Minnesota MECFS

[Minnesota MECFS @MinnesotaMECFS]

I’m thrilled to announce that the state of Minnesota and Governor Tim Walz proclaimed May 12th #MECFS day!

#stateproclamation #mecfsawareness @WCCO @KSTP @kare11 @StarTribune @PioneerPress @GovTimWalz

[#MEAction Network @MEActNet]

A must-watch presentation about transforming ME/CFS care by #MEAction’s Scientific Director, Jaime Seltzer, is now available: https://t.co/cX1K4M0uOD

@exceedhergrasp1 presented at the @NSU_INIM conference in May. Thanks for having us INIM!

#MECFS #MyalgicEncephalomyelitis

[#MEAction Network @MEActNet]

Check out this webinar for #DisabilityPrideMonth- tomorrow, July 11th. We love "disability-led, joy-centered spaces." Community care is such a critical part of any movement but it does not get the attention or funding it needs. https://t.co/7BKJiNEGIc

#pwME #MECFS #LongCovid

[The Partnership for Inclusive Disaster Strategies @disasterstrat]

Disabled impacted by #Beryl need help? Discapacitade impactade por Beryl y necesita ayuda?

Call/text (llame) Disability & Disaster Hotline [phone] or [email protected]

#Beryl #HurricaneBeryl #Disability #Disabled #Discapacidad #DisabilityTwitter

[#MEAction Network @MEActNet]

Have you had a chance to check out the amazing work of the Pillow Writers lately? #MEAction was excited to partner with longtime ME advocate & mother of a #pwME, Bobbi Ausubel, to host a writing group & we could not be more in awe of this program! https://t.co/xoMBxh4aGV

[#MEAction Network @MEActNet]

We have already received some amazing work for the Severe ME Artists Project. Keep them coming. Submissions due by July 25th! Please see full details including the links to submit here: https://t.co/JzGY4eFutJ

#pwME #SevereME

[#NotJustFatigue @njfatigue]

With fewer than 1/3 of medical school curriculums currently addressing ME/CFS and less than 1/2 of medical textbooks containing information about the disease, it’s undeniable that ME/CFS has slipped through the cracks of our modern medical system. This needs to change in order for people with ME/CFS to get the help that they need. This is the fourth video in a ten part video series by #NotJustFatigue

[#MEAction Network @MEActNet]

A #pwME on the east coast needed a wheelchair accessible room to rent.

[#MEAction Network @MEActNet]

We hope you are having a happy and safe 4th of July! Reminder that we are on summer break and return on July 8th. May your air conditioning, fans, headphones, sunglasses/curtains/eye masks, and electrolytes be up to the day!

#pwME #Spoonie #MECFS #Summer

[Solve ME/CFS Initiative @PlzSolveCFS]

Today in our Solve Science Spotlight series, we're summarizing the @U2Fight_World presentation by Solve Ramsay Research Program alum @C_Scheibenbogen on #MECFS, #LongCovid & the need for more rapid trials to test treatments.
https://t.co/cJVdowTs8Z

[Solve ME/CFS Initiative @PlzSolveCFS]

The Summer 2024 edition of #TheChronicle is available online now! Click through to learn more about the three critical appropriations requests to Congress we championed to secure funding and resources for #MECFS #LongCovid & other #IACCIs.

Read more: https://t.co/YkgIwG32aG

[Solve ME/CFS Initiative @PlzSolveCFS]

Recording now available for "Covid Vaccinations: Efficacy, Options, & Special Considerations for Chronic Illness," with Solve CSO Tim Hsiao, infectious disease epidemiologist @jessicamalaty of @vaxyourfam & @BatemanHorne 's Dr. Melanie Hoppers.
https://t.co/IjCuPazmqZ

[Solve ME/CFS Initiative @PlzSolveCFS]

Solve CEO Emily Taylor joined forces with journalist & filmmaker @r_prior, and science and policy researcher @DystopianSpiral, to author a white paper calling for the @NIH to restructure funding for #MECFS #LongCovid and other #IACCs. Read more: https://t.co/po3IqxqC5P

[Solve ME/CFS Initiative @PlzSolveCFS]

Join the healthcare revolution! Solve Together already has over 2,000 #MECFS & #LongCovid patients and healthy participants using the platform to track their symptoms, set pacing notifications to prevent #PEM, and engage in clinical research. Learn more: https://t.co/bDYbuApvhO

[Tom Kindlon @TomKindlon]

"ME/CFS and Long COVID Study Suggests Immune Cells Robbing the Body of Energy"

Link in image:
https://t.co/U8oHYh1wc5

From American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society (AMMES) July
e-newsletter

#MEcfs #CFS #PwME #LongCovid

[Patient-Led Research Collaborative @patientled]

“That seems to me like one of the reasons why the Patient-Generated Hypotheses Journal is such an important project, because it is a pathway to scribing these things"

Check out the Q&A on the latest issue of our Hypotheses Journal👇

[Solve ME/CFS Initiative @PlzSolveCFS]

Excited that this work will add to our understanding of these conditions and could lead to better symptom management and treatment options for the millions who suffer.

[Solve ME/CFS Initiative @PlzSolveCFS]

Congratulations to @manruipa & @BrunoPaiva_UNAV on the publication of their Solve Ramsay Research Grant Program funded-study of the connections between #MECFS, #LongCovid & Covid-19 post-vaccine studies!

[Cort Johnson @CortJohnson]

Longevity Research: Could it Turn Back the Clock in long COVID and ME/CFS? longCOVID #MECFS https://t.co/vA1FaxMttl