Esther Valentine

CF mummy, Management consultant, Physiotherapy experience, #ukneedsorkambi

[Esther Valentine @Est_Valentine]

Loving the army band @rahchristmas gave us a joyful jolt (from Joshua aged 8)

[Ali Dillon 💙 NHS @Alidilly]

Pls don’t delay our under 12’s need #Kaftrio now we know of many young children who are really struggling and #Omicron could be too much for their little bodies to take. @MHRAgovuk this needs chasing.

[Christina Walker 💙 @Guatemalagirl]

#CFcantwait Please read this: https://t.co/3IKwUUxkmp

Luis is with you Janco x @TanyaKoorts
#globalcfdrugs4all #globalcffamily #vertexsaveus #trikafta4all #StandWithJanco #cysticfibrosis #cfawarenessmonth #CFWarrior #CFAware #SouthAfrica @drtlaleng @UNHumanRights #Health

[Canadian Cystic Fibrosis Treatment Society @CFAdvocacynow]

Walk the talk @JustinTrudeau. #Cysticfibrosis patients in Canada die because they can't get access to life-saving medicines now available in more than 20 countries. Tell @PattyHajdu & the @PMPRB_CEPMB to make #Trikafta an urgent priority. #CFcantwait #cdnpoli #CDNhealth

[Ali Dillon 💙 NHS @Alidilly]

Here’s your countdown Thank you tweet @MattHancock @blakeydark you promised us you wouldn’t hang around with #Kaftrio, you knew it was the Gamechanger, and you were true to your words. Thank you.

[Ali Dillon 💙 NHS @Alidilly]

This mornings countdown tweet is not only a thank you to you @blakeydark @MattHancock it’s to @VertexPharma without whom this countdown wouldn’t be happening! It’s reassuring know their work goes on for the 10% who can’t benefit.

[#UK CF campaigner Sharon @CFno1LeftBehind]

@Daily_Express ThankYou
@ChrisMRiches helping the #cysticfibrosis crusade for CF

.@MattHancock Let’s get the job done ✅

My daughter is literally hanging on edge of life

Give her a future😢

#KaftrioNow #kaftrio
Please RT🙏🏻

@blakeydark @cftrust @VertexPharma @NHSuk

[Esther Valentine @Est_Valentine]

@CFisNoParty53 Delighted for you all Lorraine. Great to see Joe looking so healthy now. 💓

[Gina Miller @thatginamiller]

BBC presenter Clive Myrie hit with racist death threats amid slew of hate mail https://t.co/PwpzKju2Y6
It is a minority who feel they can spread the poison of hate & racism, but the majority must
speak out against it and for each other to be the antidote
@CliveMyrieBBC

[Chris Newman @chrisnewman2407]

Joe @thebodycoach, thank you so much for helping to keep children with #CF who are #shielding healthy with your #PEWithJoe as exercise is very important for CF people. Can you please dress up in YELLOW for #cysticfibrosis on 19th June? It will be #wearyellowday @pmcfni @cftrust

[Strawfie Challenge @strawfie]

Hey @hollywills - Loved this yellow dress - Any chance you can wear it again on Friday 19th June for the @cftrust #WearYellowDay? CF families are vulnerable and shielding at home during the #COVID19 pandemic. Your support would be a huge boost. See: https://t.co/KNNMRzYVYj

[my CF Hero 💙 @myCFHero]

@CFisNoParty53 Let’s move forward, & give patients urgent access now. Benefit from the uplift in @NICEComms review can take place retrospectively- but don’t make the patients suffer any longer. We have the technology- let’s have some humanity. #Trikafta4CF $vtrx -#LetThemLive #cysticfibrosis

[Leshie Chandrapala @LeshieLoves]

My Dad came into contact with Covid-19 positive public whilst he drove his bus without the correct PPE. He is now dead.

Yesterday, @Jacob_Rees_Mogg put our MPs in a similar position.

He must resign.

[Caroline Lucas @CarolineLucas]

PM really did just say “I’m proud of our record” on #Covid19

Would that be the record of having highest excess deaths in Europe?

Or being worst hit in Europe for percentage increase in deaths?

With test & trace still not fully up & running, this beggars belief #PMQs

[my CF Hero 💙 @myCFHero]

.@MattHancock -take a look at how well Joe is doing with compassionate access to life saving medicine #Trikafta4CF. Please remember those with #cysticfibrosis (living with #Covid19 like restrictions 24/7) & #prevent their decline. UK needs urgent managed access deal for 2020.

[Scientists for EU @Scientists4EU]

You are not “following the science” if the UK Statistics Authority has to write to you and tell you that you are badly misrepresenting covid-19 testing data.

A very good letter to @MattHancock.

https://t.co/EWkEIuU8ut

[#UK CF campaigner Sharon @CFno1LeftBehind]

#Lexi the puppy we got for @jess_cranfield when she was on o2 in 2016 & needed orkambi

On o2 again & needs #TrikaftaNow
at @KingsCollegeNHS for her #cysticfibrosis

Lexi wanted to sneak into her suitcase
Lexi will miss you😢

#COVID19 $vrtx

@VertexPharma @cftrust @ChrisMRiches

[David Turner (gs65 on B S k y) @GreatStrides65]

People with cystic fibrosis are going to need every possible bit of help to get through the #Coronavirus epidemic.
@VertexPharma: please make #Trikafta available today to all who would benefit, worldwide

[#UK CF campaigner Sharon @CFno1LeftBehind]

.@MattHancock Great to see @VertexPharma @NICEComms @cftrust @NHSEngland working together

To #SaveCFlives it’s IMPERATIVE an immediate access
#TrikaftaNext deal is done as soon as @EMA_News licensed

NO DELAY⚠️

USE THIS TIME NOW to keep talking & get this deal
@ChrisMRiches