Pam Crowley Andrews

philanthropist•consultant•advocate

[Joan Huffman @joanhuffman]

PRESS RELEASE - Legislature Approves the Establishment of the Dementia Prevention and Research Institute of Texas. #txlege

[Jason Scharf @Jason_A_Scharf]

Everyone is doing this wrapped or that wrapped, so I used some AI tools, to do my own Austin Next Wrapped looking at the stats, the transcripts, the vibe, & what it means for What's Next:

🏆 Top 10 Most Downloaded Episodes of 2024:

1. Ep 144: Why Gauntlet AI Chose Austin to Build the Next Wave of AI Engineers with @Austen

2. Ep 117: Rise of the Meta City with @Richard_Florida

3. Ep 143: From DNA to Deep Space with @EliahOverbey, Professor at @uaustinorg

4. Ep 129: Pattern Breakers with @m2jr, Founding Partner at @floodgatefund

5. Ep 110: What is the Gundo? with @isaiah_p_taylor and @johncoogan

6. Ep 131: From Building 3D-Printed Houses to Funding Critical Tech with Evan Loomis, Partner at Overmatch Ventures

7. Ep 111: Understanding Agora and Humanity's Future with @byronreese and @databrett

8. Ep 141: Quantum CEOs Get Real About Hype, Hope, and Hardware at Austin's @Quantonation Day

9. Ep 142: The Skills and Learning Revolution in the New Tech World with Rob Rosenthal, CRO at @Udemy

10. Ep 132: Rekindling Humanity's Ambition Through Story with @Devon_Eriksen_ - Theft of Fire

🎙️🎞️Platform Evolution

- Added all audio to YouTube

- Started full video (Ep 139) in November, now on both YouTube & X

- The result of this shift was immediate. Here are the full year stats despite X posting since Nov:

43% X | 41% Audio Platforms | 17% YouTube

🤖 AI-Powered Insights:
I loaded the top 10 transcripts into @Google's @notebooklm and with @AnthropicAI Claude's help analyzed what these top episodes reveal about our audience. The findings?

- Deeply interested in the practical application of cutting-edge tech

- Cares about big ideas that shape our future

- Wants authentic discussions about building and funding critical tech

- Invested in the future of cities and communities

- Values the unique "Austin factor" in innovation

🔮 What's Next, Austin?

Finally, using the same AI tools to look at all the episodes put out this year, I prompted them to not only look at the guests' answers to my final question, but to look at how the whole conversations interacted with each other, to build a cohesive answer on the future of Austin:

- Austin isn't becoming the next Silicon Valley, we're building something uniquely ours, focusing on the convergence of digital and physical tech with an emphasis on hardware, robotics, and AI applied to the real-world

- Continued rise in mission-driven companies such as health, energy, defense, & housing.

- Positioned to lead globally in AI, biotech, and quantum computing, but with its own distinctive approach

- "Weird" matters, the city's unique culture is becoming a catalyst for creative collisions between diverse, independent & contrarian thinkers

So what's the key to unlock this future? Austin maintaining its soul while building its muscle.

What's Next?

[Jason Scharf @Jason_A_Scharf]

🚀 Excited to release the 2024 Austin Bio & Health Report with my co-author @jani_tuomi.

Last year’s report was about reading the tea leaves, this year we’re planting a flag!

A thread on all our findings

[ScreenPlus @ScreenPlusNY]

#INSD2022 is two days away!! @ISNSNeonatal

We are excited to celebrate and learn more about the importance of #newbornscreening by attending the Guthrie Symposium on Newborn Screening and Metabolic Disorders hosted by @Jacobs_Med_UB 👶🧬

[Casma Therapeutics @CasmaTx]

Casma’s Chief Medical Officer Dan Ory is co-leading the session on “Future Biomarker Considerations in NPC” https://t.co/LRFibDSq7w

[AllStripes @_allstripes]

Niemann-Pick disease type C (NPC) is a rare, genetic disease that affects the body’s ability to metabolize fat within cells. Here’s how we are working to power research. @Firefly_Fund @nnpdf @NP_Canada

[ScreenPlus @ScreenPlusNY]

Receiving a #RareDisease Dx through #NewbornScreening can be incredibly challenging for families. That is why @cure_mld is offering Family Support Coach sessions to all families of children diagnosed with ScreenPlus disorders.

To learn more: https://t.co/By8wH6Vjdc

[Pam Crowley Andrews @bpamandrews]

Just posted a photo https://t.co/nRPlZ86q0i

[ScreenPlus @ScreenPlusNY]

We are excited to read about the efficacy and safety of arimoclomol for #NiemannPickC, a disorder on our panel!

So many important and interesting articles in @JIMD_Editors this month 📚👩‍🔬

[Pam Crowley Andrews @bpamandrews]

@eperlste got me like 😱! Love this and THANK YOU! Take a listen. #NPCResearch #Agifttothespecies Patients Waiting – Baba Brinkman Lyric Video https://t.co/DjEL5ZdsTr via @YouTube

[Texas Rare Alliance @txrare]

Thank you #ProjectBabyDillo supporters! @NAMITexas @IAFaccess @curechd2 @CureAHC @dup15q @LADAOrg @sophiesneighbor @NF2BioSolutions @chromosome8p @DMLCHWS @cacna1a @SADSFoundation @cureSYNGAP1 @RareEpilepsy @hunt2cureCMT @Firefly_Fund @cureangelman @setbp1 @CureSanfilippoF

[ScreenPlus @ScreenPlusNY]

Niemann-Pick Type C (NPC) is very rare and varies both in symptoms and time to onset. We work directly with @nnpdf and @Firefly_Fund to ensure our study meets the needs of families who receive a positive NPC result. Visit their profiles to learn more!

#ScreenPlus #RareDisease

[Pam Crowley Andrews @bpamandrews]

Just posted a photo https://t.co/zzPCyAI27l

[Firefly Fund @Firefly_Fund]

#CatLawyer Rod Ponton has gone viral, bringing joy to the world. His niece, Pam Andrews, co-founded @Firefly_Fund. He's honored for people to laugh at his expense, with proceeds from this T-shirt benefitting our mission. Buy one today to #jointheflight! https://t.co/JvA2Td1ilD

[Pam Crowley Andrews @bpamandrews]

Just posted a photo https://t.co/UCbqOKK5jG

[Amy Dockser Marcus @AmyDMarcus]

Families, scientists, regulators and drug makers all wanted to develop a treatment for Niemann-Pick Type C disease, so why is it taking so long?https://t.co/EBVsbOg7zj via @WSJ

[Pam Crowley Andrews @bpamandrews]

Thank you @WSJ and @AmyDMarcus for capturing our family’s journey with #adrabetadex and the struggles that rare disease communities face.

[Amy Dockser Marcus @AmyDMarcus]

Families, scientists, regulators and drug makers all wanted to develop a treatment for Niemann-Pick Type C disease, so why is it taking so long?https://t.co/EBVsbOg7zj via @WSJ

[Firefly Fund @Firefly_Fund]

Happy Halloween from the Firefly Fund!

[Pam Crowley Andrews @bpamandrews]

Just posted a photo https://t.co/fGFW9dmFez

[Pam Crowley Andrews @bpamandrews]

#grateful

[Firefly Fund @Firefly_Fund]

We would like to thank our NPC community partners for their continued support as we continue to advance newborn screening and brining awareness to NPC.
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#NPCAwareness #fireflyfund #jointheflight #newbornscreeningsaveslives #rareaware #raredisease #newbornscreening #NPC1