Magic Bullet

[Magic Bullet @KirstyMagic]

@AskWithings Trying to speak to someone about a refund. Automated emails are not delivered, online chat ignored, I’ve DM’d but that’s apparently now in a customer service queue .. can a person please get in touch!

[Magic Bullet @KirstyMagic]

Thank you to @cftrust for this great article showcasing the place for apps in CF health management.

As a mum of a person with CF and founder of Breathe RM, it’s always an honor to see the the positive impact of the Breathe RM app on individuals with CF.

#breatherm #Cf

[Cystic Fibrosis Trust @cftrust]

For this week’s #researchwednesday post, we highlight how researchers are working with members of the CF community to use phone apps to help them learn more about CF and improve their health.

Read the article on our website to find out more:
https://t.co/OYZmsg5tr6

[Strawfie Challenge @strawfie]

The 'Free prescriptions for all #cysticfibrosis patients' petition is being delivered on Sat 9 Sept

Please get in touch with your MP & ask them to support the call for free prescriptions for CF adults in England - together we can make change happen.
@BenOxlade1 @cftrust

[Magic Bullet @KirstyMagic]

Such a privilege to work on this amazing project

[ISRCTN: the UK's Clinical Study Registry @ISRCTN]

Detection of respiratory exacerbations in adults with #CysticFibrosis using #ArtificialIntelligence

Read about the new study by @lifearc1 @NIHRresearch @RoyalPapRes @cftrust @kirstymagic @HLRI_Cambridge @LucyGale333 @RoyalPapworth

https://t.co/HHe5Y67wVm

[Nick Smith @ZanzibarSmith]

https://t.co/jDNpyrdVJU

Thank you @ChrisMRiches for sharing our story! With over 15,000 signatures and over £4,500 raised for the CF Trust, we WILL make a difference. The petition closes tomorrow! Keep signing and sharing. 🙏💛

@Daily_Express @cftrust @strawfie

[Strawfie Challenge @strawfie]

Please share on Facebook, Twitter, linkedin, Instagram - Let's take this opportunity to make change happen

PETITION:
https://t.co/YfoBOTdebZ. #cysticfibrosis

[Accelerated Access Collaborative @AACinnovation]

#InnovationsInHealthcare 💡 #Respiratory
#ProjectBreathe (@RoyalPapworth) uses #AI to remotely monitor #CysticFibrosispatients' vital signs including weight, lung function and oxygen saturation through an app. This is empowering patients to manage their own health

[Strawfie Challenge @strawfie]

Please sign petition, print out poster and display in hospitals.

Ask everyone to sign the PETITION:
⬇️⬇️⬇️
https://t.co/YfoBOTdebZ

Free prescriptions for all cystic fibrosis (CF) patients

#cysticfibrosis #breathe #health #weekend #patients #family #lungs #cfawareness #cfaware

[Alan Smyth @AlanRSmyth]

We are keen for people with CF to help us test CF Tummy Tracker - an app to record tummy symptoms. Could you do this for 14 days? If so, check out the app! https://t.co/2Wm4OttM4e

[Cystic Fibrosis Trust @cftrust]

Today we are thrilled to announce the top 10 refreshed priorities for cystic fibrosis research.

Chosen by the CF community in a project that began in January this year, these results will help set the direction for future CF research.

➡️ https://t.co/CiDX0uMjzK

[Royal Papworth Hospital NHS FT 💙 @RoyalPapworth]

Researchers at Royal Papworth Hospital have been awarded £3.4m from @lifearc1 & @NIHRresearch to fund new UK-wide trials investigating if machine-learning technology can transform how people living with chronic respiratory conditions manage their health.

https://t.co/xUW0T9yR7U

[Cystic Fibrosis Trust @cftrust]

Today a £3.4 million investment in a machine learning clinical trial in CF at Royal Papworth Hospital was announced. Funded by NIHR and the medical charity LifeArc, it builds on previous advances through research funded by the Trust.

📰 https://t.co/QEfPOyffI7

#clinicaltrials

[Floto Group @flotocambridge]

Opportunity to join the Floto lab as a postdoc to develop and apply machine learning methods to predict acute pulmonary exacerbations in cystic fibrosis led by @johnmwinn and @AndresFloto. Place to grow in a multi-disciplinary and diverse environment.
https://t.co/yl6FzLcP8f

[Magic Bullet @KirstyMagic]

@_nataliejohanna Mines nearly 18, so I’m just about still here :)

[Magic Bullet @KirstyMagic]

We are preparing for the next major piece of development on Breathe RM app and would love the wider community to be involved in shaping its future. If you're interested in helping with feedback/future evaluation, please get in touch: [email protected]. #cf #projectbreathe

[Cystic Fibrosis Trust @cftrust]

The Principal Investigators of the CF project within the NIHR BioResource Rare Diseases study are excited about the difference the research could make for the CF community, and attracting CF research studies into the UK.
#Future4CF
https://t.co/THky7o1Nd3

[Magic Bullet @KirstyMagic]

@cftrust I have not been able to access this for my 17 year old son with CF who has a positive PCR. I’ve tried 111 and 119. Clinic suggest enrolling on PANORAMIC, but that’s 18+. Any help appreciated.

[BBC Wales News @BBCWalesNews]

Cystic fibrosis won't stop six-year-old golf champion Fraizer https://t.co/BQXjDO0PMk

[Magic Bullet @KirstyMagic]

Emotional & inspirational #decisivedecade

[The Earthshot Prize @EarthshotPrize]

"Our Finalists all give us hope which, we are told, springs eternal. But we don’t have eternity. We need to do this now. And over the next ten years, if we all put our minds to it, I believe we can."

— #EarthshotPrize Council Member Sir David Attenborough

[Magic Bullet @KirstyMagic]

@thevftos “Self care is being self aware” I love that sentiment, it’s so simple & so true