Fightback Against FND

FND Warrior 💪🇬🇧 Down, but not out!
Bringing more awareness to the debilitating effects of Functional Neurological Disorder (FND)
Coffees warmly welcomed 👇

[BBC Politics @BBCPolitics]

"Disabled people should have been at the heart of the matter from the beginning"

Comedian Roșie Jones says the government "never considered the real effect" that the proposed welfare reform would have for disabled people

#BBCLauraK https://t.co/v2HwddQuYE

[Stephanie-Roxanne Blanco @S_R_Blanco]

Today I submitted the PhD 😱 "Dissociation, Brain Function and Inflammation in FND". It's been a long 6 yrs! I'm so grateful for all of the support I've had through this🥹 Special shout out to the #FND community who supported this to the end!
#fndresearch #phdsubmission

[Fightback Against FND @FndFightback]

@DisbldUrbanFarm We have "Talking Therapies" in the U.K. which is like basic psychotherapy for mild anxiety or depression. But the FND services are telling patients it can help with FND (though they can't) so are telling patients to report anxiety/depression just to get a foot in the door. Crazy!

[Fightback Against FND @FndFightback]

Have just finished a course of Cognitive Behavioural Therapy (CBT) aimed at treating Non-Epileptic (Functional) Seizures (NEAD), and I honestly don't feel any better.

If anyone else has tried CBT for NEAD/NES, did it help? 🤔

[Fightback Against FND @FndFightback]

@Playtus1 I hate this whole "face your fears" narrative which implies that Avoidance traits are the cause of worsening FND/NEAD symptoms. I feel that the psychologizing of FND is drawing attention away from finding and treating the biological/organic physiological triggers.

[Fightback Against FND @FndFightback]

@FoxPsyche101 Really sorry to hear that. In my experience therapists seem to believe that CBT is a "cure", so when it doesn't work, they claim that it must be the patient's fault for not trying hard enough. Personally I think CBT is bogus quackery, but I know not everyone shares that view.

[Fightback Against FND @FndFightback]

@MyVoucherCodes I can't log into my account. It says the password is incorrect, but the password reset link doesn't send me an email either. Can you please advise how I can access my account?

[Dr Isobel Williams @isobel_anne]

1/11 I am pleased to share the results of my empirical project from clinical psychology training, which has been published in @EpilepsyBehavi1

@DCGillespie_PhD @jonstoneneuro @KealPsych @greenplanetfish

#FND #Neuropsychology #ClinicalPsychology

https://t.co/OqegjNUPYy

[Functional Neurological Disorder Society @FNDSociety]

🗣 New FND research💡 update!

After a successful launch in Australia, FND Research Connect is going global 🌐. FND Research Connect aims to bring together 👐 people affected by Functional Neurological Disorder and researchers. By signin🗣 New FND research💡 update!

[1/n]🧵

[Michael Crawford Hick @mchphotoworld]

Please help me make a disabled sports magazine as nothing exists out there.

I can capture the photos, now I need help in funding the first issue with people and printing cost can you help?

Please share /retweet as far as possible

Thank you

https://t.co/vlScYUCjQ8

[UCLH @uclh]

Each individual living with #FunctionalNeurologicalDisorder (#FND) will experience different symptoms.

Watch our series of videos and learn about the different strategies you can use to help improve your symptoms.

Find out more: https://t.co/2WM2T9FYgS #FNDaware @BrainAppeal

[Wolfson Neuro Rehabilitation @WolfsonNeuro]

It’s senior neuro OT education time at the Wolfson. This month: FND across the pathway. First up is Aoife Sheehy with the consensus guidelines by @CNicholsonOT and colleagues

[FND Portal - is no longer on X @FndPortal]

“Cadenza” is my deep-dive essay on the history, biology, and social impact of FND.

Please consider checking it out if you haven’t already.

Many people have this condition and have been abandoned by medicine. This is my best attempt to tell the story.

https://t.co/za75nmP9H5

[Jon Stone @jonstoneneuro]

Congratulations @S_R_Blanco - a powerful step forward for FND

[LifewithFND @FndLifewith]

RESEARCH CALL-OUT 🚨

An Exploration of Self-As-Context in Individuals with Functional Neurological Disorders.

If you’re interested contact the researcher via their email address.

[Tom Plender @TomPlender]

Can anyone help @GeecheeThreat here with this, is there any research in this area? @AlanCarson15 @jonstone @SelmaAybek @PerezMGHLab @SarahLidstone @Tim_R_Nicholson @ZacharyGrinDPT @painphysio @BibaStanton @DevonOship @LaFaverMD @susannah_pick @popkirov

[Functional Neurological Disorder Society @FNDSociety]

📚 Discover the FND Resource Library!

This is a curated selection of journal articles and video lectures in the field of FND - available to all FNDS members! Ideas for learners and health professionals who want additional resources.

Check it out here: https://t.co/NDSY8GZhxZ

[Jon Stone @jonstoneneuro]

An excellent collection of new papers on FND. If you can’t access then consider emailing the corresponding author

[FND Together/ TNF Ensemble @FND_Together]

Thank you to @re_activePT
#FND

[Fightback Against FND @FndFightback]

For any GPs and Healthcare Professionals out there, this thread is definitely worth a read 🧵