Josh Mailman

I am a patient advocate living with NETS My tweets are my own opinions but my various non profits do receive funding from pharma

[Thor Halfdanarson @OncoThor]

I try, often unsuccessfully, to not post while on vacation but this is just too important. Hot of the @adasarimd et al. press. New SEER data. Increasing incidence and prevalence, owing to earlier and likely largely incidental diagnoses. Improving OS too🙂

https://t.co/l7KyQdFMtK

[Josh Mailman @Globeseek]

@OncoThor @adasarimd @PamelaKunzMD @JMaxCutsNETs The OS improvement seems slight for distant disease, but the prevalence based on earlier detection is important to understand. Thank you @adasarimd @PamelaKunzMD and all the authors on this work.

[Josh Mailman @Globeseek]

Great to be at SNMMI representing the NET community. Join us for patient education day on Sunday in person or virtually. https://t.co/1zJajrIWZ9 @NCFCancer #netrf @CureNETs @HealingNET1 @netcancerday

[Josh Mailman @Globeseek]

Proud to be a contributing author. ASCO Releases Its First Guideline to Support Oncologists in Managing Symptoms of Gastroenteropancreatic Neuroendocrine Tumors @ASCO @NANETS1 @snmmi @ICPO_Foundation @CureNETs https://t.co/Tz91OXdQOU

[Josh Mailman @Globeseek]

@DukeCancer @dukemedicine @DukeHealth @DukeMedSchool Congratulations my friend I look forward to seeing you when I am in the area. ( Which somehow was 3x last year)

[Josh Mailman @Globeseek]

Are they kind? That was the ? posed to me dressings rm while waiting for my MRI. This was after a tech used tape to keep my socks on. I told her they were and that it was 50th scan and that all imaging techs over my 17 year+ journey have been kind. So let's all be kind this year

[Josh Mailman @Globeseek]

@ICPO_Foundation @baumrp Honored to be featured. There is always hope but it takes a great deal of support @SNM_MI @NANETS1 @ITM_Radiopharma @netcancerday

[Josh Mailman @Globeseek]

Looking forward to learning something new today as the first patient advocate to speak and attend the Boulder Peptide Symposium

[Josh Mailman @Globeseek]

@oreganruth @Nate_WilsonMD @AACR @ASCO Another year of working with and learning from some great learners. You will all leave San Diego tomorrow with completed protocols and informed consents. Congratulations

[Josh Mailman @Globeseek]

@Nate_WilsonMD @oreganruth @AACR @ASCO I missed the taco 🌮 run. I had a great and rewarding experience working with you and all the members of pdg5

[Josh Mailman @Globeseek]

Outstanding work

[Heloisa Soares MD, PhD, FASCO @helops79]

Grateful for the opportunity to give my testimony at the #WaysAndMeans Committee’s field hearing in #Utah, focused on access to health care. Honored to represent and share many of my patients’ experiences. @huntsmancancer @NeliMUlrich @HCI_SachApte @HuntsmanCOE

[Josh Mailman @Globeseek]

@ivybelkins @EGFRResisters @ivybelkins we will miss you, but you leave such a rich legacy behind.

[Josh Mailman @Globeseek]

@tmprowell @ivybelkins @AACR @ASCO It is so sad that we lost @ivybelkins last week. We will sing her praises at this year's @asco @AACR https://t.co/Xs8CZlDtnT @ivybelkins will be missed but not forgotten

[Josh Mailman @Globeseek]

@tmprowell @ivybelkins Can not agree more glad to call @ivybelkins a friend as well as @tmprowell both who I was fortunate to meet many years ago @AACR @ASCO https://t.co/Xs8CZlE1dr

[Josh Mailman @Globeseek]

Congratulations to Dr. Evans @UCSFimaging the recipient of the Sam Gambir trailblazer award at this year's @SNM_MI annual meeting

[Josh Mailman @Globeseek]

Live Now The Past, Present, and Future of Theranostics for NETs: Richard Baum, MD, Professor of Nuclear Medicine, Elcin Zan, MD, Radiologist, Shereen Ezzat, MD, Endocrinologist, Princess Margaret Cancer Centre - https://t.co/pf1uMrH5jg

[Josh Mailman @Globeseek]

As with many things tech issues happened - here is the new link https://t.co/qUnGheyo0x

[Josh Mailman @Globeseek]

NET patient therapy session 2:30p today @SNM_MI join us live https://t.co/TRJirmJ51F @NANETS1 @CureNETs @HealingNET1 @LACNETS

[Josh Mailman @Globeseek]

https://t.co/RHY2jddxYk
Live now. Talking about how molecular imaging and nuclear medicine work. @CureNETs @NANETS1 @HealingNET1 @LACNETS

[Josh Mailman @Globeseek]

@marklewismd @OncoThor @NANETS1 @CureNETs @SNM_MI Since I haven't bought the article. It would be interesting to note % of those pretreated with akylators and average time to onset. Given the delay in onset of MDS AML how do you tease out prior therapy? We saw some of these in control net trial when rlt combo with cap tem

[Josh Mailman @Globeseek]

Day 2 @theNCI Cancer Data Summit. Clinical trial discovery. Great to see so much interest in improving this area.