Huntingtons Disease Community Catch Ups

This group is for those in the Huntingtons disease (HD) community to come together and have some informal , chit-chat style social gatherings via videochat.

[HDYO @HDYOFeed]

#ADVOCACY MATTERS! HD-CAB hosted advisory board meetings in Bologna with @uniQure_NV and @PTCBio. Advocates provided input to help encourage #clinicaltrials to reflect the community's needs. @EuroHuntington @EHDN_News @EHDN_News #research #raredisease #hope #collaborate

[HDYO @HDYOFeed]

HD advocate and HDYO Ambassador did an amazing job presenting about her experiences with #huntingtonsdisease. Thank you for your grace and bravery! #EHDN2022 @TessPersson4

[Huntingtons Disease Community Catch Ups @TessPersson4]

⭐Come join us on Saturday September 10th
⭐Talk or listen! It's up to you, whatever you feel like. See you then 💙🙏🙂

[Huntingtons Disease Community Catch Ups @TessPersson4]

Good Vibes 🤩

[FNIlab@CMU @FNIlabCMU]

#HDwalk in Traverse City @HDSA

[Huntingtons Disease Community Catch Ups @TessPersson4]

Come Join Us!! 💙🤩🦋🙏

[Huntingtons Disease Community Catch Ups @TessPersson4]

NEXT ZOOM/CATCH UP MEETING IS ON ☺⭐

Come join us TUESDAY AUGUST 9TH .
8PM LONDON TIME 💙

This time we will talk/catch up on how everyone is doing and what's going on.

WELCOME 🦋

[Huntingtons Disease Community Catch Ups @TessPersson4]

This is a really nice way to see different aspects of things and try to keep in mind 🙏💙🦋☺

Wish you all a great weekend ⭐

[Huntingtons Disease Community Catch Ups @TessPersson4]

Hi everyone! Time flies by quickly so please take a moment and just breathe 🙏 🤗
⭐⭐⭐Thankful Thursday ⭐⭐⭐

[Huntingtons Disease Community Catch Ups @TessPersson4]

Hey, new week has passed! Time flies 💙🦋
Hope everyone is okay 🙏

[Huntingtons Disease Community Catch Ups @TessPersson4]

Heey!!! How are you all doing this week? We are in the middle of HD AWARNESS MONTH 💜💙

I just wanted to say a big thanks to everyone who makes a statement for Huntingtons disease! Well done 👏

Lot's of love and have a great weekend. 🦋

[Huntingtons Disease Community Catch Ups @TessPersson4]

THANKFUL THURSDAY 🧡🦋☀️
How was your week?
I really appreciate sunshine and brighter days.
And I hope for one more to come 🙏

[HDYO @HDYOFeed]

Its free to attend for the community. Click here to register.
https://t.co/yic14GiMsu
#hdyocongress #hdyo #HuntingtonsDisease

[HDYO @HDYOFeed]

The HDYO Young Adult International Virtual Congress Weekend is here!
Join us for a weekend packed full of inspirational speakers and the chance to learn about the latest research & more about Huntington's Disease. There's lots of fun stuff going on too.

[HDYO @HDYOFeed]

@Srotberg15 @BJsView @hdyonz @EuroHuntington @eurordis @JimmyPLowell @Ferdi_Squitieri @EHDN_GRANTM @EHDN_News @AACYorg @VvHuntington @CheckOrphan @CUREHDSAORG @HDGeneCo2 @Help4HDI @HuntingtonSG @TessPersson4 @HDAI_ie @hdafricaorg

[Huntingtons Disease Community Catch Ups @TessPersson4]

Head over to FB for more information ⭐

[Huntingtons Disease Community Catch Ups @TessPersson4]

Zoom meeting today!! Head over to FB for link 🙂

[Huntingtons Disease Community Catch Ups @TessPersson4]

What's your way to connect and meet with other people in the same situation as you?

😊��💙⭐

[Prilenia @PrileniaTx]

In Huntington’s Disease (HD) patients, neurons suffer increasing stress that impedes their function. Learn how Prilenia's drug candidate #pridopidine has been shown to activate the Sigma-1 Receptor & reduce cellular stress. https://t.co/z1py7doPsu #HD

[HDBuzz @HDBuzzFeed]

Looks to be potentially exciting news from Roche and Ionis on the status of tominersen! We'll watch the community update on Thursday, and expect a Buzz story with details to follow.