CYSTIC FIBROSIS INDIA

Cystic Fibrosis Trust of India. Official Account of Cystic Fibrosis patient in India. #waiting for miracles #waitingformiraclemedicine

[CYSTIC FIBROSIS INDIA @cfindiaofficial]

I just wrote to the CEO of @VertexPharma urging her to stop denying access to lifesaving #cysticfibrosis treatment. Thousands of patients are being left to suffer & die because of Vertex's staggering $326,000 price tag! Take action here: https://t.co/JbYMc8q6Iv #RightToBreathe

[Vertex Save Us @VertexSaveUs]

Today at the Brazilian Cystic Fibrosis Congress a protest was held at the @VertexPharma stand. Participants are demanding that they lower their prices and enable access to #Trikafta in Brazil and around the world. The global CF community is united and demand action now 👊💊🌎

[Vertex Save Us @VertexSaveUs]

MAY IS CYSTIC FIBROSIS AWARENESS MONTH!

Please share & sign the petition!
https://t.co/mwUsW9jRuX

#RightToBreathe #Trikafta4All #NoOneLeftBehind

[CYSTIC FIBROSIS INDIA @cfindiaofficial]

@VertexSaveUs @VertexPharma Patients of Cystic Fibrosis in India should also get access to the Medicine Trikafta from @VertexPharma. Please look into it @mansukhmandviya @MoHFW_INDIA

[Vertex Save Us @VertexSaveUs]

On #WorldHealthDay please join us and sign the petition if you agree that every #cysticfibrosis patient, everywhere should have access to lifesaving drugs. No family should have to watch their loves-ones suffer and die when lifesaving drugs exist.
🔻🔻🔻
https://t.co/PGx7P7uZYQ

[Nicola Johnson @JohnsonMNicola]

https://t.co/3LD0PID9bi

Some awesome news here! This is what we were campaigning for. A life unlimited by #cysticfibrosis.

@VertexPharma MUST make global access its priority. #CFcantwait.

[Cystic Fibrosis Foundation @CF_Foundation]

Chelsea Stahl (Spruance) was afraid she wouldn’t get married because of her cystic fibrosis. She shared three approaches that helped her manage her CF while celebrating her dream wedding. https://t.co/U4hdfRbGyg

[CYSTIC FIBROSIS INDIA @cfindiaofficial]

@VertexPharma @UNCF Can't see any commitment to patients of cystic fibrosis. You got Trikafta but not making it available to the patients in need. Anyway your commitment to profit over life patients can be seen. #cysticfibrosis @CF_Foundation

[CYSTIC FIBROSIS INDIA @cfindiaofficial]

US company @VertexPharma is charging up to $326k a year for lifesaving #cysticfibrosis medicine - leaving thousands to suffer & die without treatment. I've just signed this petition demanding global access to CF drugs now - join me & add your name! https://t.co/MMgNOa4ND6

[drdeepthiraidu @deepthiraidu]

@PMOIndia @ORDI @Cipla_Global , @SunPharma_Live , @LupinGlobal, @Bharathbiotech Win-win Business Opportunity.
Vertex produces and sells CF meds for exorbitant cost. Many from non first world countries suffer and do not have access to these drugs which are out of patients reach.

[CYSTIC FIBROSIS INDIA @cfindiaofficial]

@mansukhmandviya Sir Please look for access of life saving drug Trikafta by @VertexPharma to Indian Patients of. Cystic Fibrosis. They have taken marketing permission and haven't launched the medicine in India. Also, Vertex set price so high that Indian patients can't afford @MoHFW_INDIA

[CYSTIC FIBROSIS INDIA @cfindiaofficial]

@VertexPharma We know .... For profit!

[Cystic Fibrosis Trust @cftrust]

Thank you to @ChrisMRiches and the @Daily_Express for this excellent coverage of yesterday's hand in @10DowningStreet, calling on the Prime Minister @RishiSunak to urgently review the outdated prescription charges exemption list.
@Jeremy_Hunt @SteveBarclay #ReviewTheList

[CYSTIC FIBROSIS INDIA @cfindiaofficial]

@MallikaBhardwaj @Cipla_Global @SunPharma_Live @LupinGlobal @MoHFW_INDIA @OfficeOf_MM @ORDIndia

[CYSTIC FIBROSIS INDIA @cfindiaofficial]

@MallikaBhardwaj @Cipla_Global @SunPharma_Live @LupinGlobal @MoHFW_INDIA @OfficeOf_MM
Cystic fibrosis patient in India are feeling very helpless as the new treatments are out of reach of the Indian patients. Please 🙏 help us.

[Mallika Gollapudi @MallikaBhardwaj]

@Cipla_Global , @SunPharma_Live , @LupinGlobal, @Bharathbiotech Win-win Business Opportunity.
Vertex produces and sells CF meds for exorbitant cost. Many from non first world countries suffer and do not have access to these drugs which are out of patients #Indianpharamapickitup.

[Just Treatment 💊 @JustTreatment]

“It is not for the pharma industry to decide who lives and who dies in order to maximise its profits” 👏

Thanks @MedsLawPolicy for this write-up of our Right to Breathe campaign: https://t.co/W18XNSOBRp

We demand global access to lifesaving #cysticfibrosis treatment NOW! 🌍

[Just Treatment 💊 @JustTreatment]

"The cost of the #cysticfibrosis medicine that his 2-year-old started taking was about to climb from just $180 to a whopping $43,600 in 2023... due to a decision by @VertexPharma to slash the amount of financial assistance that it offers"

READ MORE👇
https://t.co/Di0smDRAHL

[Nathalie Vernan @NathalieVernan]

US company @VertexPharma is charging up to $326k a year for lifesaving #cysticfibrosis medicine - leaving thousands to suffer & die without treatment. I've just signed this petition demanding global access to CF drugs now - join me & add your name! https://t.co/SDMkiYhUCf

[Health Justice Initiative - HJI @HealthJusticeIn]

Read: 📚

"One company holds a monopoly on the manufacture and sale of CFTR modulator therapies and is choosing not to make new CF treatments available to people in the developing world through the normal channels..."
- that co. is @VertexPharma

Link:📲
https://t.co/0UUq0U4xOf