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Bob Bob
@bobbobme
England (south)
Joined November 2012
671
Following
498
Followers
3.4K
Posts
Pinned Tweet
Bob Bob
@bobbobme
about 10 years ago
A list of writers, academics, doctors, therapists, policy makers etc. who have tweeted about Julie's STATS article. https://t.co/ba8xOuriMZ
bobbobme
retweeted
ME Association
@MEAssociation
about 10 years ago
Such a fabulous conclusion to a month's hard running. 39 marathons in 30 days! https://t.co/MqSWjAdhmw
bobbobme
retweeted
Tom Hunt Ultra Run
@RunTomRun2016
about 10 years ago
John O'Groats!
#LEJOG
complete and over £15,000 raised for the
@MEAssociation
#RunTomRun
bobbobme
retweeted
Rick Berke
@rickberke
about 10 years ago
This eye-opening first-person piece about bad science has stirred huge interest this week. Worth a read. https://t.co/m1u04Yg2Ub
Who to follow
Henry Anderson
@macanders
#pwme Mild-mannered ill author. New (free) writing course - https://t.co/OZed3zvopu
Jeannette Burmeister
@JKBurmeister
Attorney (California, formerly licensed in Berlin, Germany), successfully sued NIH + HHS for ME-related FOIA violation (incl. all of $140k attorneys' fees)
Pat H 💙
@pathcath
35 years of ME/CFS. Former Westcare volunteer worker. Still waiting for biomedical research and better times. 💙
Bob Bob
@bobbobme
about 10 years ago
@Al_prof
If u do understand the lightning process, then I'd be interested to know why u think it could be safe to expose children to it.
Bob Bob
@bobbobme
about 10 years ago
@Al_prof
If you don't understand the lightning process then please don't discuss it.
@MEawareness
bobbobme
retweeted
BMJ Patient Editor
@BMJPatientEd
about 10 years ago
And true for so many fields of medical research https://t.co/p4LekeCHjk
Bob Bob
@bobbobme
about 10 years ago
#pwme
#mecfs
https://t.co/1GyKsQMMLN
BMJ Patient Editor
@BMJPatientEd
about 10 years ago
This is such a good, thoughtful blog. Am tweeting it again to ensure you all know it is by @sjmnotes: https://t.co/rv1iIkZKrp
Bob Bob
@bobbobme
about 10 years ago
@Al_prof
It's an incredibly unfortunate attitude to believe that you know more about an illness and its treatments than the patients.
Bob Bob
@bobbobme
about 10 years ago
@Al_prof
Instead of "taking on" an imaginary "powerful lobby group", why don't you simply try listening to patients?
Bob Bob
@bobbobme
about 10 years ago
@Al_prof
You just lost credibility by suggesting an equivalent of faith healing could potentially be a treatment. Nonsense.
Bob Bob
@bobbobme
about 10 years ago
@Al_prof
You need to familiarise yourself with lightning process before u discuss it.
Bob Bob
@bobbobme
about 10 years ago
@Al_prof
How, exactly, in your view, does the lightning process translate into a 21st century medical treatment? Bewildering.
Bob Bob
@bobbobme
about 10 years ago
@Al_prof
Wow, you're supporting the lightning process as a medical treatment for children? That hits a new low for Twitter.
@julierehmeyer
bobbobme
retweeted
Columbia Vagelos College of Physicians & Surgeons
@ColumbiaPS
about 10 years ago
Re-analysis of big
#chronicfatigue
trial got rolling after questions raised on@profvrr's Virology website https://t.co/KXpkTUPvOz
bobbobme
retweeted
Stanford Genome Tech
@StanfordGenome
about 10 years ago
Ron Davis presents metabolic abnormalities in pilot
#CFS
study at SGTC consistent with reduced energy availability
bobbobme
retweeted
ME/CFS News
@MECFSNews
about 10 years ago
@julierehmeyer
PACE authors admitted during a tribunal hearing that no threats have been made against them: https://t.co/mBYfcSiuN5
bobbobme
retweeted
Ruth Hansten
@RHansten
about 10 years ago
Bad science misled millions with chronic fatigue syndrome. Here’s how we fought back https://t.co/rxgtKOCWNB via
@statnews
bobbobme
retweeted
Owen Hughes 📻
@OHughesRadio
about 10 years ago
Very interesting read about how bad science led to incredibly shabby treatment for ME/CFS sufferers https://t.co/bxlatwmkaE
Bob Bob
@bobbobme
about 10 years ago
The Implosion of a Breakthrough Study on Chronic Fatigue Syndrome. https://t.co/IIaUKtXj3Y via
@thescienceofus
Bob Bob
@bobbobme
about 10 years ago
@CampaignFoI
Hi, you might be interested in these articles; re a FOI request by a patient for medical trial data. https://t.co/W0CmyY9OvD
Retraction Watch
@RetractionWatch
about 10 years ago
·
Manhattan
No ‘Recovery’ in Controversial PACE Trial, New Analysis Finds https://t.co/0vEAJ6R9eV And
@julierehmeyer
's take: https://t.co/xsK4Dz4q9x
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