Heartfelt thanks to @ficci_india @NITIAayog & @CDSCO_INDIA_INF
for including Ms Alpana Sharma, Co-Founder of Cure SMA Foundation of India. Grateful for the opportunity to share patient voices & work towards a better future for SMA families 🙏 #SMAIndia #PatientCentricity

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Meet Deeksha, 15 & full of dreams! 🌟 Pilot? Too risky. Doctor? Too many years! Soldier? Too dangerous. Model? Too many veggies! 😅 SMA hasn't stopped her from dreaming big. Let's amplify voices like hers this #SMAAwarenessMonth! 💜 #LifeWithSMA #SMAWarrior #DreamBig

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Heartfelt thanks to @iprdkerala for pioneering SMA treatment in India! A pre-symptomatic baby received #Risdiplam medicine at just 2 weeks old, marking a historic milestone.Kudos to @KeralaHealth for their unwavering support to patients with SMA! #SMAawareness #KeralaHealthcare

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Gratitude to @iprdkerala for aiding 23 more children with #SMA (6-12 yrs) access Risdiplam! Deeply appreciate the initiatives including SMA clinic & skill development. KARE initiative is a true blessing. Heartfelt thanks to @CMOKerala and @VeenaGeorge03 #RareDisease #Gratitude

[Alpana Sharma @alpanaS16]

Heartfelt gratitude 2 anonymous donar @vinodkumarmenon & @mid_day 4 coverin d plight of SMA patient We @curesmaindia r requestin 4 Govt support @CMOMaharashtra @Devendra_Office @Dev_Fadnavis @mieknathshinde @DrSEShinde please helpus save Akriti’s life 🙏🏻 https://t.co/HcpVZpFRtm

[Arya Fights SMA @AryaFightsSMA]

Running on a ♿ for a wish
@UAEMakeawish
@OfficialADCB
@ZayedSportsCity
@GulfMulti
@AlAinWaterME

#sports #abudhabi #makeawish #wishes #Run_for_wish #aryafightssma

[Arya Fights SMA @AryaFightsSMA]

Running on a ♿ for a wish
@UAEMakeawish
@OfficialADCB
@ZayedSportsCity
@GulfMulti
@AlAinWaterME

#sports #abudhabi #makeawish #wishes #Run_for_wish #aryafightssma

[Make-A-Wish UAE @UAEMakeawish]

نجاح مُبهر للنسخة الخامسة من سباق "أمنية" الخيري "الركض لتحقيق الأمنيات"

https://t.co/YflohhXBMQ

@OfficialADCB
@ZayedSportsCity
@GulfMulti
@AlAinWaterME

#sports #abudhabi #makeawish #wishes #Run_for_wish

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Thank you @News24 for being the voice for our cause #BattleAgainstSMA 🙏
Dear @PMOIndia @nsitharaman
@AyushmanNHA
@MoHFW_INDIA requesting you to wave off GST from #Evrysdi, DCGI approved drug for patients of all ages. #Zolgensma #Evrysdi can save lives!
https://t.co/1wGVKN12ew

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Our sincere thanks to the Govt. of Kerala @KeralaHealth @VeenaGeorge03 for this assistance for our #SMA affected warriors to correct the scoliosis at TVM MCH, one of the best hospitals 🙏 This surgery improves the quality of life & functionality of #SMAwarriors ! #gratitude

[Alpana Sharma @alpanaS16]

@Milan_reports @IndiaToday We @curesmaindia lost more than30 lives in last 6 months while waitin for d Govt support, there is a lifesaving medical available in our country but not accessible #Risdiplam can save lives. we d helpless parent hav to watch our children slowly wastin away in front of our eye

[Alpana Sharma @alpanaS16]

@ChivateMangesh we d parent & patient of @curesmaindia request with folded hand to save our dyin Children suffering from #SpinalMuscularAtrophy Please help us in getting appointment - a listenin ear frm our Honourable @CMOMaharashtra @mieknathshinde

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#NovartisSupportCureSMAIndia
Heartfelt gratitude 2 @DubeAmitabh @saumil_mody @iyervaishali @aditiroybasu @NovartisIndia 4 meeting 2day with @curesmaindia @alpanaS16 2 understand patient's journey in #BattleAgainstSMA. Looking frd 2 working 2gether 4 Indian SMA community 🙏

[Lubna Mohammad Ali Momin @LubnaMohammadA1]

@curesmaindia @pmbjppmbi @PMOIndia @AyushmanNHA @moayush @MoHFW_INDIA @mansukhmandviya @WHO @adgpi @AkashvaniAIR @HMOIndia 🙏🙏

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAawarenessMonth
#IndependenceDay
Day 15: Today's #factsheet is on SMA Quick facts & Frequently Asked Questions. The intention is to give maximum information related with SMA on a single sheet.
#BattleAgainstSMA
#IndependenceFromSMA
#SMAckSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMAAwarenessMonth
#IndependenceDay
Today, we are sharing one of the most inspirational videos-our #SMArtWarrior Muhammed Shahinsha (Shamon)'s art work in school. The child with very severe scoliosis and contractures is not able to sit and do the work, so he does it, lying down!