Top Tweets for #BestNHSdata
Heartfelt thanks 🙏 to all @reformthinktank and @GuardianJobs @GdnHealthcare for inviting @FCC_UK to contribute to a wide-ranging and thought 💭 provoking discussion about making NHS data work for everyone today. #BestNHSdata
Thank you @guardian & @reformthinktank for a great morning debating 'Making NHS data work for everyone'. Expertly chaired by @RichardVize w/ Benjamin A Falk @EleHrwch @jamesosh @natalie_banner @Patient_Data & @CommonFutrs @FCC_UK #BestNHSdata
Props to @GdnHealthcare for hosting #BestNHSdata this morning. Insightful and engaging panel but still plenty of questions to answer across a host of fields (law, policy, ethics, trust, data science, value, infrastructure) for the potential of data to be realised.
“Data held by the NHS is about people, collected by people and it’s for people.
We need to start conversations about NHS data from there.”
@natalie_banner kicking off the morning at @GdnHealthcare @reformthinktank
#BestNHSData
Thank you to all the speakers and @reformthinktank & @GuardianJobs for an insightful event today about how to make NHS data for everyone. If you missed it head over to @adr_uk for live tweets! #BestNHSData
“The pharmaceutical industry needs support” Rabia Khan describes how #data has the potential to benefit both current and future patients regarding drug development and discovery #BestNHSData
#BestNHSdata Fascinating session hosted by @GdnHealthcare . Interested to hear thoughts on how the media can help build public trust in use of healthcare data? @RichardVize .
Dynamic discussion @GuardianJobs @reformthinktank seminar - strong focus on public engagement and building trust. It’s essential that we ‘walk the talk’ and ensure meaningful conversations with people - the outcomes of which are acted upon #BestNHSdata
Chair @RichardVize has wrapped up this morning's #BestNHSData discussion - further reading here: https://t.co/vkozacMNO9
https://t.co/WRkH7mGLx0
https://t.co/4RZjdKL3Z8
Lots of different views on who owns the data #BestNHSdata
Top quality debate at @reformthinktank panel on #BestNHSdata : regulation is clear, GDPR and Caldicott principles allow de-identified data to be used for research. Big questions re fairness, value transfer and engaging patients in the conversation.
Annemarie Naylor explains “trust isn’t something you just have...you need some kind of feedback loop”, comparing an example to a process in Switzerland with feedback and none monetary benefits - “if I look after your data & profits return to you, would you mind?” #BestNHSData
Good debate #BestNHSdata
“We need to move from an altruistic model to more a targeted prevention model” O’Shaughnessy compares making #data work for everyone to the 100,000 Genomes Project #BestNHSData
#bestnhsdata how do you build and maintain trust ?
Healthcare data does not just come from health and care settings, says @EleHrwch - we are failing to tap into other data, eg from banking and consumer behaviour, that could be used to better predict certain conditions #BestNHSData
‘How do we shift the conversation from a focus on privacy to a focus on prevention?’Great point from Rabia Khan @SensyneHealth - but we still need to ensure a balanced conversation - not simply focusing on benefits but recognising people’s valid concerns as well #BestNHSdata
Great discussion on how to make NHS data work for everyone.
Good to see focus on building a trustworthy system through transparency, accountability & making sure benefits are felt across the NHS.
@CommonFutrs @EleHrwch @RichardVize @rabiatkhan @jamesosh #bestNHSdata
Are there any lessons that we could learn from the financial sector? Ben Falk says that equity-based models would be inappropriate for the NHS. These are residual income streams and often subject to the economic cycle. Royalty payments should be considered instead.
#BestNHSData
Annemarie Naylor @CommonFutrs warns - unless there is a single set of rules applied nationwide, we run the risk of a data-driven postcode lottery #BestNHSData
#bestnhsdata “bolster the thing everyone trusts “ and that is the NHS
“Trust isn’t something you build once... you need to continue to build it, there needs to be a feedback loop” Absolutely - so how do we ensure that the public has ongoing involvement and oversight so that we continue to build confidence? #bestnhsdata #londontalksdata @OneLondon4
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