Pemfriends UK

Help for those with Pemphigoid and Pemphigus

[Pemfriends UK @PemfriendsUk]

PEM Friends are delighted to announce that they are now a registered Charity, or more specifically, a Charitable Incorporated Organisation (A Foundation CIO).
Registered charity no.1207029
We would like to thank everyone who has helped us attain this status.

[Pemfriends UK @PemfriendsUk]

@CorySimpsonMD @RareDiseases @healourskin @rashydecisions @AADskin @AADmember @DermatologyUW @UWMedicine Thank you @CorySimpsonMD .
@PemfriendsUk knows how important research and trials are to advance the treatment of #bullous and #pemphigus
Quicker diagnosis is also one of our goals
https://t.co/9Z4bJtNWte

[Pemfriends UK @PemfriendsUk]

The 104th BAD Annual Meeting.
Day 2 and The Manchester Central is a terrific Venue.
The old Manchester Central Station is turning out to be a terrific venue for #BAD24.
And who would have thought we would have a chance to Hook a Duck too!
Overall a successful day. 😊

[Pemfriends UK @PemfriendsUk]

@UK_DCTN @ILDSDerm So deserved. He is a lovely man and made me feel so welcome when I joined the Blister study

[Pemfriends UK @PemfriendsUk]

A few photos from our first day at the The 104th BAD Annual Meeting. #BAD2024
We have a great position next to the Conference hall entrance site.
We had some really interesting conversations with visitors to our stand. We are so pleased to get our rare disease out there.

[Pemfriends UK @PemfriendsUk]

#BAD2024
Setting our stall out (PSG15) ready for tomorrow at the BAD annual meeting in Manchester.
Come and say hello. ☺️

[Pemfriends UK @PemfriendsUk]

Next week, we are mostly doing the British Association of Dermatology Annual Meeting in Manchester. We have a stand there and will be nobbling as many Dermatologists as possible to tell them about PEM.

If you are there, come and talk to Alison, Helen or Isobel

#BAD2024

[Pemfriends UK @PemfriendsUk]

Unfortunately we couldn't be represented this year but please let us know when the article is published @CorySimpsonMD 😊

[Cory Simpson, MD, PhD, FAAD (he/him) @CorySimpsonMD]

Great experience at World Congress on Rare #Skin Diseases. Loved mtg advocates for @RareDiseases & sharing @SimpsonLabUW data on #Darier & #HaileyHailey dz modeling. Excited to learn our rvw article on these rare blistering disorders will come out soon @theJIDJournal…stay tuned!

[Pemfriends UK @PemfriendsUk]

@Scotwh721 @gridders100 You can contact these Scott
https://t.co/YgVlb8mb0A

[Pemfriends UK @PemfriendsUk]

The latest issue of PEM LIVES magazine is out now.
It's full of news, stories and much more
https://t.co/WK5JOVwrgS

[Pemfriends UK @PemfriendsUk]

We'll be there 😊

[Brian S. Kim @itchdoctor]

🙏 to @AADskin for the incredible honor of receiving the Marion B Sulzberger Award. 🙏 to all my trainees, mentors, colleagues, and patients and all of the stakeholders who took a chance on our #science over the years. We promise to do even more in the coming years #neuroimmune #itch #inflammation #translation

[Primary Care Dermatology Society (PCDS) @PCDSUK]

A fantastic 2 days in London celebrating 30 years of the PCDS - with many thanks to our speakers and delegates! #primarycare #dermatologyeducation

[healourskin @healourskin]

Today Becky Strong IPPF Outreach Director presented at the @DNAnurses Annual Convention! #healourskin #pemphigus #pemphigoid

[Pemfriends UK @PemfriendsUk]

Today on our weekly Zoom support session we wore our spots for #RareDiseaseDay #rarediseaseday2024. Why? Because our rare autoimmune blistering diseases (AIBD) often manifest as small spots which go on to become blisters and in some cases open sores.
Some of us wore stripes too

[Pemfriends UK @PemfriendsUk]

Interesting as ours is an autoimmune disease and there is a high female to male ratio

[Beacon for Rare Diseases @RareBeacon]

Learn more about a recent study offering 'new clues to why most people with autoimmune diseases are women' in the blog from @NIHDirector

Read more here: 👇

https://t.co/EjMO6I83r4

[Dermatology_UKDCTN @UK_DCTN]

Thanks to the @BSDS_Official and https://t.co/VWxO7jpcZC we have THREE awards of £10k available for research.  More details here:
https://t.co/KH3MWu4gXO

[Pemfriends UK @PemfriendsUk]

It will be good to have another line of treatment to use as medications can have many side effects

[Pemfriends UK @PemfriendsUk]

Rare disease day is coming and this year it's on the rarest of days
Thursday February 29th
Pemphigus and Pemphigoid are rare dermatological diseases. As a community, we are raising awareness for rare dermatological diseases worldwide.
#RareDiseaseDay

[GlobalSkin @IADPO]

The global non-profit patient organisation @CMTCOVM has launched their Rare Disease Day video. Like, share and repost it to show your support!

#RareDiseaseDay