Kyle Blake

ALS Warrior dx Bulbar Feb 2018. Husband and father of three great kids. Texas Aggie!

[Shah Minokadeh, M.D. @MinoShah]

.@alsassociation @Lance4good @TinaZeff @StuartObermann @pjochlan @judy8pratt
@ALSPublicPolicy

[Susie Harris @sabg3769]

@BernieSanders can you help with the FDA AND TREATMENT FOR PATIENTS WITH ALS they need to fast track NUROWN TO SAVE LIVES PLEASE I AM BEGGING

[Greg Bauer @GJBest1982]

@prattprattpratt Star Lord, we need your help here on Earth. The worst disease imaginable is killing one of us every 90 minutes. Please retweet and spread #ALS awareness; there are life-saving treatments being withheld by the FDA. #CuATSM #NurOwn #tRegs Please help! #ALSplea

[TheRealCathyS @CathyStandish]

Why do tone deaf hashtags hurt?

Adding up the years since my husbands’s #ALS diagnosis and passing ...he hasn’t #voicedhislove in 5 years.

I will never hear him again.

But my ❤️ hears him. Always.

#ChallengeMe #MondayMood #EndALS #nowhiteflags #Iwontbackdown #whyIfight ✌🏻

[Farmstrong @farmstronginfo]

And another big thanks to @RepMaloney for joining the #ALSCaucus. Together we can save my cheese. #ALS #kickals @iamalsorg #iamals #farmstrong

[Suzanne Beers @SuzanneBeers2]

@FDACOMMISSIONER @als_now @realDonaldTrump @SecAzar The drugs available to ALS sufferers do not extend life by much. They have side effects that deplete lung function. None restore the quality of life. We need to increase our options we all want to live life again.

[Shah Minokadeh, M.D. @MinoShah]

@alsassociation @alsassociation supplies some equipment to help us while we die, but the majority are from a loan closet full of equipment from deceased ALS patients.

It ignores treatments like #NurOwn to save our lives.

Whose interests do you serve?

@Lance4good @TinaZeff @StuartObermann

[Kyle Blake @KyleB_91]

@YaChristle @ArrestALSNow So sorry to hear this.

[No More Excuses ALS Watchdogs! @als_now]

Nurown's Phase 2 results were MORE than "promising", Neil. Did ALSA fund P3? Nope. Instead, it paid for scholoships, raised "Compensation exp." by $500k, asked for WILLS, and gave $2,000 scooters to board members. We can do WAY better. #ENDALSA #ENDALS #ALS #nurown @CoreyPolen

[Nancy Homan @NancyHoman5]

Politics at its worse! @realDonaldTrump @VP @SecAzar @POTUS @FLOTUS @iamalsorg

[Shah Minokadeh, M.D. @MinoShah]

@alsassociation @alsassociation supplies some equipment to help us while we die, but the majority are from a loan closet full of equipment from deceased ALS patients.

It ignores treatments like #NurOwn to save our lives.

Whose interests do you serve @alsassociation?

@Lance4good @TinaZeff

[Kyle Blake @KyleB_91]

I hope you enjoy your Labor Day @alsassociation. Never mind that you continue to ignore promising therapies like @BrainstormCell #NurOwn. I'd much rather spend the day silently confined to my chair, watching others celebrate the end of Summer. @als_now @AdyBarkan @lance4good

[EndALS @FinishALS]

@CoreyPolen @alsadvocacy @md_wallach @alsassociation I still can’t believe this happened. Unreal.