Adrian Gropper

Patient-centered health information evangelist and medical device developer. Volunteer CTO at Patient Privacy Rights Foundation.

[Adrian Gropper @agropper]

@JoshCMandel These non-commercial tools put a lot of responsibility on the patient to do the prompt engineering around SMART on FHIR exports. This risks aggravating disparities for populations already struggling with access to primary care https://t.co/LMgBO4ZE6O
This needs community input.

[Isaac Kohane @zakkohane]

If you have to wait 4 months for a primary care visit or 2 months for mental healthcare, what are we comparing AI performance to? @NEJM https://t.co/mTyoPJ8Vl8

[Adrian Gropper @agropper]

https://t.co/XprjrIVIfH

[Adrian Gropper @agropper]

https://t.co/cXEYJgQRIU

[Adrian Gropper @agropper]

https://t.co/mD1tjiXNiF

[Adrian Gropper @agropper]

On the same day @nytimes op-ed predicts @JetBlue getting worse, my incoming flight sat on the ground, full, for an hour and 20 minutes before getting to the gate at PHX. Delays are one thing but this seems positively #cruel.

[Adrian Gropper @agropper]

@BrianRoemmele How close are we to being able to add training with your own private health and social data and share only the insights to the global open source medicine commons? https://t.co/x2ci4m5unf @PatientPrivacy @TrusteeHIE

[Adrian Gropper @agropper]

Do we really want to privatize and make secret medical science in this way? https://t.co/lGq7kUYCDL

[Adrian Gropper @agropper]

Trustee Community Newsletter: Medical AI Will Not Be Like ChatGPT https://t.co/ZQRDxyP3PH

[Adrian Gropper @agropper]

@bewestisdoing @TrusteeHIE @PatientPrivacy @FlemingProtocol Longitudinal patient-centered health records are essential for clinical, research, and public health. Patients get to set priority across the three use-cases and exercise control via trustees and communities they choose. Premature optimization for one use-case is unnecessary.

[Adrian Gropper @agropper]

Introducing a new patient community paradigm

https://t.co/1146d2TSJZ @TrusteeHIE @PatientPrivacy

[Adrian Gropper @agropper]

What do healthcare consumers want? on Trustee Community Newsletter https://t.co/Ec4uidayhg

[Justin Richer Ⓥ @justin__richer]

GNAP session at the IETF in London meets some very hasty photoshop work this morning. #IETF #IETF115

[Adrian Gropper @agropper]

@EdiePargh @TrusteeHIE

[Adrian Gropper @agropper]

Interesting strategic perspective on #privacy and #blockchain regulations to promote #decentralization. https://t.co/N64Z6psap0 @TrusteeHIE

[Edie Pargh @EdiePargh]

Why a decentralized health records approach is the way out of today’s byzantine healthcare system https://t.co/CIVp3pvjKd

[Adrian Gropper @agropper]

@bewestisdoing @sendgoodcheers There’s network amplification that drives platform formation and their monetization of inferences.

[Adrian Gropper @agropper]

Excellent update by @caseymross https://t.co/RiKGHJH7TZ It's 18 years since NHIN. Now we have TEFCA to wait for. Our sick care system focuses on business over patients. @PatientPrivacy @TrusteeHIE

[Adrian Gropper @agropper]

We're launching the Trustee Community Newsletter with a post by our own @EdiePargh to set the stage. Please subscribe and share. https://t.co/BdQ3yuHIgU @PatientPrivacy @TrusteeHIE

[Carlos Fenollosa @cfenollosa]

After self-hosting my email for twenty-three years I have thrown in the towel 😩

Email is now an oligopoly, a service gatekept by a few big companies which does not follow the principles of net neutrality.

[Adrian Gropper @agropper]

@Sheldrake @csageland @hiproj Forced association with and surveillance by powerful global platforms for a large part of what we do every day is a human rights violation. Here's one current effort to improve Internet standards from the perspective of human rights https://t.co/jMOMxjFIvJ