Lupus Upstate NY

Mission: To educate and support those affected by Lupus, create community awareness and support Lupus research.

[Kathleen Arntsen @KathleenArntsen]

Thank you @SGottliebFDA for a candid discussion on #biosimilars. ⬆️ #patientaccess @LADAOrg @SAFEbiologics @BiosimSafety @BioPrescribers @GHLForg @US_Pain @infusioncenter @IFAArthritis https://t.co/XAcEOKnl2H

[Tara @tarahai]

Super, Super proud of you all!!!!😎 Finally👏🏾👏🏾 https://t.co/sahUE35NWq

[Lupus Association @LADAOrg]

#Lupus is diagnosed in #NativeAmericans at an earlier age and they have more concurrent #Rheumatic diseases and #HealthcareDisparities resulting in poorer disease management and outcomes. https://t.co/tYLWhoaySr

[Kathleen Arntsen @KathleenArntsen]

And the Senate passed it late Thursday night. Now onto the President! #LupusAdvocacy works to support #lupus programs. #RisingVoices We are all Advocacy ROCKSTARS! #LupusAwareness #LupusEducation #LupusPFDD @LADAOrg @LupusUpstateNY https://t.co/HX6mZ97XnP

[Lupus Foundation of America @LupusOrg]

Thanks to all lupus advocates! Today the US House of Representatives passed the Omnibus Appropriations bill, that will boost funding for lupus research and education programs!

[Lupus Upstate NY @LupusUpstateNY]

@LupusOrg @lupus_news It was a privilege to participate in this outstanding event in DC!

[Lupus Upstate NY @LupusUpstateNY]

@LupusOrg Thank you @LupusOrg for a wonderful, meaningful Summit!

[Lupus Association @LADAOrg]

Kudos to @LupusOrg 4 hosting a powerful & informational Legislative Briefing today. Thank you to the ROCKSTAR Panelists & #LupusWarriors who braved the winter weather to promote #LupusAdvocacy and #Education to #Congress. #RisingVoices @LADAOrg @LupusFL @LupusTriState @RNSociety

[Lupus Association @LADAOrg]

Thank you @SenGillibrand for supporting vital #lupus programs & research to improve #patient qol. #LupusAdvocacy #RisingVoices #LupusWarriors @KathleenArntsen @karenmiller97 @LupusUpstateNY @RNSociety @LupusOrg

[Kathleen Arntsen @KathleenArntsen]

Honored to be a #voice 4 #lupus and share my #advocacy tips with #AdvocacyWarriors! @LADAOrg @LupusOrg @LupusUpstateNY @LupusFL https://t.co/T6DXKbsPp0

[Lupus Upstate NY @LupusUpstateNY]

Representing the lupus community of Upstate New York at LFA Summit 2018 #LupusAdvocacy #LupusLearning

[Lupus Association @LADAOrg]

MUST-READ: We need similar protections from unfair coverage reductions in CT! #DontSwitchMeCT → @21KevinKelly @SeanScanlonCT @JoedelaCruz41 @eric_berthel @Rep80 @RepAlbis @TomDelnicki @MattLesser @CaraChristineP @realjoepolletta @BobSiegrist @KurtVail https://t.co/yr9TSrTcdb

[Lupus Association @LADAOrg]

Kudos to Naseer for being a #lupuswarrior and bravo to @LupusUpstateNY and @LupusOrg for giving him opportunities to make his voice heard! https://t.co/21m9GBeT03

[Lupus Association @LADAOrg]

Kudos to @AuriniaPharma for providing a specific #LupusNephritis resource. #Education & #empowerment are critical elements in improving #patientoutcomes & #qualityoflife for those impacted by this debilitating disease. @LupusUpstateNY @LFNC @LupusNE https://t.co/bupPaNcMpi

[Peter Morley @morethanmySLE]

🚨House voting NEXT week on #HR620, a bill that would dismantle the #ADA, & open the door to ❌ other #civilrights laws as well🚨

As a #disabled person I am HORRIFIED.

Please ☎️ your Congressperson 202-224-3121 & say NO!

This bill would nullify DECADES of progress. 💔 https://t.co/uDBfZyRjHL

[Kathleen Arntsen @KathleenArntsen]

Make your voice heard by taking this important survey on NYS #AccessToCare issues. Thank you for sharing with other #NewYorkers. @Annezab @LupusUpstateNY @LupusFFF @LupusLIQ https://t.co/psiJjmjAEe

[Lupus Upstate NY @LupusUpstateNY]

#LupusUpstateNY is grateful to #HenningerHighSchool for hosting #PurpleOut for Lupus!

[Senator Jeff Merkley @SenJeffMerkley]

My office has received 18,959 letters and emails from Oregonians about the #GOPTaxScam:

96% opposed
4% in favor

The American people aren’t buying this tax scam.

[Lady Gaga @ladygaga]

Today is the anniversary of my father’s sister Joanne’s passing. 12-18-1974
It also happens to be our last #JoanneWorldTour date playing North America. I’m very sentimental @MarkRonson , who I wrote Joanne with will be here, in the audience and on stage. #Joanne #LupusAwareness

[Lupus Upstate NY @LupusUpstateNY]

Give to change the day. Give to claim tomorrows.
https://t.co/uZJLjWT6KP