Ann Hayes Buchanan

[Dr. Sean Mullen @drseanmullen]

This TIMES article on Long COVID research failure not only does a disservice to the intricacies of biomedical science but also prematurely calls for a paradigm shift that could potentially derail years of progress. The authors' suggestion to pivot from the biomedical model to a focus on symptom management and health services research is a regressive approach that risks abandoning the pursuit of a deeper understanding of Long COVID's underlying biological mechanisms. Such a shift is a capitulation to complexity and an implicit endorsement of ignorance.

Furthermore, the proposed centralization of research under a government agency, such as the Health and Human Services Office of Long COVID Research and Practice, is a simplistic solution to a multifaceted problem. History has shown that bureaucratic centralization often stifles innovation and delays action, which is the antithesis of what is required in the dynamic field of emerging diseases. The call to concentrate power within a singular entity seems to be a knee-jerk reaction to the understandable frustrations with the pace of research, yet it disregards the benefits of a diverse and decentralized approach that can spark creativity and rapid responses.

Lastly, the article's call for patient involvement rings hollow when the authors themselves advocate for a narrow focus on management over treatments. This token nod towards patient advocacy groups contrasts starkly with their recommendation to step back from research aimed at unraveling the disease's mysteries. Patients are not just seeking empathy and management of their symptoms; they are desperately seeking answers and solutions that can only come from a robust and sustained scientific inquiry into the fundamental nature of Long COVID. By suggesting otherwise, the authors seem to be out of touch with the very community they purport to serve, and the article reflects a resigned attitude that patients, researchers, and clinicians should find unacceptable.

Finally, the conflation of ME/CFS with Long COVID is a disconcerting oversimplification that dismisses decades of patient experiences and scientific inquiry. ME/CFS is a distinct clinical entity that existed long before the COVID-19 pandemic, and while there may be symptomatic overlap, each condition warrants its own separate consideration in research and patient care. To assume that Long COVID is simply a rebranded form of ME/CFS is to erase the unique challenges and struggles faced by patients of both conditions. It is only through dedicated, condition-specific research that we can honor the lived realities of those affected. Science, not supposition, should lead the way in our efforts to understand and treat these complex syndromes. Only with clear, evidence-based insights can we hope to provide the recognition and respect that patients with ME/CFS and Long COVID rightly deserve. The medical community's responsibility is to keep these conditions distinct in research and treatment until such time as rigorous scientific evidence suggests a unified approach.

https://t.co/5kn3bwZtem

[Ann Hayes Buchanan @annhayesb]

@RTHM_Health I’m finding so much relief with nattokinase and NAC, and though I haven’t had testing for clots, I can tell by the attenuation of brain fog and SOB, even slight lessening of PEM, that this is a serious issue in my body! Thanks for the info!

[charlos @loscharlos]

@chydorina @tessfalor @OpenMedF @PutrinoLab @VitalikButerin @NIH @hubermanlab @LisaAMcCorkell @patientled “We become experts not because we necessarily want to but because we have to in order to have a chance at recovery.” - @LisaAMcCorkell #LongCovid

[Simon Spichak @SpichakSimon]

What happens when you have a chronic illness that isn't being researched seriously?

Patient-led groups like @remissionbiome are designing their own research to address the needs of those with ME and long-COVID. See my latest in @ObserverUK @guardian

https://t.co/pqy8FPMfiw

[Ann Hayes Buchanan @annhayesb]

We are real, and we need your help! https://t.co/BuLm0M8Ylp @housedemocrats @SenAngusKing @senatorcollins @POTUS @kamalaharris @albertbourla @stephane_bancel @joaquinduato @SecBecerra @DrWoodcockFDA @cdcdirector https://t.co/enY0SLCbZW

[Ann Hayes Buchanan @annhayesb]

@KnutsonLexi @boulderpolice Im sorry

[Ann Hayes Buchanan @annhayesb]

@1a my partner and i want to become trees together, and have the next life side by side in the forest!

[Ann Hayes Buchanan @annhayesb]

@sdblank4510 @TheAJHeil @Zac_Petkanas Bot

[Ann Hayes Buchanan @annhayesb]

@ChitReale @ezridax82 @TheAJHeil @JayNodelman @Zac_Petkanas You run around insulting ppl and get mad when they say wtf? This is Twitter asshole. Go back to Russia.

[Jeff Tiedrich @itsJeffTiedrich]

am I understanding this correctly? covid-19 is so deadly that Paul Manafort and Michael Cohen had to be released from prison early, but it's also so benign that we need to be packing the nation's children back into their schools pronto? ok cool, that checks out

[Bruce @brssrq]

@RosanneR429 @RepMattGaetz

[Ann Hayes Buchanan @annhayesb]

I voted! #DenverVotes #ColoradoVotes #Romanoff2020

[Dan Rather @DanRather]

So we have reached a place in the proud history of our republic when the topic of the day is whether the president reads. When, really, I think deep down don't we all know the answer?

[Elizabeth Warren @ewarren]

Other countries have contained the virus. It's possible to control the spread. The U.S. simply hasn't done what we need to do—not by a long shot. We know the solutions: contact tracing, testing, masks. But we need our leaders to act instead of burying their heads in the sand.

[Ann Hayes Buchanan @annhayesb]

@tedcruz You probably hired the vandals.

[Fred @WaywardWinifred]

Eliot Engel leaves Congress with full pension and healthcare for LIFE. All workers deserve this when they leave their jobs after 30 years.

[Ann Hayes Buchanan @annhayesb]

@LeskieDe @StephenAtHome Scram

[Alexandria Ocasio-Cortez @AOC]

When I won in 2018, many dismissed our victory as a “fluke.”

Our win was treated as an aberration, or bc my opponent “didn’t try.”

So from the start, tonight’s race was important to me.

Tonight we are proving that the people’s movement in NY isn’t an accident. It‘s a mandate.

[Marianne Williamson @marwilliamson]

Americans are not just protesting racial injustice at this point. We’re protesting an entire web of injustice - economic, criminal and environmental as well as racial - that’s the underlying systemic cause. What we’re experiencing now is “a new birth of freedom” - and it’s time.

[Andrew Yang🧢⬆️🇺🇸 @AndrewYang]

Facebook is now worth $650 billion largely due to the monetization of our data. How much of that value are users seeing? At this point Facebook should be paying users for the privilege of using our data.