Top Tweets for #HighQualityHealthcareForALL
Well said! Absolutely agree -today, children as young as 2 can benefit from #orkambi (not funded) as well as #kalydeco (funded) Same disease - will @MattHancock & @BorisJohnson allow that hypocrisy to remain? #LifeSavingMeds4CF #LetThemBreathe #HighQualityHealthcareForAll
@wgmin_health @VertexPharma @BrynSeiriol @MattHancock @vaughangething I am great full that you funded Kalydeco. My 9 yr old son with CF is healthy, bright, energetic & will become a healthy adult who will contribute to society thanks to these meds. Everyday these mindless arguments go on you are taking these opportunities away from a child with CF.
@BorisJohnson Will you make it #GreatBritain? What happened to #HighQualityHealthcareForAll? @MattHancock knows about us - waiting for nearly 4 yrs whilst our children suffer & decline. Will YOU help them? #DoTheRightThing #ShowThemYouCare #LifeSavingsMeds4CF
@GreatStrides65 @Alidilly @MattHancock @BorisJohnson @scotgov @NicolaSturgeon Absolutely agree! Will England fail in providing life saving medicines for children? @BorisJohnson? @MattHancock? #CysticFibrosis #LeadInHealth #HighQualityHealthcareForAll
Oh yes - I know. It should be available & there are other high cost drugs too. Wonder what @MattHancock thinks about why one patient is worth more than another? Problem is he won’t stand up & answer to that #HighQualityHealthcareForALL #Hypocrite #NHSLongTermPlan
@myCFHero @maggsmcg @Alidilly @MattHancock @NHSEngland @NICEcomms Currently for those under 25 with Luekemia.
Don't get me wrong, I believe the treatment should be available, it just frustrates me when @NICEcomms then claim #Orkambi is too expensive.
@HelenHughes_sim @jodavidson65 @MattHancock @MattHancock wants to pay the same for 6000 patients as he does already for 450 patients. Meanwhile our children suffer as he refuses them access to #HighQualityHealthcareForALL to #Prevent their decline & early death. #OrkambiNow for #CysticFibrosis #ConservativePlan
@BoothyCraig @nhsCFwarriormum @GreatStrides65 @MattHancock @cftrust @DavidRamCFT @NICEcomms @VertexPharma @nicolablackwood I really think it may time @NHSEngland took down their #LeadingInHealth & #HighQualityHealthcareForALL -it’s absolutely not the case with the UK’s most common life limiting genetic disease #CysticFibrosis. Meanwhile lots of other countries get it done & move forwards. #NotLeading
@nhsCFwarriormum @GreatStrides65 @MattHancock @cftrust @DavidRamCFT @NICEcomms @VertexPharma @nicolablackwood I was wondering @MattHancock how you would feel if one of your children had #CysticFibrosis and was being denied life saving medicine? Is it ok by you the parent that children are denied? 💔#HighQualityHealthcareForALL #ShowThemYouCare #PrecisionMedicine #Prevention
@nhsCFwarriormum @deb_cohen @MattHancock Currently 4% of sufferers get life changing medicines (from age 1 👍) whilst the other 60% who could be helped, are not. What about #HighQualityHealthcareForALL? Are they 2nd class citizens? Their medicine is cheaper, don’t they deserve a chance at life? Same condition!!
Yes @MattHancock #HighQualityHealthcareForAll? Those in Scotland will have healthier, longer lives than those in England. Is this your idea of #prevention? Our children are dying to breathe & need urgent access to #OrkambiNow -why are just 4% allowed access to life saving meds?
@theresa_may We would like our child with #CysticFibrosis to have many more Christmas’s - she needs life saving medicine #OrkambiNow & is relying on you @theresa_may to make that possible (just like in Ireland, Scotland, and throughout Europe) #HighQualityHealthcareForAll #MerryChristmas
@NHSEnglandSI @NHSEngland @SonyaWallbank @NHSImprovement Bizarre isn’t it. @NHSEngland will pay for some with #CysticFibrosis to have access to life saving medicine - but ignores the majority - dispite lower cost?!! #GeneDiscrimination #Inequality Is this #HighQualityHealthcareforALL? #GreatBritain?? #OrkambiNow #PrecisionMedicine4CF
Please show these to @MattHancock who believes in #prevention for #NHS plan. Access to medicine #OrkambiNow will prevent thousands of people w/ #CysticFibrosis getting serious (often chronic) lung infections. They can keep & live well. That would be #HighQualityHealthcareForAll
@emmagadie2009 @KarlTurnerMP Thank you @KarlTurnerMP for representing Oli. Our country claims to have #HighQualityHealthcareForAll - yet our children go without access to life saving medicines for 3yrs!! Time to put it right, UK has worlds 2nd highest CF patient group. We should lead, not fail. #OrkambiNow
No access to life saving medicines for #CysticFibrosis Are you still claiming #LeadingInHealthcare?
#HighQualityHealthcareForALL? @MattHancock? Our children need
#OrkambiNow #Symkevi #PrecisionMeds4CF #DontMakeThemSuffer
UK #CysticFibrosis family - please gather & send as many as you can on #Nov19 - we must & will be heard. The UK needs life changing #PrecisionMeds4CF - ask your friends, bring your families - stand united for those who need our help 💪 #HighQualityHealthcareForALL #OrkambiNow
@theresa_may @Conservatives .@theresa_may - can you tell us when that extra funding will see children in the UK with #CysticFibrosis get access to life saving medicine #OrkambiNow? Don’t they deserve #HighQualityHealthcareForALL & the #SpeedyResolution you spoke of in May?
@OrkambN @MattHancock I’ve worked hard my whole life, paid taxes every step of the way - & loopholes in policy (rare vs ultra rare) prevent my child with a life limiting illness getting the healthcare she needs in the #GreatBritain? @MattHancock #HighQualityHealthcareForALL -what about #CysticFibrosis
Can @BrineMinister & @jamesosh explain why some CF patients are getting medication(4%), but the majority (50%) are NOT. You call that ‘fundamentally unfair’ it’s time now, to fix it #OrkambiNow #PrecisionMeds4CF #HighQualityHealthcareForAll
@heidiallen75 @IanAustinMP Many thanks for all of your hard work! Very frustrating @BrineMP & @jamesosh still fail to accept a drug that is already funded is included in the offer, also that they ARE currently valuing one CF patients lives higher than another....g551D #Kalydeco opposed to ddf508 #Orkambi
A sliding scale is clearly required between ultra rare (HST) & common (STA) reimbursement. We cannot judge ‘rare’ under STA, nor value some lives less than others, simply because there are ‘more than a few/less than many’ that qualify. #HighQualityHealthcareForALL @MattHancock
@MattHancock @theresa_may @BrineMP @10DowningStreet time to bridge the gap! Why is it only cancer drugs that get ‘managed access’ why are #RareDiseases being ignored!! Stop hiding behing @NICEcomms flawed appraisal system!! #OrkambiNow #PrecisionMedicine https://t.co/WTQPBwHp3V
#EveryChildMatters #HighQualityHealthcareForALL @MattHancock @theresa_may Please don't let our children go without life saving medicines for #CysticFibrosis - you CAN save them. #DoTheRightThing #OrkambiNow #SaveCFLives
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