MiriamB

Healthcare professional with interest in ME/CFS, mother, caregiver

[Ramy2.0 @Ramyisback]

I was going to leave today but I will repost this. Listen friends, Lisa's situation is dire, please help however you can

[Collin Rugg @CollinRugg]

Zohran Mamdani and Alexandria Ocasio-Cortez were spotted giggling as people wept during the annual reading of names during the 9/11 memorial ceremony.

The camera transitioned to Mamdani and Cortez after showing a man weeping as the names were read.

[Amelia @amelia_tweetz]

They took memory cards from us and made us pay for storage. They took CDs and DVDs and made us pay for streaming. They took software you could buy once and turned it into a monthly subscription. They took ownership, convenience, and basically everything that used to be a one-time purchase… then somehow made us pay for it every month.

[MiriamB @MiriamBoyer11]

@mekarenholvey2 Absolutely

[MiriamB @MiriamBoyer11]

@boot15_vu charlie kirk and student defending DEI

[MiriamB @MiriamBoyer11]

@Ryan_Parkerrr Can’t wait for that day to arrive!

[MiriamB @MiriamBoyer11]

@real_Caroline_K 😂🤣😂🤣

[Felix Kania @kania_felix]

It‘s really not that complicated

[MiriamB @MiriamBoyer11]

@escapingabuse16 @KathrynHenzler In what restaurant do employees carry big pans of raw chicken through the customer areas?

[Romain @32Sfc46582]

Hello @melindagates,

I’m reaching out to draw your attention to myalgic encephalomyelitis (ME/CFS), a severe neuroimmune disease that remains dramatically underfunded and affects women disproportionately.

In its severe forms, patients can remain bedridden for years, unable to work or leave their homes, and sometimes unable even to wash themselves or tolerate light, noise, or a simple conversation. Some become completely dependent on their families while remaining fully aware and intellectually intact.

Despite millions of people being affected worldwide, and the growing urgency created by Long COVID, there is still no curative treatment.

Your commitment to women and to the most vulnerable could have an enormous impact here. Financial support for ME/CFS research could accelerate the discovery of biomarkers and, above all, treatments for patients who have sometimes been waiting for decades.

Thank you simply for taking the time to look at this disease and at those who are still living almost invisibly in the eyes of the world.

[‏ً @omgsidewalks]

I don't want to “download the app” to pay for parking. I don't want to “create an account” to see a menu. I don't want to “provide feedback” on a 30-second interaction. I just want to exist in the physical world without a digital leash

[Carole Bruce @CaroleBruce17]

An #ME person living alone with no or inadequate help makes trying to pace into a sick joke. How can we pace properly when we have to eat, keep cleanish, pay bills, deal with admin unexpected problems? That doesn’t even begin to explain how much there is to do to simply survive

[MiriamB @MiriamBoyer11]

@orthoterminator @ABrokenBattery completely uninformed

[a tired human @saffronandsky]

I had almost 9 years with my son before I became profoundly ill but my daughter wasn't even 3. Sometimes I look at pictures of her now, almost 7 and start weeping. I love her so much. I have missed so much, and I just wanted to be her mom.

I know people will try and comfort me by saying: you still are her mother. But that's not the point. I want to be her mother for more than half an hour a week (it used to be less than that every 2-3 months). I've spent little more than 24 hours with her in the last 3 and 1/2 years.

It's a grief that often feels too heavy to bear, so mostly I try not to feel it. But sometimes I do. And then there are no words, just tears.

[LUCIΞN | DARKTIMES @LucienDorman]

There is no worse torture in life than slowly losing the ability to do ANY of the things that bring you joy.

Sex? Gone. Socialising? Gone. TV? Gone. Beer? Gone. Love? Gone. Sunlight? Gone. Swimming? Gone. Reading? Gone. Music? Gone. Podcasts? Gone. Medicine? Gone. Laughter? Gone. Crying? Gone. Movement? Gone. Going outside? Gone. Light? Gone. Sound? Gone. Talking? Gone. Walking? Gone. Eating? Gone.

And there’s not a damn thing you can do to get it back. Zero effective treatments. No cure. No answers.

This is why ME/CFS can be THE worst disease on this planet.

Most people have never felt what it’s like to lose the essence of life before death.

It’s a pain worse than death. 💀

Please help us find our way back somehow. Millions of us are missing. Stranded alone in dark rooms, trapped in our beds, too sick to even make it into a hospital.

Please hear my cries for help when no one else does.

#MECFS #LongCOVID

@SecKennedy @elonmusk @BillGates @RepEricBurlison @RepLuna @RepTimBurchett @davidtuller1 @SenSanders @NIH @CDCgov @RepThomasMassie @RoKhanna

[Memorial ME Victims R.I.P. @MemorialME]

CN Tod
Tod durch Sterbehilfe schlägt gerade Wellen in den Medien.
#MECFS Patienten, die sich vor ihrem geplanten Tod verabschieden, erschüttern Tausende.
Patienten, die AN #MECFS sterben, gehen still, aus unsichtbaren Kranken werden unsichtbare Tote. #MEkills - Medien schweigen!

[MiriamB @MiriamBoyer11]

@elonmusk Before you can drive or self drive you need to be able to register and insure the vehicle. Unfortunately in my case it’s literally impossible. Tesla sold me a car with an INVALID VIN number. Tesla’s own insurance refused to insure this car because they “couldn’t see” it.

[MiriamB @MiriamBoyer11]

@luxemiaa Keep your current name. He doesn’t own it. It is way too complicated to change the last name and extremely time consuming.