Sandra Schwob

Software developer from Leipzig, hobby baker/cook, Japan/Korea fangirl, into LARP, new home in Darmstadt. Working at Merck. Fighting for ME/CFS awareness!

[Sandra Schwob @Sandra121289]

1/7 Why I care about #MECFS : My husband had the illness since 2012 when he was infected with the Epstein-Barr virus and had glandular fever. He searched 3 years for a diagnosis. Went to every doctor there is: physicians, neurologists, internists, hematologists, even oncologists.

[Age of Wonders 4|Secrets of the Archmages out now! @AgeOfWonders4]

From the shadows comes a soft waddle-waddle, followed by a pair of glowing red eyes. A Dire Vampire Penguin emerges, its crimson gaze fixed on you.

The Vampire Lord himself stares you down, tiny fangs glinting in the moonlight, ready to attack or perhaps embrace you?

Two brave heroes will soon be chosen to receive one of these limited-edition plushies before the official launch.

How to Enter the Makeship Giveaway:

Follow @Makeship and @AgeOfWonders4
Like and Retweet this post!

The giveaway ends on 28th November, 2025.

[Nasir Ahmad @_nasir_ahmad_]

Diese Worte muss ganz 🇩🇪 hören:

„Ich bin kein Held. Ich bin nur ein Muslim. Das ist meine Arbeit, ICH BIN MANNHEIMER. Mannheim hat mir in 10 Jahren soviel gegeben. Das was ich gemacht habe, ist im (Vergleich) eine Kleinigkeit.“

Das ist Herr Afzal Muhammad, der Taxifahrer aus Mannheim, der den Attentäter aus Mannheim stoppte.

Er ist ein Held der Nation! Auch wenn er es nicht sagt. Danke Herr Muhammad!

[Karl @karlander_]

Als „bettlägeriger Aufklärer“ kämpfte er gegen #MECFS-Erkrankung: Jetzt ist Faraz Fallahi verstorben
https://t.co/PXC8qHiokS

[Sandra Schwob @Sandra121289]

@MemorialME Ich habe 2022 mit Faraz Kontakt gehabt und geholfen die Fundraiser Webseite für BC007 zu betreuen... Als er Anfang 2024 die Apharese bekommen hat, habe ich gehofft, dass er uns noch so lange wie möglich erhalten bleibt... Wo auch immer er ist, dort wird es ihm besser gehen..

[Memorial ME Victims R.I.P. @MemorialME]

#RIP 🖤Faraz Fallahi †24.2.2025🖤

Wann hört es endlich auf,
dass Menschen viel zu jung an #MEcfs #MyalgicEncephalomyelitis #MEkills sterben?

Wann hört es auf, dass Therapien verweigert werden?

Wann hört es auf, dass schwerst körperlich Kranke psychiatrisiert werden?

[b-rony @thatfellabyron]

#bc007 works! But only for those with autoimmune issues. Berlin Cure’s study failed because of poor participant selection. Personally I improved IMMENSELY from this medication and demand our health institutions and govt work to make it accessible ! #longcovid @KarlLauterbachk

[MrBeast @MrBeast]

I’m gonna give 10 random people that repost this and follow me $25,000 for fun (the $250,000 my X video made)

I’ll pick the winners in 72 hours

[Sandra Schwob @Sandra121289]

@AgeOfWonders4 @yaroat @SaraSanAgustnG1 @gatsu083 @zombipuppy @pappaxray @TAB_0x @SDragon35652557 Aristotle the Penguin arrived safely in Darmstadt and enjoys the cold weather on our terrace. Of course with a coffee, while making plans about world domination^^

[Sandra Schwob @Sandra121289]

@FarazFallahi Frohes neues Jahr dir auch! 😊

[Sandra Schwob @Sandra121289]

@AgeOfWonders4 @yaroat @SaraSanAgustnG1 @gatsu083 @zombipuppy @pappaxray @TAB_0x @SDragon35652557 Wow nice! Thank you! Looking forward to my nice Dire Penguin Plushie! 😍😍

[Sandra Schwob @Sandra121289]

@AgeOfWonders4 Aristotle ! I get this vibe when I look at him :D

[Bine Milchkaffee @MilchkaffeeB]

Ich bin immer noch total geflasht. 350 Teilnehmer. Das ist der Wahnsinn. Danke #köln und Umgebung.

#Trauergang
#MECFS #postcovid #longcovid #postvac

[Arlette @ArlettePoolen]

Some context for my English speaking pwME followers:

Tomorrow morning, the life of a dear member of our community will come to an end.
Please light a candle and hold Céline and her family in your thoughts. They have done so much for our community!

#LiefdeVoorCéline

[NotRecovered @Not_Recovered]

The German chancellor @OlafScholz was now confronted 3 times in two weeks with question about #LongCovid .

Each time he made it clear that the approval of #LongCovid medicines needed to be accelerated.

@EU_Health @EMA_News @US_FDA what are you doing to accelerate the process?

[Brandon Gilles @BrandonGilles]

This is Briana, Brandon’s wife.

It is with a shocked and shattered heart, I have the massively sorrowful news to share that Brandon passed away earlier this week.

As many of you know, he had been battling an incredibly difficult illness over the past year.

We almost lost him, many times… but he just kept going.

This man, my husband, my children’s father, worked harder than anyone I know would have, or could have to try and save his own life.

We thought his body had turned a corner, and we thought death was finally off the table.

I guess it never really is.

Know that when he left this physical world he had been in a place of joy for so many months now. He had worked his body back to such a better spot.

He was living life and enjoying it again. He got to remember truly who he was. Not sick Brandon, but just… Brandon.

The kids and I got to spend two solid weeks with him last month and it was glorious. We filled the days with all the normal Papa things. Skateboarding, playing backyard soccer with our son, reading books and snuggling with our daughter, bubbles, bike rides, wrestles, holding my hand as we walked the beach. It was the best, and all four of us needed that so desperately.

His death came a massive shock and it will take a long time to process that he is actually gone.

I and our kids will miss him beyond words. And I know many of you will as well.

With love,
Briana

[Sandra Schwob @Sandra121289]

@BrandonGilles Dear Briana, my heart goes ou to you🫂. I have been following Brandon a few months, since he started getting better...and this just breaks my heart. I feel so sorry for you! 😢He will be remembered as a pioneer in this field.

[Sandra Schwob @Sandra121289]

Ohne Worte...
Thread by @Pflegeherz12 on Thread Reader App https://t.co/SOb8UA420s

[Dr. Sabine Hermisson 🦋 @SabineHermisson]

Psychosomatik und #MECFS: Sensibilität - Differenzierung - Respekt
Liebe Mediziner:innen, ihr versteht oft nicht, warum Psychosomatik für #MECFS-Betroffene ein belastetes Thema ist.
Deshalb einige Hinweise in der Hoffnung auf Verständigung.
(Bitte kein Krawall!)
1/

[Carmen Scheibenbogen @C_Scheibenbogen]

Auch die #ChariteBerlin leuchtet heute blau zum #MEAwarenessDay