IBD Strong

#YouAreNotAlone #DontLetItDefineYou |#TeensSupportingKidsTeens| FamilyBased| #PeerIBDSupport |⬆️ Hope,Confidence & Optimism | Building a Community of Resilience

[IBD Strong @IBD__Strong]

@TeamTrellus @drlauriekeefer Thank you for all of your support @TrellusHealth 🫶💪👊

[IBD Strong @IBD__Strong]

@bwdphotocanada Congratulations my man! The kilts are 🔥

[IBD Strong @IBD__Strong]

@Empoweringpts9 @MondayNightIBD @DCharabaty 😂 added that in outta respect for my dad- he’s an oral surgeon.But not gonna lie,that’s a very strong”maybe”
Hospital lighting can be a real source of anxiety & ptsd for me. Love that u tried the lights- galaxy projectors expand the horizon of a greater universe & purpose-try it

[IBD Strong @IBD__Strong]

@Empoweringpts9 @MondayNightIBD @DCharabaty u know it 😅👊 #MondayNightIBD be getting real tho

[IBD Strong @IBD__Strong]

@Empoweringpts9 @MondayNightIBD @DCharabaty Oh. . . and a diffuser

[IBD Strong @IBD__Strong]

@Empoweringpts9 @MondayNightIBD @DCharabaty •Headphones
•Music Playlists
•LED strip lights or sunset lamp, to set the mood
•galaxy projector
•Bedding
•Charger
•Posters of photos living it up with my family and friends so I don’t forget about the highs
•Positive attitude
•Maybe my toothbrush

[IBD Strong @IBD__Strong]

@bottomlineibd @djvdkvk And no implication that others should be inspired to be lead off their meds void of such intricate process. So happy to hear you are well and of your grand results. Srry about the non IBD hard knocks-aside from hormones & foods, believe stress to be associated w mouth sores too?

[IBD Strong @IBD__Strong]

@bottomlineibd @djvdkvk So eloquently written. Love your raw & candid sharing, always. And, the fuller understanding of your story. Incidentally, from our perspective, your announcement came with great resoonsibilty & clarity as regards the level of thought & collaboration it included with your team

[IBD Strong @IBD__Strong]

@IBDSuperHeroes https://t.co/EnIXyPsJNE

[IBD Strong @IBD__Strong]

@srmbeauroy Good wishes and positive energy your way as you recover!! 🙏👊

[IBD Strong @IBD__Strong]

@jmmh123 😅😂

[IBD Strong @IBD__Strong]

@Flaviostein We’re ready! Join us as our V’IBD Teens share their courageous IBD Journeys & Stories, spread awareness, celebrate resilience & emote the confidence they have found in working at not letting their disease define them! -utilizing creative modes of self expression through music 🎶

[IBD Strong @IBD__Strong]

@aboutIBD Hiya! Been emailing you since February 🤪 kindly check your inbox. Thx

[IBD Strong @IBD__Strong]

@PJWestlake @DCharabaty @MondayNightIBD @Empoweringpts9 @bottomlineibd @ownyourcrohns @mustbthemusic @ChronicallyJess @CrohnieBologna @aboutIBD @rebelliousgut @LoriPlung @srmbeauroy Last but not least, in our family it’s never the caregiver’s sole approval void of the child’s voice that is the “condition”. Our child is encouraged to be involved & empowered to partake in the discussions w/ his provider/team & decisions per treatment of his disease & his body

[IBD Strong @IBD__Strong]

@PJWestlake @DCharabaty @MondayNightIBD @Empoweringpts9 @bottomlineibd @ownyourcrohns @mustbthemusic @ChronicallyJess @CrohnieBologna @aboutIBD @rebelliousgut @LoriPlung @srmbeauroy Well noted & understood. Which is partially why specified hesitation as opposed to absolute. I suppose another factor would be ‘desperation’ at time of decision. As in, how many treatment options have been exhausted & how many remain w/ comparison of applicable scientific data

[IBD Strong @IBD__Strong]

@DCharabaty @MondayNightIBD @Empoweringpts9 @bottomlineibd @ownyourcrohns @mustbthemusic @ChronicallyJess @CrohnieBologna @aboutIBD @rebelliousgut @LoriPlung @srmbeauroy Distinguishing btwn caregiver of child or adult is a factor. As spouse of adult w/Crohn’s who is 50+ yrs old may go with new, as mom of young child w/ same diagnosis and current treatment plan would be more hesitant to try new combo per unknown effects of long term exposures

[IBD Strong @IBD__Strong]

@bottomlineibd So incredibly happy for you!! Thanks for keeping us updated!! Rooting for you always!!

[IBD Strong @IBD__Strong]

@CChaump Congrats!! So incredibly happy for you!! 🙌👏👊

[IBD Strong @IBD__Strong]

@bottomlineibd WOOOOOHOOOOOO!!! Soooo Happy to hear!! Cheering for you!!

[IBD Strong @IBD__Strong]

@AmyLightnerMD @ClevelandClinic @CleClinicMD @HolubarStefan @drtracyhull @JeremyLipman @MRegueiroMD Thank you! Especially excited about the “pediatric Crohn’s disease fístulas as well!” #hope